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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. August 31, 2017

In This Issue

10 Ways My House Looks Different From Yours

Whole genomes may power search for autism risk factors

Harvey Brings Unique Challenges For Those With Disabilities

Interventions for anxiety may help people with autism spectrum disorder

Parents and Others Looking for Help!!!

Helping Young People with Autism Reach Their Potential

SPECIAL PRICING FOR YOU: NFAR's Charity Golf Oct 9th!

"Lights! Camera! Autism!"

Birdies and Barrels benefitting Include Autism

PACT Fall 2017 and 2018 workshop flyer

Xcite Steps is offering Diagnostic Assessments!

Golden Steps: Exceptional Care for Your Children

Fall Family Camp

Parenting the Love and Logic Way

Monster Story Time II

NFAR: Technical Training Programs

San Elijo AYSO VIP Soccer Fall Season! Registration now Open!


 







  • 10 Ways My House Looks Different From Yours
  • From the outside, my house may look similar to many of your homes. However, if you take a closer look, the inside of my house probably looks very different than yours - and I don't just mean the décor! My son, Jackson, age 9, is severely affected by Autism Spectrum Disorders (ASD) and other medical conditions. Because of this, we have had to make many adjustments in how we live our day to day life.

    Come in and take a sneak peek inside the Hurley Home over on ASD Boulevard!

    1. WE OFTEN HAVE OTHER PEOPLE IN OUR HOME:

    Jackson has been working with a wonderful team of ABA behavioral therapists for several years, whom we now consider part of our extended family. We have therapists in our house 5-7 days a week. At first, I used to clean the house up, put on makeup and make sure everything was just "so" whenever they would come over. Now I will open the door to them in my pajamas with laundry piles all over the floor. Having a team of therapists in your house daily may seem odd to some people, but we couldn't be happier each day to see their smiling faces, especially on his more challenging days. Read on...

  • Whole genomes may power search for autism risk factors
  • Scientists this week announced the release of nearly 7,000 whole-genome sequences from a collection of families that each have one child with autism and unaffected family members.

    The release brings the total to nearly 9,000 sequences from families in the Simons Simplex Collection (SSC), including more than 2,300 from children with autism. Some of the sequences are still in transit from the sequencing facility. (The collection and the majority of the sequencing efforts are funded by the Simons Foundation, Spectrum's parent organization.)

    Another project, called MSSNG, has also amassed 5,205 whole-genome sequences, including 2,626 from children with autism, with another large release scheduled for October. The set is expected to eventually include 10,000 sequences from families with autism, only some of which have a single child with autism. Read on...

  • Harvey Brings Unique Challenges For Those With Disabilities

  • HOUSTON - The upending of normalcy during the worst tropical weather system ever to hit Houston is particularly hard on those with special needs, and disability advocates and families are working to help them cope.

    The Autism Society of Texas has providers from Austin, as well as partners in Clear Lake and north-central Houston, heading to shelters to offer resources and support, executive director Suzanne Potts said.

    The organization is working with the Federal Emergency Management Agency and the Red Cross to assess needs. What's en route: sensory-support bags containing stuffed animals, fidget toys, weighted blankets, earplugs and noise-canceling headphones, notepads and crayons. Read on...

  • Interventions for anxiety may help people with autism spectrum disorder
  • A new study in Biological Psychiatry: Cognitive Neuroscience and Neuroimaging reports that anxiety occurring in autism spectrum disorder (ASD) shares similar brain mechanisms as anxiety alone. Led by Drs. John Herrington and Robert Schultz of the Center for Autism Research, a joint research center of the Children's Hospital of Philadelphia and University of Pennsylvania, the study could be good news for treating anxiety symptoms in ASD. The findings suggest that treatments that work for anxiety disorders may also help people with anxiety and ASD.

    Although anxiety frequently co-occurs with ASD, people with ASD often experience unique symptoms that aren't seen in other anxiety disorders. "This poses a fundamental question: are anxiety symptoms in ASD related to the same cognitive and neural mechanisms typically observed outside the context of ASD?" said Dr. Herrington. Read on...

  • Parents and Others Looking for Help!!!


  • I am looking for a 2-3 bedroom house (if possible), apartment or mobile home in North County for my sister, who is severely autistic and non-verbal, and will be in a supported living program (24-hour caretakers plus hopefully another similar roommate).

    The ideal house would be:
    --Anywhere in North County
    --Somewhat isolated so neighbors are not disturbed by her occasional screaming
    --Rustic or "fixer-upper" so we could fix up to our specifications and there would be less concern over possible damage
    --One of the bedrooms large enough for 2 beds
    --No carpet
    --Not depressing - possessing some sort of charm
    --Affordable (a relative term)

    Thank you everyone! Just putting it out there in case anyone knows of such a house!

    Daria 619-294-6577 (home), 619-788-2042 (cell) or [email protected]



    My son is aging out of his school program (TERI - The Learning Academy) in May 2018, he will be 22, and I'd like to begin the search for an adult day program for him. Is there a list or directory that contains the programs available in north county ?
    Thanks,
    Maureen [email protected]



    If you have a question or request for this newsletter group, please send your email request to [email protected]. People who can help you will email you directly with their responses.

  • Helping Young People with Autism Reach Their Potential
  • Gateway Learning Group is California's premier provider of ABA therapy.

    At Gateway, we help children and teens develop and strengthen their learning, language, behavior and social skills with proven-effective therapy treatment to support not only them, but your whole family as well.

    Gateway works with most health insurance plans and also provides services through school districts.

    Direct Therapy Programs typically involve:

    • Initial assessment of a child's needs
    • Implementation of intensive therapy based on the principles of ABA
    • Transitional support of skills to new environments
    • Parent training
    • Monthly team meetings
    • Daily data collection and analysis
    • Quarterly progress reports
    For those students who benefit from extra assistance in their classroom setting, we also provide behaviorally-trained shadow aides and consult with teachers. Currently, our Direct Therapy Programs and services are available to families in the San Francisco and San Diego area.

    Gateway Learning Group
    2525 Camino Del Rio South Suite 335
    San Diego, CA 92108
    [email protected]
    877-264-6747
    http://www.gatewaylg.com

  • SPECIAL PRICING FOR YOU: NFAR's Charity Golf Oct 9th!
  • NFAR is hosting a Charity Golf Tournament for Autism on Monday, Oct 9, 2017 at the The Crossings in Carlsbad.

    Compliments of our local breweries, we have some great brews, and really fun new contests and prizes planned. The Crossings, has scenic views of the Pacific Ocean, an award winning golf course, and great food - so please join us! Your participation directly helps individuals with autism in San Diego!

    Golfers sign up now! Special foursome pricing is $525 through September 9th. Registration includes lunch and dinner and lots of fun contests.

    REGISTER Today

  • "Lights! Camera! Autism!"
  • Saturday, September 23, 2017
    5:00 PM
    Irwin M Jacobs Qualcomm Hall
    5775 Morehouse Drive
    San Diego, CA 92121
    Cost: $15 per person


    PLEASE JOIN US AND SHOW YOUR SUPPORT FOR OUR MANY TALENTED YOUNG ADULTS IN SAN DIEGO!

    The Autism Society San Diego is proud to present the first ever, "Lights! Camera! Autism!" art and film event. This is a celebration of the talents of many autistic and developmentally delayed young adults in our San Diego community who are learning valuable skills in the art, music and film industry with an eye on future employment.

    Click here for all the info about this event and to purchase tickets!!!

  • Birdies and Barrels benefitting Include Autism
  • The Birdies and Barrels Golf Tournament & Beer Garden event is only 2 months away!

    Sat, October 21, 2017
    10:00 AM - 9:00 PM PDT
    Rancho Bernardo Inn
    17550 Bernardo Oaks Drive
    San Diego, CA 92128


    The Birdies and Barrels Golf Tournament and Beer Garden will be taking place on Saturday, October 21st, 2017, at the Rancho Bernardo Inn Golf Course and is looking to be bigger and better than ever! Some highlights of this awesome fundraising event are:

    • Scramble-format golf tournament
    • Beer Garden with tons of different craft brews!
    • Live music
    • Game lawn
    • Luau dinner
    • Helicopter ball drop raffle
    • & more!
    All proceeds from the Birdies and Barrels Golf Tournament and Beer Garden go toward supporting Include Autism's programs.

    Click here for all the info about this event and to purchase your tickets!!!

  • PACT Fall 2017 and 2018 workshop flyer
  • PACT offers two great workshops designed to enhance communication and improve social skills for teens and adults with Asperger's/Autism.

    Click here for all the info and to register!!!

    If you have any questions about our programs, registration, scholarships or volunteering, or if you would like to visit a program, please contact Kathryn Campion, PACT's Executive Director, at [email protected] or 760-815-8512.

  • Xcite Steps is offering Diagnostic Assessments!
  • Xcite Steps offers comprehensive diagnostic developmental evaluations for children and adults. Our diagnostic developmental assessments are conducted by a team of experienced clinicians, including Licensed Clinical Psychologists and Licensed Marriage and Family Therapists, who specialize in working with children and adults who are affected by developmental, intellectual, and emotional disabilities. Our expansive psychological evaluations are carefully individualized to the needs of our clients.

    Xcite Steps
    3978 Sorrento Valley Blvd, Ste 100
    San Diego, California, CA 92121
    (858) 428-0222
    www.excitesteps.com

  • Golden Steps: Exceptional Care for Your Children
  • golden steps

    At Golden Steps Pediatric Therapy our mission is to bring out your child's best!

    We specialize in helping children challenged by autism, Aspergers, sensory processing disorders, regulatory disorders, food aversions, dyspraxia, learning and neurological disorders.

    We embrace the DIR®/Floortime Model, which challenges the child to improve their capacity to relate, communicate and learn. Therapy is Child's Play! We use child directed play to empower parents and caregivers to further the child's social and emotional growth.

    Offering Comprehensive Occupational Therapy Assessments, Consultations and direct intervention for Autism and Aspergers Syndrome, Home and School Programs, DIR®/Floortime, Interactive Metronome, The Alert and Zones Programs for Self-regulation, Yoga for kids, Social Groups, Camps and more.

    Golden Steps Pediatric Therapy
    4065 Oceanside Blvd., Suite J
    Oceanside 92056
    760-602-7986
    http://www.goldensteps.org

  • Fall Family Camp
  • September 29 - October 1
    YMCA Camp Marston - A Mountain Retreat in Julian, CA


    Join us for our second annual Fall Family Camp on Friday, September 29th through Sunday, October 1st! The YMCA of San Diego County Overnight Camps and Autism Society San Diego have teamed up to provide families who are part of the autism community with a fun weekend in the mountains of Julian. Family time is important and there's no better place to make friends and be yourself than YMCA Camp Marston! All meals and activities are included, and we can accommodate special diets with advanced notice. Accommodations are in newly remodeled winterized cabins with indoor plumbing! Each family gets their own indoor bedroom with sleeping accommodations for up to 6. Open to families and children of all ages - come join us for a weekend of relaxing fun!

    Click here for all the info and to register!!!

    For scholarship information, please contact YMCA Camp Marston directly at 760-765-0642 and ask to speak with Otilia Cervantes.

  • Parenting the Love and Logic Way
  • A Six Session Series!!!
    First of six sessions begins on Monday, September 25, 2017 - 10 am - 12 noon
    North County Regional Education Center
    255 Pico Avenue, San Marcos, CA 92069


    Back by popular demand! Designed to give you practical skills that can be used immediately.

    Read more

    Click here to register online

  • Monster Story Time II
  • What: Monster Story Time II
    About the TERI Players: The TERI Players is a theatre troupe made up of actors and musicians with special needs and talented staff from TERI.


    Show Synopsis: The troupe of "misunderstood monsters" returns for another exciting Halloween adventure! When newly-elected mayor Frankenstein is cursed by a witch, the townspeople rally to break the spell. What magical concoction will they try? Eye of newt or tongue of bat? Whatever the recipe, it's sure to be a mixture of music, laughter, and zombie-good fun for the entire family

    When: Friday, October 13 @ 7pm
    Where: Star Theatre in Oceanside
    How to buy Tickets: teriinc.org/monsterstory
    Cost: VIP $100 (includes reception prior to event)
    General Admission $20
    Child $10
    General Admission Premier $30
    Child Premier $20

  • NFAR: Technical Training Programs
  • NFAR is offering technical training programs specifically designed to advance technical skills for young adults with autism.

    These programs combine instructor-lead, hands-on training with real life applications, helping to build confidence, expertise and experiences that can lead to careers within the ever-growing and important field of software testing, computer programming and other technical professions.

    The NFAR Technical Training model integrates employee skills development into a technical skills curriculum all within a learning space designed to mimic a high tech office environment.

    Click here for all the info!!!

  • San Elijo AYSO VIP Soccer Fall Season! Registration now Open!
  • Registration now open! San Elijo AYSO VIP Soccer Fall Season is September 10 through October 29. The VIP league is a program which is designed for the specific needs of individuals whose physical or mental disabilities make it difficult for them to successfully participate on mainstream soccer teams. Each player will have Buddy to assist them while they learn soccer, meet new friends, and have fun!

    There will be 8 games, Sundays from 1-2pm at the San Elijo Softball Fields. Cost is $85 and registration is open at at https://inleague.sanelijoayso.org/

    Please contact [email protected] with any questions. We hope to see you there!

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!


  • In February we began our, Autism Accessibility Mornings at the Fleet (http://rhfleet.org/events/autism-accessibility-mornings), program. This morning is dedicated to the ASD community to come and enjoy the Fleet in a quieter setting and catch an IMAX film! Our film showings are presented with raised house lights and a lowered soundtrack volume, to provide a more comforting environment. Our goal is to provide an enriching experience for the ASD community

  • Fall 2017 Therapeutic Recreation Services Calendar


  • Click here for all the info!!! Registration online or in our office.

  • San Diego Regional Center's Recreation Resource Page
  • sdrc


    Recreation is important in promoting inclusion and quality of life. Studies have shown that it increases self-esteem and confidence, leads to improved communication, social interaction, and friendship skills.

    The San Diego Regional Center supports clients having time to recreate and believes it is essential to a healthy and well-balanced life. Below are links to some popular recreation activities in the San Diego and Imperial Counties. However, SDRC does not endorse, nor provide funding for any recreation activity. SDRC is not liable for anything occurring while participating in any of the recreational activities. Click here for all the info!!!

  • Weight on Me

  • Our goal is to make durable weighted blankets with safe materials affordable for everyone.

    http://myblanketsheavy.com
    Contact Jill for all the info!!!

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at [email protected] or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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