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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. July 20, 2017

In This Issue

Scale tests mental flexibility in children with autism

Disruptive Behavior: Why It's Often Misdiagnosed

A special program for kids with autism teaches potty training skills

The social ties between autism and schizophrenia

Parents and Others Looking for Help!!!

Autism Society Family Gym Night in Carlsbad

Cortica: Advanced Neurological Therapies for Autism

Summer Therapeutic Art Camp

Looking for a Holistic Approach to Therapy?

How to Organize Your Child's IEP Binder

No Wait for RDI!!!

Conference: Love and Autism - Registration Now Open!!!

San Diego Special Needs Law Center & Info on the ABLE Act

Miracle League of San Diego!!!

Your July Updates from MySpecialNeedsConnection!

Take a Survey: Would you also be interested in bringing an Expressive Arts Adult Day Program to San Diego to benefit our adult children?

"..you're the greatest singer in the world."

Parents' Night out Saturday, July 29th 6pm-9pm

ATPF 3rd Annual Bridge to the Beach Family Beach Day


 


VALERIESLIST SPONSORS





Want to learn more about Relationship Development Intervention (RDI) for your child on the spectrum?

Relationship Development Intervention (RDI®) is a unique treatment approach that empowers parents to guide their child to succeed in a truly dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities (problems and situations that are just beyond their level of competence), develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their Guides. The program has no defined length. It is designed to accommodate parents and children with a wide range of obstacles and handicapping conditions. Therefore participation may range anywhere from one to several years. Have specific questions? See the RDI FAQs for answers!




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  • Scale tests mental flexibility in children with autism


  • A new assessment offers a broad measure of 'flexible thinking' in children and teenagers with autism1. Flexible thinking encompasses the ability to switch tasks or strategies, and see situations in a new way.

    Learning more advanced skills may require unlearning old approaches. For example, children may first learn to tie their shoelaces using the 'bunny ears' method (making a loop out of each lace) and later master the faster technique of wrapping one lace around a loop made with the other.

    Inflexible or rigid thinking - which is common among people with autism- can make this shift harder. Read on...

  • Disruptive Behavior: Why It's Often Misdiagnosed
  • Tantrums and defiance may mask issues that aren't apparent to teachers and parents

    Most children have occasional temper tantrums or emotional outbursts, but when kids repeatedly lash out, are defiant, or can't control their tempers, it can impair their functioning in school and cause serious family turmoil.

    The first challenge in helping a child manage his behavior better is to understand why he's doing what he's doing. In the same way that a headache or a fever can be caused by many things, frequent outbursts - which clinicians call "emotional dysregulation"- can reflect a number of different underlying issues.

    It's easy to jump to the conclusion that a child who's pushing or hitting or throwing tantrums is angry, defiant or hostile. But in many cases disruptive, even explosive behavior stems from anxiety or frustration that may not be apparent to parents or teachers. Read on...

  • A special program for kids with autism teaches potty training skills
  • As a mom of four kids, North Carolina mom Adrian Wood has faced her share of parenting challenges, but when it came to potty training her youngest son, Amos, 3, Wood had no idea where to start.

    Unlike her older children, Amos has autism, something Wood says left her desperate to see her son hit the milestone of being potty trained, but clueless about where to begin.

    "I knew enough from my older three that I knew I had no idea what to do," Wood told TODAY Parents. "They were easy enough and did it when they were three. They were communicative and it only took a few days. I had no idea where to begin with Amos. None." Read on...

  • The social ties between autism and schizophrenia


  • Autism and schizophrenia share a long and tangled history. Comparing the social features of the two conditions could lead to better treatments and a deeper understanding of each.

    When the shy, dark-haired boy met with clinicians for a full psychiatric evaluation two years ago, almost everything about him pointed to autism. W. had not spoken his first words until age 2. He was at least 4 before he could form sentences. As he got older, he was unable to make friends. He struggled to accept changes to his routine and maintain eye contact. And despite having an average intelligence quotient, he was unusually attached to objects; at age 11, he still lugged a bag of stuffed animals with him everywhere he went.

    But something else was clearly at work, too. "He had these things that he would call day dreams," recalls Jennifer Foss-Feig, assistant professor of psychiatry at the Icahn School of Medicine at Mount Sinai in New York. When she evaluated W., she noticed that he would often gaze into an empty corner of the room - particularly when he seemed to suspect that she wasn't paying attention to him. (For privacy reasons, Foss-Feig declined to reveal anything but the child's first initial.) Occasionally, he would speak to that space, as though someone else were there. Read on...

  • Parents and Others Looking for Help!!!


  • Hi, I have a 10 year old son on the spectrum who has always been in a regular school. We moved almost a year ago from Tijuana to Chula Vista. He has a good therapist in Tijuana but he needs a social skills group in San Diego or Chula Vista. If you have any information, please email me at c_valladolid@hotmail.com.



    We are parents to a 13 year old boy who has aspergers and ADHD. We are looking for a program and/or tutor that can help him with his writing. He is really having a hard time getting his thoughts and ideas on paper. Thank you. Pcwizardsd@yahoo.com.



    Do you know of any private home agencies willing to take a very high functioning 23 year old female with ASD and supply them with room and board for a year. My niece who is in the LA area will be moving to San Diego in September to attend a special school during the day. I am aware of the California Mentor program which is funded through the Regional Center of which my niece is a member of. Can you give me the names of any FHA agencies? cynthiaquince@sbcglobal.net



    I have a 10 year old who was diagnosed by the San Diego Regional Center with autism in April. He doesn't have a US health insurance so he can't get any services. When the social worker gave us the diagnosis she gave us a document where she mentioned that the SDRC could provide him with ABA through one of their agencys and now our newly designated social worker and his supervisor told me that the SDRC doesn't provide that service anymore. My question is: Should my son get any services from the SDRC? c_valladolid@hotmail.com



    Hello! I am looking to connect with someone who has their child in an out of state residential educational setting. Please email me at mvetlesen@gmail.com



    I am a mother to an 11 yr old boy diagnose with Moderate Autism, ADHD and severe speech delay. I was able to move him from Chula Vista School district where he was not receiving the best of services in anyway, to a Charter School close to the exit at Market st coming out of FWY 15. I was wondering if anyone could give me information of a young, responsable adult who could baby sit and transport my child from his new school to home at eastlake. And some days stay with him for a few hrs until I got back from work around 5pm. I will pay for miles and obviously for the care at home. Preferably a person with knowledge of ASD behaviors and techniques to work with them. Claudia peralta_claudia@hotmail.com



    We are looking to find friends for our 12-year old son Robbie, who is high functioning ASD.
    He is quite isolated and would love to develop relationships with other kids. Among other things, Robbie loves reading; computer games; shooting hoops and soccer.
    We live in Tierra Santa with 2 dogs.
    Kate heathkate44@yahoo.com



    Hi! My name is Rosalyn. I am a highly experienced and exceptional house cleaner with a genuine personal touch. I am looking to find a monthly or bi-monthly house cleaning job for a family in need of these services in the North County Area. If you are interested please email me at mullinsroz@gmail.com or call me anytime 209 241 9489.



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Autism Society Family Gym Night in Carlsbad
  • Saturday, July 22nd
    4 PM - 6 PM
    Magdalena Ecke YMCA Gymnastics Center
    6100-B Avenida Encinas, Carlsbad, CA 92011


    Join other families impacted by Autism at a Family Fun Gymnastics Night in North County. The Magdalena Ecke YMCA will provide the gymnasium equipment. Together, we will provide the fun! Bring the entire family for an enjoyable, relaxing night of family recreation.

    *Please remember that there is NO childcare provided at this event. For safety reasons, attendees are expected to be with their children at all times. The YMCA staff will be enforcing this rule.

    Pizza will be provided for participants - we encourage participants to bring a side dish or dessert to share.

    $5 minimum donation per family. Thank you! Click here for all the info!!!

  • Cortica: Advanced Neurological Therapies for Autism
  • Founded in neuroscience.
    Driven by compassion.


    Cortica's aim is to bring to families everywhere the most effective therapies for the treatment of autism. Harnessing insights and technologies from emerging neuroscience, Cortica brings together clinical specialists from a range of disciplines to design and deliver comprehensive care to children with autism and their families.

    Cortica's treatment model coordinates a multi-disciplinary team of clinicians with the common goals of fostering the child's holistic development and empowering family members. An "inside out" component focuses on improving the health of the body through medical diagnosis and treatment, nutrition, supplements, neurofeedback, and other strategies. Simultaneously, an "outside in" component optimizes the environment, learning opportunities, and overall experiences of the child through speech and language therapy, neurological music therapy, occupational therapy, a progressive model of Applied Behavioral Analysis, and parent education.

    More than simply bringing these services under one roof, specialists at Cortica collaborate to achieve a common understanding of each patient, develop individually tailored treatment plans, and coordinate care that evolves to match the child's progress. At our flagship center in San Diego, we have partnered with hundreds of families to achieve lasting, transformative results for their children.

    While this site is under construction, learn more by visiting our legacy website at gohmd.com

    Seek our care
    Those seeking care for their families are welcome to call our office at 858-304-6440.

    Join our team
    Those interested in joining our team should contact Walt Cooper, Cortica's talent scout, at wcooper@gohmd.com.

    Practice Location
    SORRENTO VALLEY
    7090 Miratech Drive
    San Diego, CA 92121

  • Summer Therapeutic Art Camp
  • Summer Camp Theme: Passport to Europe

    Color, Construct, Create Studios is once again offering a Summer Therapeutic Art Camp -- perfect for those children who love art but would benefit from fine and gross motor skill development. This class will incorporate a "whole body" approach to handwriting, drawing, and art projects galore. Following each day's theme, each participant will start with gross motor warm ups (to promote postural control and core strengthening), arm/hand activities (to prepare for writing and drawing), and thematic activities that will include handwriting, fine art, crafts, and more.

    As in our weekly classes, Therapeutic Art Camp is a fun, therapeutic, and skill-enhancing group art class designed for school-age children with and without special needs. It is specifically designed for children enrolling in Pre-K through 5th grade. There will be a 6:1 student to teacher ratio.

    If you have questions whether your child would be a good fit for this class, please don't hesitate to contact Kristin Cockrell or Kelly Marshall at info@colorconstructcreate.com.

    Space is limited and Pre-Registration is REQUIRED!

  • Looking for a Holistic Approach to Therapy?
  • - Therapeutic Approach to Growth (TAG) believes that every individual is unique and has the potential for significant growth.

    - TAG offers the development and implementation of individualized comprehensive programs.

    - Our programs are influenced by a developmental model called Relationship Development Intervention (RDI®), which foster competency and trust as well as social, emotional, cognitive, and academic growth, and is based on a guided participation model.

    - Therapies offered: Speech Therapy, Occupational Therapy, RDI®, Art Therapy, and Academic Support.

    Therapeutic Approach to Growth
    9466 Black Mountain Road, Suite 100
    San Diego, CA 92126
    and
    5411 Avenida Encinas, Suite 110
    Carlsbad, CA 92008

    www.tagforgrowth.com
    admin@tagforgrowth.com
    858.689.2027

  • How to Organize Your Child's IEP Binder
  • Making an IEP binder is a great way to keep information organized and at the ready when you need it. An IEP binder can help you prepare for IEP meetings and stay up to date on your child's progress. This powerful tool can also help you communicate and collaborate with teachers and your child's IEP team. Here's what you need to get started:

    --A three-ring binder
    --Six tabbed section dividers
    --A three-hole punch

    Organizing an IEP binder with your child's evaluation reports, IEP, report cards and other paperwork may sound like a lot of work. But this guide walks you through what to gather and where to put it. Click here for all the info!!!

  • No Wait for RDI!!!
  • Want to learn more about Relationship Development Intervention (RDI) for your child on the spectrum?

    Relationship Development Intervention (RDI®) is a unique treatment approach that empowers parents to guide their child to succeed in a truly dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities (problems and situations that are just beyond their level of competence), develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their Guides. The program has no defined length. It is designed to accommodate parents and children with a wide range of obstacles and handicapping conditions. Therefore participation may range anywhere from one to several years. Have specific questions? See the RDI FAQs for answers!

    The Family Guidance and Therapy Center of Southern California
    3575 Kenyon St, Ste 102
    San Diego, California, CA 92110
    (619) 600-0683

  • Conference: Love and Autism - Registration Now Open!!!
  • Love & Autism: A Conference with Heart held annually in San Diego, focuses on relationships - bridges lived experience, clinical practice & research.
    Click here for all the info and to register!!!

  • San Diego Special Needs Law Center & Info on the ABLE Act
  • If you have a family member with a disability, you want to assure they have the best possible care and quality of life, both now and later when you are no longer able to be the advocate you are today. If you are a person with a disability, you want to be able to qualify for the benefits and programs you need to achieve as much independence as possible. At San Diego Special Needs Law Center, it is our mission to make sure you have all the support and tools in place to achieve these goals.

    We have over 30 years experience in Special Needs Law and our community, working in the following practice areas:

    • Special Needs Trusts and Estate Planning for Families Developmental Disablilities
    • Special Needs Trusts and Estate Planning for Families Developmental Disablilities
    • Public Benefits Planning
    • Care Advocacy
    • Preservation of Benefits Eligibility in Litigation Settlement or Inheritance Scenarios
    • Life Care Planning
    We also enjoy our relationships with various advocacy groups and the disability community. It is through the interaction with our clients and these groups that we continue to learn and grow, and better serve our client's needs.

    Our Senior attorney, Phil Lindsley, is both a Certified Special Needs Law Attorney and a Certified Legal Specialist in Estate Planning, Trusts and Probate (State Bar of California, Board of Legal Specialization). He has been serving families and individuals with disabilities for over 30 years.

    To learn more about us, click HERE

    Click here to learn all about the ABLE Act!!!

  • Miracle League of San Diego!!!
  • The Miracle League of San Diego provides children with special needs the opportunity to play baseball in an organized league. Each player is paired throughout the season with a buddy who provides encouragement and assistance. We have two locations, one in Del Mar and the other in Coronado.

    Registration is now open for players, buddies and coaches for each of our two locations: Del Mar (Engel Family Field in Del Mar) and Coronado (Green Field in Coronado). Fall games are played on Saturdays starting September 9, 2017 through November 11, 2017. Opening day for both locations will be held on September 9, 2017.

    Register online at www.miracleleagueofsandiego.org

  • Your July Updates from MySpecialNeedsConnection!
  • In this month's newsletter learn about upcoming events in your area, and new featured resources!

  • Take a Survey: Would you also be interested in bringing an Expressive Arts Adult Day Program to San Diego to benefit our adult children?
  • A petition is being organized to express interest in opening a satellite of Able ARTS Work - a fabulous program in Long Beach -to their board of directors. Please complete this survey below and forward it to other parents who might also be interested:

    Click here to answer 5 quick questions:
    https://www.surveymonkey.com/r/RQRKN3Z

  • "..you're the greatest singer in the world."
  • Tune in to Reid's latest Talk Time interview with stage star Paul Eddy who is playing Buddy Holly in The Buddy Holly Story this summer on the Horton Grand stage downtown and New Village Arts in Carlsbad. Reid's creative arts program connects him with the San Diego theater community in some unique ways. His mentors and support staff are singers, actors, and creatives talented in their own right. Paul Eddy and Reid composed a riff of Buddy Holly's Everyday to perform at the New Village Arts Theater fundraising gala. Their instant chemistry (and Paul's innate talent as a teacher) made for a fast friendship.

    To hear all the Talk Time with Reid Moriarty podcasts: https://www.youtube.com/channel/UCRDSxH44GLRtXSBP71u3gAg For more information: http://bit.ly/2tNfKwA

  • Parents' Night out Saturday, July 29th 6pm-9pm
  • Enjoy a date night or some alone time on a Saturday evening. Must reserve in advance. Call us to register at 858-798-5353. http://www.werockthespectrumsandiegocmr.com

  • ATPF 3rd Annual Bridge to the Beach Family Beach Day
  • August 5th, 2017 8:00 AM - 11:00 AM
    Location: SOUTH MISSION BEACH LIFEGUARD STATION, North Jetty Road, San Diego, California


    JOIN US for our 3rd Annual ATPF Bridge to the Beach Summer Program! Kids of all ages and all abilities are welcome to come out and join us for a fun morning on Mission Bay. Activities will include kayaking, paddle boarding and sand castle making. This is event is FREE to attend but you must RSVP with Lisa@autismtreeproject.org or call 619-222-4465. The entire family is welcome to come out and join us!

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!


  • In February we began our, Autism Accessibility Mornings at the Fleet (http://rhfleet.org/events/autism-accessibility-mornings), program. This morning is dedicated to the ASD community to come and enjoy the Fleet in a quieter setting and catch an IMAX film! Our film showings are presented with raised house lights and a lowered soundtrack volume, to provide a more comforting environment. Our goal is to provide an enriching experience for the ASD community

  • SIBSHOP 2016-2017 Schedule


  • October 2016 - August 2017

    WANTED: Siblings who have a brother/sister with special needs
    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    August 13: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies & lunch for the kids

    REGISTRATION: Pre-registration requested (if possible) the Thursday before the event.
    CONTACT: Email patmoulton@cox.net for a registration form and / or additional information.

    Sibshop Leaders: Jody BonDurant-Strong, Administrator Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    **Information for family / community locations will be emailed.

  • San Diego Regional Center's Recreation Resource Page
  • sdrc


    Recreation is important in promoting inclusion and quality of life. Studies have shown that it increases self-esteem and confidence, leads to improved communication, social interaction, and friendship skills.

    The San Diego Regional Center supports clients having time to recreate and believes it is essential to a healthy and well-balanced life. Below are links to some popular recreation activities in the San Diego and Imperial Counties. However, SDRC does not endorse, nor provide funding for any recreation activity. SDRC is not liable for anything occurring while participating in any of the recreational activities. Click here for all the info!!!

  • Jeremy's Vision


  • I have a paintbrush, a keyboard and autism. Jeremy's Vision is my view of the world expressed through my painting, writing, and advocacy.

    Jeremy's Vision: Local San Diego resident, Jeremy Sicile-Kira, is an intuitive artist and paints colorful abstract portraits of people. Jeremy has synesthesia: he sees people's emotions in color. In August 2012, he began to paint in real life the portraits he was painting in his dreams. Now, Jeremy meets people in person or online, 'reads' their colors and then paints their portrait. Jeremy has his own art studio in downtown San Diego at Space4Art and recently had his first curated solo art show. For more information, visit http://www.jeremysvision.com.

    Jeremy also is the coauthor of A Full Life with Autism ( https://www.amazon.com/Full-Life-Autism-Relationships-Independence/dp/0230112463) about preparing for the transition to adult life.

  • Reset Fitness with Pam Bundy


  • I started off my career as a legal secretary then moved on to be a legal assistant, with the ultimate goal of becoming an attorney. After two of my boys were diagnosed on the autism spectrum 23 years ago, I came to the realization that I needed to be in a less negative environment. What I really wanted to do was to help people which puts me where I am today.

    I am a certified Stott Pilates Full Level One Instructor and ACE Certified Personal Trainer with 20 years of experience working with very large facets of the population. I also hold certifications as a Nutrition Coach, Parkinson's Wellness Recovery trainer, and Bosu Master Trainer. I am currently working on my ACE Behavior Specialist and Group Fitness Instructor certifications. My specialties include back rehabilitation, weight loss and toning, menopause management, Parkinson's clients, and bodybuilding. I have had several life experiences that has helped shape me to become a fitness coach who understands life's challenges, and I excel in helping people overcome obstacles to reach their health and fitness goals. Click here to visit my FB page and please contact me for more info!!!

  • Lisa Hawley-Jennings, Massage Therapist/Holistic Health Practitioner


  • Lisa Hawley-Jennings, Massage Therapist/Holistic Health Practitioner of 28 years, offers compassionate, experienced massage in her home office in Encinitas or in your home (within reasonable distance). As a mother of a 28 year old autistic son, Lisa carries a special place in her heart for working with caregivers and parents of special needs children. Please call or text Lisa at 760-212-2109.

  • Discounted Photo Services For Special Needs Families


  • As the parent of a child with ASD, I know how challenging a photo session can be. In an effort to pay it forward for the hardest working people I know, I am offering discounted rates for special needs families all year long. You will receive a 33% discount on all photo services, and a promise to be as creative and patient as possible, in order to get you the beautiful family photos or child portraits you deserve! Photo samples and standard rates are on my new Facebook page www.facebook.com/StefGPhotography. Openings fill up fast, so if you are interested in a photo session or event any time in the next 6 months, please email now to be added to the calendar Stefwinter19@gmail.com.

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at sbrown7@alliant.edu or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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