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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. April 25, 2017

In This Issue

An in-home care program for California's elderly and disabled is constantly at the heart of budget battles. Here's why

Why Are Summers So Tough for Kids on the Autism Spectrum?

Enigmatic chemical tag is altered in autism brains

Autism's drug problem

Parents and Others Looking for Help!!!

San Diego Regional Center's Recreation Resource Page

Soma will be at BEE, LLC in San Diego! Don't miss the opportunity to learn about RPM straight from its creator!!

Family Beach Day at Moonlight Beach

Summer Camp at Social Communication Specialists!

Special Needs Law Center: Insights 2017 Directory

AEFCT Expeditions!

Upcoming Events by The ABA Group

No Wait for RDI!!!

Sesame Street in Communities

Face Your Fears!

Our new Social Competency Model

Save the Date!: Love and Autism!!!

Life Planning Group in National City

Life Planning Group in El Cajon


 




Want to learn more about Relationship Development Intervention (RDI) for your child on the spectrum?

Relationship Development Intervention (RDI®) is a unique treatment approach that empowers parents to guide their child to succeed in a truly dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities (problems and situations that are just beyond their level of competence), develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their Guides. The program has no defined length. It is designed to accommodate parents and children with a wide range of obstacles and handicapping conditions. Therefore participation may range anywhere from one to several years. Have specific questions? See the RDI FAQs for answers!





thomas nelson


  • An in-home care program for California's elderly and disabled is constantly at the heart of budget battles. Here's why
  • California's program to provide in-home care for its low-income elderly and disabled residents finds itself once again at the heart of a state budget standoff.

    It is familiar territory for the workers, advocates and administrators of the In-Home Supportive Services program. The current flare-up - between the state and county governments over how to divvy up IHSS costs - is the latest example of how California's signature program, meant to keep people in their communities and out of nursing homes, has continually been the source of budget friction in recent years. Read on...

  • Why Are Summers So Tough for Kids on the Autism Spectrum?
  • For most kids, summers are a time for relaxed, unstructured, low-key fun. Or, perhaps, a time to change everything up and head off to camp and family vacations. Most kids (if not their parents) look forward to summer as a break from routine.

    Kids and families living with autism, however, often find summer more stressful than any other time of year.

    What's so tough about summer? Read on...

  • Enigmatic chemical tag is altered in autism brains

  • An understudied chemical modification that influences gene expression is abundant in the brains of people with autism, according to a new study1. The results are too preliminary to be conclusive, but they point to new avenues of study, experts say.

    The modification, or tag, is a methyl group that attaches to the DNA base cytosine. The most-studied form of DNA methylation, called CpG methylation, targets cytosines that are followed by another base, guanine. Some researchers have found atypical patterns of CpG methylation in autism brains.

    The new study focuses on 'nonCpG' methylation, in which a methyl group sticks to cytosines followed by a DNA base other than guanine. This type of methylation is found almost exclusively in the brain. Read on...

  • Autism's drug problem

  • Many people on the spectrum take multiple medications - which can lead to serious side effects and may not even be effective.

    Connor was diagnosed with autism early - when he was just 18 months old. His condition was already obvious by then. "He was lining things up, switching lights on and off, on and off," says his mother, Melissa. He was bright, but he didn't speak much until age 3, and he was easily frustrated. Once he started school, he couldn't sit still in class, called out answers without raising his hand and got visibly upset when he couldn't master a math concept or a handwriting task quickly enough. "One time, he rolled himself up into the carpet like a burrito and wouldn't come out until I got there," Melissa recalls. (All families in this story are identified by first name only, to protect their privacy.)

    Connor was prescribed his first psychiatric drug, methylphenidate (Ritalin), at age 6. That didn't last long, but when he was 7, his parents tried again. A psychiatrist suggested a low dose of amphetamine and dextroamphetamine (Adderall), a stimulant commonly used to treat attention deficit hyperactivity disorder (ADHD). The drug seemed to improve his time at school: He was able to sit still for longer periods of time and focus on what his teachers were saying. His chicken-scratch handwriting became legible. Then, it became neat. Then perfect. And then it became something Connor began to obsess over. Read on...

  • Parents and Others Looking for Help!!!


  • We are moving to San Diego area and are wondering if anyone can offer recommendations about elementary schools in Poway area that may be suitable for our child who is 6 yr old with high functioning autism/aspergers and ADHD.

    No behavioral issues but needs speech/OT/Executive functioning skills at school which are in his current IEP.

    Any advice on elementary schools in poway area would be greatly appreciated.
    Rishi rkst38@yahoo.com



    We are looking for a reliable respite care provider. We are located in Oceanside.
    Please email highly recommended provider info to vargas768@yahoo.com



    My 21 year old daughter with high functioning autism is looking for a female roommate starting in the fall of 2017. Apartment is located in the 5025 Collwood Blvd student oriented community near SDSU. She is hoping to find a like minded girl who likes anime, cosplay, gaming and who does not smoke/drink/drugs. The apartment complex is student oriented but you are not required to be a student. The apartment is a 2 bedroom/2 bath and the roommate must be willing to share a bedroom and bath. There will 4 residents (2 in each bedroom). Each tenant has an individual lease and all utilities are included. Rent is approx. $660 each. There is a pool, gym and free shuttle to SDSU, Grossmont and Mesa. Please contact Debra at (619) 672-8893 or debraberl@gmail.com and leave a message.



    Parent of child with Dyscalculia (math disability) seeking to find other parents having this experience. It is very commonly undiagnosed yet has a serious impact on a child's learning and life. As with many things it can be very difficult to receive an appropriate response from the school district tasked to make the necessary accommodations.
    Please email me if you share this or a similar experience. Pdmsea@gmail.com. Thanks so much.



    Seeking parent experiences in the Poway Unified School District IEP process.
    As a parent of two special needs adopted children I have had some seriously difficult experiences with Poway Unified School District. Having been inexperienced in raising children, much less special needs children, I was very naive in the process. I am hoping to learn more through hearing about other special needs parent experiences, good and bad. I will not share any personal stories.
    Please email me at pdmsea@gmail.com. Thanks so much.



    Hi! We have two energetic boys. I'm looking for a reliable respite worker who is fun loving and understands Aspie kids. Boys are 11 and 13.
    Legoland, parks, bike riding, basketball, Yugio, board games, and Minecraft are in your future.
    Please contact me for more info. Ideally, after school 2-3x a week with younger kiddo and a weekend afternoon/early evening 2x a month. Summer schedule will shift a bit.
    Please Contact me if you are interested - suzans@yahoo.com Carmel Valley area-thank you!



    I am looking for a half day kindergarten program in San Diego county. Currently my daughter is in preschool in the Chula Vista Elementary School District. CVESD does not have any half day programs or EAK programs for the 2017-2018 school year. My daughter turns five in July, is autistic and epileptic, and has an IEP. We feel she would be better served in a half day program for one additional year. If anyone has any information they can share with me I can be reached at jenrichardson05@yahoo.com. Thank you!



    Our son is 12, about to turn 13. He was diagnosed with high functioning autism, apraxia, and academic disabilities (cannot read or write independently). However, he is very artistic, loves to draw, loves movies of all kinds (comedies: Lego Batman, Boss Baby, anything by Pixar/Dreamworks and adventure movies: Star Wars, Indiana Jones, Pirates of the Caribbean, etc). He also loves nerf guns, zombies, video games, building legos (so so soooo many legos), watching Youtube about building Legos, and also likes to create Lego brick films. Most recently he has been talking about wanting to create his own movies with friends.

    The problem is, we have struggled with finding friends similar to our son's abilities. His one best friend moved away and the other few friends he does have don't share the same interests. We thought by posting here we might be able to reach a few families with children who are either typical developing or with special needs that have similar interests. I know other parents have to struggle with the same problem for their kids!?

    Are there any families with kids out there looking to find a friend with similar interests like our son? If so, we would love to meet you!

    We have also started looking into group therapy sessions through ABA companies and also speech to see if we can make new friendships. Does anyone have any recommendations for groups they participate in?
    Jennifer & Derek Thomas
    jenderekandryland@att.net



    We need some serious Psychiatry help for our son. He is 18 and mild/moderate autistic. But now we believe he is dealing with a secondary mental health issue. Where can we get help?
    Thanks Laura jrschley@att.net



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • San Diego Regional Center's Recreation Resource Page
  • sdrc

    Recreation is important in promoting inclusion and quality of life. Studies have shown that it increases self-esteem and confidence, leads to improved communication, social interaction, and friendship skills.

    The San Diego Regional Center supports clients having time to recreate and believes it is essential to a healthy and well-balanced life. Below are links to some popular recreation activities in the San Diego and Imperial Counties. However, SDRC does not endorse, nor provide funding for any recreation activity. SDRC is not liable for anything occurring while participating in any of the recreational activities. Click here for all the info!!!

  • Soma will be at BEE, LLC in San Diego! Don't miss the opportunity to learn about RPM straight from its creator!!
  • Click here for all the info and to register!!!

    Builders of Eloquence and Engagement, LLC
    1360 Rosecrans Street Suite B
    San Diego, CA 92106

  • Family Beach Day at Moonlight Beach
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    Sunday, April 30, 2017
    10:00 AM to 2:00 PM
    Moonlight State Beach
    cul-de-sac off of B street, Encinitas, CA

    Join us for our first Family Beach Day of the season on Sunday, April 30th! We will host one beach Day a month at a variety of beaches around the county, starting this month at Moonlight Beach in Encinitas. Join for a day of family fun in a supportive, nonjudgmental atmosphere.

    Click here for all the info and to RSVP!!!

  • Summer Camp at Social Communication Specialists!
  • The SCS approach to social learning has options for all ages from preschoolers to teens! Below are descriptions of our programs, dates and registration details. Have questions? Email us at janet@socialcommunicationspecialists.com or call 858-558-9552. Click here for all the info!!!

  • Special Needs Law Center: Insights 2017 Directory
  • The San Diego Special Needs Law Center has put together a great magazine for the special needs community here in San Diego. Great articles and a resource guide. Available in a print edition and also on their website. Click here to view the magazine!!!

  • AEFCT Expeditions!
  • Our mission is to provide young adults on the autism spectrum the opportunity to travel and experience recreational activities with peers and friends. Our goal is to build memorable lifetime experiences while enriching the lives of the participants.

    AEFCT
    3954 Murphy Canyon Rd., Suite D105
    San Diego, CA 92123
    858-569-0056

  • Upcoming Events by The ABA Group
  • 760-349-4200
    ABA Behavior Therapies & Testing (The ABA Group)
    www.abagroup.org

  • No Wait for RDI!!!
  • Relationship Development Intervention (RDI®)
    Our primary approach for treatment of autism spectrum is a developmental program called Relationship Development Intervention (RDI®). RDI® is a unique treatment approach that empowers parents to guide their child to succeed in our dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their guides.

    Why RDI®?
    Foundations of the adult mind are developed in the first years of life through the "Guiding Relationship". From the middle of the first year of life, hour-by-hour, day-by-day, in every culture on earth, children interact with parents and other important adults in deceptively simple encounters, with a very serious underlying agenda; constructing the architecture of the child's mind and brain. Click here for all the info!!!

    The Family Guidance and Therapy Center of Southern California
    3575 Kenyon Street, Suite 102 San Diego, CA 92110
    10731 Treena Street, Suite 105 San Diego, CA 92131
    619-600-0683
    http://familyguidanceandtherapy.com

  • Sesame Street in Communities
  • Click here for all the info!!!!

  • Face Your Fears!
  • The "Face Your Fears" program provides your child the skills to more effectively manage their behavior in anxious situations and enhances your child's ability to cope with anxiety that negatively affect their daily lives. Face Your Fears is provided to kids in a small safe group and at the same time, parents participate in a separate group, so they can support what their child learns. Face Your Fears is a cognitive-behavioral evidence-based intervention with over a decade of funded research support.

    Center for Thoughtful Lasting Change, Inc.
    9606 Tierra Grande St, Suite 203
    San Diego, CA 92126
    619-807-7410
    kristinazctlc@gmail.com
    http://www.drsherrycasper.com

  • Our new Social Competency Model
  • social thinking

    Click here to read their latest newsletter for all the great info!!!

  • Save the Date!: Love and Autism!!!
  • http://www.loveandautism.com

  • Life Planning Group in National City
  • Reservations are necessary as space is limited Call Wendy at: (619) 938-2876 to RSVP or email: wendy@guidinghands.org
    www.guidinghands.org

  • Life Planning Group in El Cajon
  • Reservations are necessary as space is limited Call Wendy at: (619) 938-2876 to RSVP or email: wendy@guidinghands.org
    www.guidinghands.org

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!


  • In February we began our, Autism Accessibility Mornings at the Fleet (http://rhfleet.org/events/autism-accessibility-mornings), program. This morning is dedicated to the ASD community to come and enjoy the Fleet in a quieter setting and catch an IMAX film! Our film showings are presented with raised house lights and a lowered soundtrack volume, to provide a more comforting environment. Our goal is to provide an enriching experience for the ASD community

  • SIBSHOP 2016-2017 Schedule


  • October 2016 - August 2017

    WANTED: Siblings who have a brother/sister with special needs
    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    April 30: Mission Trails Regional Park

    May 21: Mission Trails Regional Park Visitor Center

    July 9: Day at Mission Bay, family picnic **

    August 13: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies & lunch for the kids

    REGISTRATION: Pre-registration requested (if possible) the Thursday before the event.
    CONTACT: Email patmoulton@cox.net for a registration form and / or additional information.

    Sibshop Leaders: Jody BonDurant-Strong, Administrator Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    **Information for family / community locations will be emailed.

  • Children with autism and their mothers need for student research!


  • My name is Ariane Myers-Turnbull and I am a doctoral student at Alliant International University. I am currently recruiting participants for a project that is examining why children with autism are injured more often than children without autism. To participate you must be a mother of a child who is between the ages of 3 and 7 years old and who has been diagnosed with an autism spectrum disorder (i.e. autism, Asperger's, pervasive developmental disorder).

    If you agree to participate in this study, you will be asked to come into a lab at Alliant International University to complete consent forms and questionnaires about you and your child. You will then be asked to observe your child in a room with simulated common household hazards from a live video. Your child will also be asked to complete simple tasks such as working with blocks. Overall, your participation in this study should take about 90 minutes.

    After you and your child complete these tasks you will receive $20, be entered into a drawing for $400, and your child will receive a prize in appreciation for your participation. You will also receive a video of your child in the room and safety proofing materials. For further information please contact Ariane Myers-Turnbull at amyers-turnbull@alliant.edu or (858) 414-1076. Thank you for your time.

  • Participate in Research: Survey About Access to Services
  • Participate in a Study!!!


  • We are currently recruiting for the Parenting on the Spectrum Study, a brief study with mothers of children between the ages of 3 and 7 who have been diagnosed with Autism Spectrum Disorder. The study is completed online, with the option (for participants living in the Greater Los Angeles Area) of conducting additional sessions in the home. We will ask parents about their experiences of parenthood.

    https://pomona.az1.qualtrics.com/SE/?SID=SV_3mxyR3CkuXFV6ip

  • Cognitive Behavioral Intervention for Driving Anxiety - FREE 10 week program for teens and adults with ASD in San Diego!


  • This is a FREE group-format intervention for teens and adults with autism spectrum disorders who are interested in driving, but are dealing with driving fear/anxiety.

    Please share this flyer with anyone in the community that may qualify. We are only asking that our participants are minimum 15-16 years of age (i.e. of potential driving age) and have a formal diagnosis of ASD. There is no upper limit for age. The groups will be held in the Kearny Mesa area (zip code 92123).

    858-966-7703 x3682
    rtrefas@rchsd.org

  • Do you know someone with Autism??


  • Call (619)594-0176 or email bdil@mail.sdsu.edu

  • Participate in Research!!!


  • Contact 619-594-2500 or email toddlerMRIstudy@mail.sdsu.edu

  • Research Study Recruitment


  • My name is Sarah Hacker and I'm the staff research associate for UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. I was wondering if it were possible to put an ad on your website or in your newsletter for the purposes of reaching out to members of the autism community who might be interested in participating. I've attached a flyer for the study which outlines what happens, inclusion criteria, and compensation. Please feel free to contact me with any questions or comments.

    Thank you,
    Sarah D. Hacker
    Staff Research Associate - RADLab
    shacker@ucsd.edu
    radlab@ucsd.edu 858-246-1932

  • Autism Effects on Attentional Blink
  • For more information, please contact Sofia Schugar at the Cognitive Neuroscience Lab: 858-353-4929 (feel free to leave voicemail) or via email at sofiaschugar@gmail.com

  • UCSD TEAM-UP Weight Loss Program for Children with ASD


  • TEAM UP (Transforming Eating, Activity, and Motivation Utilizing Parents) is a 16-week, parent-only group program focused on weight-loss, increasing physical activity, and promoting fruits and vegetables, designed specifically for parents of children with ASD. This research study is free of charge, and families will be compensated for participating. Interested families should call 855-UCSD-4W8 to get started.

  • Seeking Research Participants for Autistic Sibling Study
  • business_finance_research.jpg

    Seeking individuals over the age of 18 who grew up with an autistic sibling to participate in a study exploring the experiences of growing up in a family with an autistic brother or sister.

    Participation will involve an in-depth interview, lasting between 1 to 1.5 hours about your autistic sibling experiences and a brief follow-up meeting about six weeks later.

    The purpose of the study is to provide an in-depth retrospective exploration of the experiences of adults who grew up with an autistic sibling.

    Eligibility requirements for participation in the study include:
    • Must have lived with autistic sibling for at least 8 years
    • Sibling must have been diagnosed with autism during childhood
    • Interested participant must be at least 18 years of age
    Participants will be provided a $100 Amazon gift card following the interview.

    Interested participants can email Barbara Tierney at: autisticsiblingstudy@gmail.com

  • 2017 Edition of Flourishing Families


  • The Special Needs Resource Foundation of San Diego is excited to present the 2017 edition of Flourishing Families, San Diego's resource guide for parents of children with special needs.

    This year's issue contains more than 950 resources including service providers, research institutes, specialized doctors, resource providers, camps, therapists, advocates, associations and so much more.

    Visit https://issuu.com/sandiegofamilymagazine/docs/flourishing_families_2017-digital_i to see the digital issue now!

  • Developmental Factors Survey
  • business_finance_research.jpg


    Do you live in the USA and have a biological child between 3 and 12 years old? If so, we would be grateful if you would take a short research survey.

    The goal of this research is to examine whether certain factors are associated with Autism Spectrum Disorders. If none of your children have an Autism Spectrum Disorder, we still would be very grateful if you participate as it is important to have results for all groups.

    Participants may also choose to be entered into a raffle for a $50 Amazon gift card.

    http://www.devsurvey.org

    After completing the survey, if you want to help us more, and if you have previously shared the developmental status of your children with your friends, please share this link with your friends and consider asking a friend or friends whose children do not appear to have Autism Spectrum Disorders to take this survey as well as we anticipate needing more participants from this group.

    If you have questions or comments, please feel free to contact Seth Bittker, the principal consultant, at devsurvey@yahoo.com or 212-203-6550. Thank you.

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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