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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. December 19, 2017

In This Issue

Study zeroes in on key part of DNA deletion linked to autism

How To Stay Sane and Still Homeschool Through The Holidays (free printable included)

Kid-tested, parent-approved toys for kids of all abilities!

Parents and Others Looking for Help!!!

Download: Frustration Log to Find Out Why Your Child Gets Frustrated

Exciting Opportunity!

Parents Advocating Together, PAT San Diego, 2018 Meetings Schedule

Sensory Friendly Films: Star Wars - The Last Jedi

NFAR's Race for Autism - Family Friendly Pricing Thru Dec 31st!

Belardo Lights

Enjoy the Farmers Insurance Open, Help Autism and Save!

See all that has happened at Include Autism in 2017!

Conference: Teaching Social Competencies-More Than Social Skills

Building Floortime Families: Information and Courses for Parents and Caregivers

Sensory Browsing Hour at Poway Library

December Newsletter

Crimson Center & TERI, Inc


 



VALERIESLIST SPONSORS

Exciting Opportunity! Positive Action Community Theatre (PACT) is looking for teens and young adults with autism who have never participated in our programs and would like to receive a scholarship for our upcoming theatre and/or performing arts workshops in exchange for participating in a new study. We will be videoing the first, fourth, and seventh workshops of an 8-week series to measure our effectiveness in improving the participation, communication, and social skills of teens and young adults with autism. This will be a confidential study and no names will be used in the reports.

The workshop series will begin on Saturday, January 27, 2018 and conclude on March 24th, with no workshops on February 17th. Improvisational theatre workshops are from 3:00 to 4:30 p.m., and our performing arts (dance and group singing) workshops are from 4:30-5:30 p.m. Workshops are located at Dance North County, 535 Encinitas Blvd., Ste. 101, Encinitas, CA 92024.





  • Study zeroes in on key part of DNA deletion linked to autism

  • Deletions within a specific segment of chromosome 22 raise the risk of autism, a new study suggests1.

    Deletions or duplications of DNA in this region, called 22q11.2, are associated with autism and schizophrenia, as well as heart and gastrointestinal problems.

    In most cases, these deletions or duplications span the entire region. But in about 15 percent of cases, they affect just one of four segments within 22q11.2.

    Researchers now report that only one of these segments is tied to autism: 5 of 12 children with a deletion have the condition, compared with none of 8 other children with a deletion or duplication in any of the other three segments. Read on...

  • How To Stay Sane and Still Homeschool Through The Holidays (free printable included)
  • I used to give up somewhere around December 8th or so.

    The Thanksgiving rush seemed to drift into a chaotic mix of Christmas decor, more complicated meal plans, and way too much wrapping paper.

    When my children were younger, it was easier to just stop homeschooling until after the New Year.

    But as my boys have gotten older, their need for consistency and structure has increased. They rely on more than just my presence for stability (I miss those younger years!), Now, they do best when we keep our daily routine for as long into December as possible.

    It works for them. Not so much for me. Read on...

  • Kid-tested, parent-approved toys for kids of all abilities!
  • Click here for all the info!!!

  • Parents and Others Looking for Help!!!


  • We are the family of an adult with intellectual disabilities and medical complexities. We are seeking others' experiences with Home Health Care agencies hoping to find one that is honorable, trustworthy and reputable. Is there any such thing? Positive and negative experiences are welcome. Thank you.
    Tflourie@aol.com



    I would appreciate any insights into the Winston School, not just for academic support but also behavioral support. My child would be starting mid-year seventh grade. If you have any feedback, please email me at Lisacmurphy1@gmail.com. Thank you!



    Has your child attended TERI's Country School? If so, please email me - I'd like to get your feedback. Thank you! Michelle Ohnstad: michelle.ohnstad@gmail.com



    Our daughter is 17 (she turns 18 in June) and is in an out of state residential program. She needs to a different program soon, as she can't stay where she is beyond 18. We are planning to apply for conservatorship/guardianship. Do we apply in California since we live here? Do we apply in Florida where she is now? Should we apply in the state where she goes next (which we don't know yet)? Any help you can give or advice (if you have gone through the process of conservatorship) would be greatly appreciated. Thank you, Mo Ruchhoeft (moru@san.rr.com)



    If you have a question or request for this newsletter group, please send your email request to ValeriesList@aol.com. People who can help you will email you directly with their responses.

  • Download: Frustration Log to Find Out Why Your Child Gets Frustrated
  • All kids get frustrated sometimes. It's part of learning new skills, taking risks and embracing new experiences.

    But kids with learning and attention issues may feel frustrated more often than other kids do. If you're seeing signs of frustration in your grade-schooler, middle-schooler or high-schooler, it can help to look for patterns in those behaviors over time. And if you're unsure if your child has learning and attention issues, keeping a frustration log could help you find answers about your child's struggles.

    By observing your child and taking specific notes of when she expresses frustration, you can identify obstacles that might be hard for her to overcome on her own. It can also help you see patterns and better understand (and avoid) your child's triggers. Click here for all the info and for the downloads!

  • Exciting Opportunity!

  • Positive Action Community Theatre (PACT) is looking for teens and young adults with autism who have never participated in our programs and would like to receive a scholarship for our upcoming theatre and/or performing arts workshops in exchange for participating in a new study. We will be videoing the first, fourth, and seventh workshops of an 8-week series to measure our effectiveness in improving the participation, communication, and social skills of teens and young adults with autism. This will be a confidential study and no names will be used in the reports.

    The workshop series will begin on Saturday, January 27, 2018 and conclude on March 24th, with no workshops on February 17th. Improvisational theatre workshops are from 3:00 to 4:30 p.m., and our performing arts (dance and group singing) workshops are from 4:30-5:30 p.m. Workshops are located at Dance North County, 535 Encinitas Blvd., Ste. 101, Encinitas, CA 92024.

    PACT is a 501(c)3 non-profit organization. Our mission is to empower individuals with unique needs and create community through the performing arts. We have been offering workshops since 2008. For more information about this opportunity, please contact Kathryn Campion, 760-815-8512, info@pacthouse.org, www.pacthouse.org.

  • Parents Advocating Together, PAT San Diego, 2018 Meetings Schedule
  • Please RSVP to Raylene Dickinson at raylene@patsd.org or leave a message at 858-213-8005.

    Please visit our website: http://www.patsd.org

  • Sensory Friendly Films: Star Wars - The Last Jedi
  • Two Showings!!!
    Saturday, December 23 at 10 AM - 12 PM
    Tuesday, December 26 at 7 PM - 9 PM


    AMC & AUTISM SOCIETY PRESENT SENSORY FRIENDLY FILMS

    Sensory Friendly Films are now offered two Tuesday evenings a month! At this viewing, theaters are fully lit and patrons can move freely up and down the aisles.

    PLEASE CONTACT AMC DIRECTLY TO VERIFY SHOWING BEFORE ATTENDING AS THESE EVENTS ARE SUBJECT TO CANCELLATION BY AMC WITHOUT NOTICE.

    Link to AMC Palm Promenade: https://www.amctheatres.com/movie-theatres/san-diego/amc-palm-promenade-24
    Phone Number for AMC Palm Promenade:(619) 662-2698

    Link to AMC Mission Valley: https://www.amctheatres.com/movie-theatres/san-diego/amc-mission-valley-20
    Phone Number for AMC Mission Valley: (619) 296-2737

    Link to AMC Poway 10: https://www.amctheatres.com/movie-theatres/san-diego/amc-poway-10
    Phone Number for AMC Poway 10: (619) 662-2698

  • NFAR's Race for Autism - Family Friendly Pricing Thru Dec 31st!
  • You can be a SUPERHERO for Autism! Sign up for the Race for Autism by December 31st to get the LOWEST prices of the season.

    Registration includes a Race T-shirt and this year's beautiful commemorative medal. Children 12 years and under receive a SUPERHERO cape instead of a T-shirt.

    Don't Miss Out! Enjoy your holidays and sign up before the year is over!

    REGISTER TODAY!

  • Belardo Lights
  • "This year marks the 12th year that the Tierrasanta-based Belardo Lights Christmas / Holiday Lighting display will be providing lifetime memories for visitors in San Diego. It started 13 years ago when homeowner Randy Schimka was trying to find activities to connect with his young son Brandon, who has autism and was prone to tantrums during outings with the family. But all that changed when Randy took him to see some local Christmas Light displays. Brandon loved it, and even asked to visit a second time, which was unheard of.



    Delighted with his son's newfound interest, Randy and Brandon started working on a Holiday lighting display of their own at their home in Tierrasanta at 5306 Belardo Drive. It started off small, but over the years the display has grown to well over 100,000 lights, with mostly home-built decorations, and the whole display is computer controlled, synchronized to music, and broadcast on FM 106.1 for visitors to hear while in their cars at the display. 



    Randy designs the display decorations, and many of them are built by Brandon and Grandpa Joe Schimka in his woodshop / metal shop, and then Randy does the electrical work to bring them to life. They have even built full-size animated Snowman and Snow woman characters that move and talk. 



    For the last few years, Randy and Brandon have been raising funds at the display to help benefit the non-profit Stein Education Center in Mission Valley. Stein helps families and kids with Autism and other disabilities. Belardo Lights is planning to fund their entire set of Winter Camp activities this year, as well as outfit their campus with much needed therapeutic toys, games, and activities for the kids at Stein. 100% of the Belardo Lights proceeds raised goes to Stein, and they use all of the funds provided for their activities and kids.



    Randy and Brandon have a website (www.BelardoLights.com), and a Facebook Group (Belardo Lights), and they post photos, guestbook entries, and other heart-warming information about the display and what it means to their family as well as the community. 



    Randy Schimka welcomes all San Diego residents and their families to come out and visit the display this year, but particularly those with a family member affected by Autism, to experience some of the special Belardo Lights magic. As a special treat, Mrs. Claus will be dressed up and visiting the display on weekends leading up to Christmas. She'll be handing out candy canes and special Belardo Lights bracelets for the kids! 

Belardo Lights is located in San Diego at 5306 Belardo Drive and will be operational this year through December 27th from 6 to 10pm nightly.

  • Enjoy the Farmers Insurance Open, Help Autism and Save!
  • Don't miss out on this amazing opportunity to the Farmer's Insurance Open! Great gift for the golf lover!!

    Tickets purchased by Jan 20 will be mailed to the billing address. Tickets purchased after January 20 will be available for pick up at the NFAR office in Scripps Ranch.

    Tickets are valid any day of the Farmers Insurance Open Wednesday, January 24 (Preview/Pro-Am Day), through Sunday, January 28, 2018. Tickets provide the exact same access as general admission tickets purchased directly through the Tournament and do not include parking. Multiple parking options available.

    Please contact NFAR for your ticket purchase or if you have any questions at 858-679-8800 or info@nfar.org subject: Farmer's Insurance Open. www.nfar.org

  • See all that has happened at Include Autism in 2017!

  • Click here to read their latest edition for all the info about their activities and events!!!

  • Conference: Teaching Social Competencies-More Than Social Skills
  • Our mission is to help people develop social competencies to better connect with others and live happier, more meaningful lives. We do this by creating concepts, curricula, and materials that help professionals and parents teach social competencies and help individuals as young as four and across the lifespan meet their personal, academic, and professional goals.

    Join us in San Diego! March 12-15, 2018
    Learn practical strategies for self-regulation, executive functioning, perspective taking, and more at the four-day conference. Learn More & Register!

  • Building Floortime Families: Information and Courses for Parents and Caregivers
  • We at ICDL know that when a parent is searching the web and reading our website, there are probably more questions and emotions that are present than any web page could ever address. We know that most parents are reading our website because they are looking for answers to help their child. There may be an autism diagnosis that has been given or a parent may have been told that their child has a "special need." It can be a very difficult, complicated, confusing, and draining process as a parent to seek out answers and resources. We have found though, that no matter the exact situation or diagnosis, there is one common theme that parents come to us with - they just want their child to be happy and they want to know how best to help their child continually strive towards their fullest potential.

    DIRFloortime has been used for over 2 decades now and the results from clinical practice and research have been impressive. Bottom line, it works! At one time in the past, all we had were behavioral approaches to helping our children. It was OK, but clearly did not provide all the answers. As we have learned more and more about child development, we have learned how effective developmental and relationship-based methods like DIRFloortime can be. It is a huge step beyond just controlling behaviors.

    Courses and Support for Parents and Caregivers

    Building Floortime Families: An Introduction to DIR® and DIRFloortime®
    Next course begins January 30, 2018
    LIVE ONLINE!
    Click here for details.

    Supporting Floortime Families: A Peer Support Group for Parents
    Next group begins on March 27, 2018
    LIVE ONLINE!
    Click here for details

  • Sensory Browsing Hour at Poway Library
  • My name is Loretta, and I am the Youth Service Librarian at the Poway Branch of the San Diego County Library. I want to invite all of your readers to join us every Second Sunday at 11:00 am for our Sensory Browsing Hour. During this hour, the Poway Library opens early for families with children on the Autism spectrum. We strive to create a comfortable and welcoming environment so that families can enjoy the library.

    Our next Sensory Browsing Hour will be on Sunday, January 14th at 11:00 am.

    Loretta Gibson
    Youth Service Librarian
    Poway Branch
    San Diego County Library
    (858) 513-2900

  • December Newsletter

  • Click here to read their latest newsletter for all the info!!!

  • Crimson Center & TERI, Inc
  • It is with great pride that Crimson Center for Speech & Language announces our merge with TERI, Inc. Karyn Lewis Searcy will remain clinical director.

    TERI, a nonprofit organization founded in 1980, specializes in setting quality standards for individuals of all ages with a wide range of developmental and learning disabilities. They have been internationally recognized as a leader of successful and innovative programming and training.

    TERI's "adoption" of Crimson Center will support and enhance the high-quality treatment we provide, our collaboration with families, and our partnerships with other agencies.

    For further information, please visit to teriinc.org or crimsoncenter.com, or email karynls2@crimsoncetnter.com.

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!

  • The third Saturday of every month, Fleet invites the Autism Spectrum Community to enjoy our museum through this special opportunity. Adults and families with children with autism can enjoy the Fleet's exhibit galleries in a quieter setting, an hour before regular open hours to the general public and with access to a special cool-off space. Visitors are welcome to stay and enjoy the museum all day. Admission includes a special IMAX film screening at 10 a.m. with the house lights on and a lower soundtrack volume.

    Upcoming dates:
    • November 18, 2017
    • December 16, 2018
    • January 20, 2018
    • February 17, 2018
    • March 17, 2018
    For more information, visit www.fleetscience.org/events/autism-accessibility-mornings.

  • San Diego Sibshop


  • October 2017 - August 2018

    WANTED: Siblings who have a brother/sister with special needs

    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    Dec. 10: Mission Trails Regional Park Visitor Center
    Feb. 25: Mission Trails Regional Park Visitor Center
    March 25: Mission Trails Regional Park Visitor Center
    May 20: Mission Trails Regional Park Visitor Center
    August 19: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies and lunch for the kids

    REGISTRATION: Pre-registration requested by email (if possible) the Thursday before the event.

    CONTACT: Email patmoulton@cox.net for a Sibshop registration form and / or additional information.

    Sibshop Leaders:
    Jody BonDurant-Strong, Administrator
    Ndoto BonDurant-Strong - adult sibling & CSUSM student
    Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    Directions for Mission Trails Regional Park Visitor's Center (MTRP):
    1 Father Juniper Serra Trail (92119). Interstate 8 to 15 North / East on Friars Road.
    Stay to left - turns into Mission Gorge Road / Turn left on 1 Father Juniper Serra.

    https://www.facebook.com/sandiegosibshop/

  • Therapeutic Recreation Services, Winter 2017-2018 Calendar

  • The City of San Diego Park & Recreation Therapeutic Recreation Services program provides sports, recreation, leisure and outreach services to people with physical, mental and emotional disabilities.

    Services include therapeutic recreation programs and adaptive sports opportunities. These address the special needs of individuals with disabilities who have difficulty accessing and participating in recreation opportunities offered to the general public.

    Under the direction of Certified Therapeutic Recreation Specialists, activities and services are designed to maintain or improve the physical, cognitive and social functioning of those who have limitations. The target population is children and adults, ages 3 and up, with any type of disability.

    Click here to view the Winter Calendar!!

    Click here to register!!

  • Parents and Caregivers Needed for Online Survey

  • I am Arek Yetenekian, and as part of my doctoral research at Alliant International University I require the participation of parents or primary caregivers of non-communicative children with autism. Participants are requested to complete the survey packet via the provided URL, within a web browser. The study consists of several measures of mostly multiple-choice responses related to a child's quality of life, as well as related areas of interest such as familial quality of life and parenting stress. Demographic information will also be collected. Participants with at least a fifth grade reading level, residing in the US, with at least one minor child with autism who is unable to communicate through oral and written means, are required. Thank you very much for your consideration.

    Survey URL: https://newqtrial2015az1.az1.qualtrics.com/jfe/form/SV_bq1Ye1UEEfFAuz3

    If you have any questions or concerns, please do not hesitate to contact me at: 818-406-5199 ayetenekian@alliant.edu

    IRB #1607037250

  • Participate in Research: Attention Differences in Persons with ASD and their Family Members

  • Verbally fluent children with ASD between the ages of 8 and 16 and both of their biological parents are invited to participate in a new study examining attention skills. This study will follow recently published work that showed ­both the male sibling of a child with ASD and the child with ASD demonstrated similar attention abnormalities. This provides an important clue to the development of a better understanding of the genetic basis of ASD. This new study will examine trios, the child with ASD, and the mother and father. If one or both parents shows evidence of the attention difference we observed in children with ASD, we will have one of the first clear examples of a non-ASD core deficit that is experienced in first degree family members. Following with genetic analyses could potentially lead to a better understanding about the basic etiology of ASD. Families of a child with ASD are invited to participate in this research taking place at the Neuroscience Center of Alliant International University under the supervision of Alan Lincoln, Ph.D., MSCP, BCBA-D and Shamayne Brown, M.A.

    Study Requirements
    To participate in this study, both biological parents and your son must participate. Your family must be able to come to the Neuroscience Center at Alliant International University in San Diego, California. Participation for you and your son's other parent involves:
    • Completing questionnaires about yourself. This should take about 25 minutes.
    • Completing a brief standard cognitive measure. This should take about 30 minutes.
    • Completing a computer task. This should take about 30 minutes.
    Participation for your son:
    • Will require your child to complete the brief standard intelligence measure. This should take your child about 30 minutes.
    • You will be asked some background questions about your child and will be asked to complete forms related to your child's skills, abilities, and behaviors. This should take you about 25 minutes.
    • Your child will then be shown how to play the same computer games you will be shown and asked to play them as best he can. This should take about 30 minutes.
    We will try to accommodate your schedule as much as possible. Family members may come to the lab on different days if necessary. Some individuals may be excluded from participation in the study on-site. If your child is excluded, he will receive a $5.00 cash gift for his participation in the preliminary assessment. Upon the completion of participation in this study, each child will receive a $20.00 cash gift. Parents will each receive a $10 gift card upon completion of their participation. If a parent is excluded, he or she will be given a $5 gift card for participation in the preliminary assessment. You may also receive, upon request, results of your performance and/or your child's performance.

    If you are interested in participating, please contact us at our confidential e-mail: 858-635-4068, or by email: sbrown7@alliant.edu or alincoln@alliant.edu. Thank you in advance for your time and assistance. I look forward working with you and your family soon.

  • Participate in a Research Survey!
  • business_finance_research.jpg


    I am a graduate student of Communication Disorders at Eastern New Mexico University. The reason I'm reaching out is to see if ValeriesList can assist me with my graduate research. My focus is how applied behavior analysis (ABA) techniques are viewed by parents of children with autism. To collect information for my research I have an online questionnaire with a 12 minute video on survey monkey. Would it be possible for you to put the survey link in a newsletter or email to reach your followers? This research is very exciting to me, as it will illuminate perceptions of an important strategy in improving the lives of children with autism.

    https://www.surveymonkey.com/r/VNYK8H6

    Principal Investigator: Erin Bishop
    Email: erin.weaver@enmu.edu
    This project has been reviewed by the IRB of Eastern New Mexico University and approved as protocol # 1718006. Records pertaining to proposal review and approval are available upon request.

  • UCSD Autism Center of Excellence- SPARK

  • UCSD Autism Center of Excellence is working with the Simons Foundation Autism Research Initiative (SFARI) as part of an exciting research partnership called SPARK, and we would like to invite you and your family to take part. SPARK is an online, national genetics research partnership that seeks to improve the lives of people with autism. Through DNA analyses of saliva samples, the ultimate goal of SPARK is to gain a better understanding of causes and best treatments for autism. To get started, sign up and a saliva collection kit will be mailed to your home. A gift card totaling up to $50 will be sent to you once saliva samples from both parents and individual with ASD are received. We already have 1,991 participants registered on the website, help us reach our goal of 3,000 today!!!

    To register for SPARK: go to www.sparkforautism.org/ucsd.sarrc

    For additional information contact Hannah Kaplan at the UCSD ACE: h1kaplan@ucsd.edu or 858- 534- 6906

  • Children with Autism and Their Mothers are Needed for Student Reseach

  • Ariane Myers-Turnbull, MA
    Clinical Psychology Doctoral Student
    California School of Professional Psychology

    If interested please contact amyers-turnbull@alliant.edu or call 858-414-1076!

  • BRAIN DEVELOPMENT IMAGING LABS - Recruiting Participants

  • If you are interested in participating in any of these studies, please call 619-594- 0176 or email BDIL@sdsu.edu.

  • Join Our Study! Video Games to Train Attention and Eye Movement

  • Join our study at UCSD's Research on Autism and Development Lab ( http://radlab.ucsd.edu). We are currently recruiting participants for a study to measure the effects of training visual attention using video games. Click here to view the brochure!!!

  • Parents and Children Needed for Student Research

  • My name is Shamayne Brown and I am a doctoral student at Alliant International University. This study is examining the attention abilities of kids with ASD and their parents. I am recruiting families with a child with ASD as well as families with typically developing children.

    We are looking for boys, ages 8 to 16 years old, who have a diagnosis of ASD and their biological parents - both mother and father need to participate. We are also looking for boys, ages 8 to 16 years old, who are typically developing and both of their biological parents to serve as a control group.

    If you and your family are eligible for participation, you will be asked to come to a lab at the Neuroscience Institute at Alliant International University. You and your child's other parent will be asked to complete consent forms and questionnaires about your own behaviors; this should take you each about 25 minutes. You will also be given questionnaires about your child's behaviors. Only one parent needs to fill out these questionnaires and should take about 25 minutes complete. You, your child, and your child's other parent will complete a cognitive test, which will take about 30 minutes. Each of you will then play some games on a computer. This will take each person about 30 minutes. Your child's participation will take approximately one hour. Your participation and that of your child's other parent will take approximately one and a half to two hours.

    After your child completes his tasks, he will receive a $20 cash gift as an appreciation for his participation. Once you and your child's other parent have completed all tasks, you will each receive a $10 gift card as a token of appreciation for your participation. For further information, please contact Shamayne Brown at sbrown7@alliant.edu or 619-416-1799. Thank you for your time.

    *Approved by Alliant IRB
    IRB #1604025150

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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