April 8, 2017

Parade of Hats 2013
TOGETHER.
WE MAKE IT HAPPEN.

The MTM-CNM Family Conference has been growing every year, and we LOVE it!!!

As our numbers have grown, so have the conference costs. While the conference is fortunate to be supported in part by corporate donations, we can't do this without you.

We recently posted on our blog in detail about the costs as well as the opportunity for families to join in and aim for the goal of raising $500 or more. Through fundraising we can cover the costs of the conference and potentially offset some of the costs for families. For example, we would like to keep registration costs as low as possible. So as an incentive, for every $500 a family raises for the conference, their registration fees will be discounted by $100! 


RESERVE YOUR HOTEL ROOMS NOW!
Now is the time!

Planning to come to the 2017 MTM-CNM Family Conference? Book your hotel reservations at the Nashville Airport Marriott NOW! 

Our reservation block is quickly filling and both the block and hotel is expected to SELL OUT. 

To ensure you receive the discounted rate, make your reservation by calling our hotel contact Judy directly at 615-872-2834 M-F. Please be sure to specify the type of room you need. 

Don't lose your chance to take advantage of our conference rate and stay onsite! Contact us at [email protected] with any questions, and we'd be happy to help. 

We can't wait to see YOU in Nashville!!


Rob, Becky, Riley, and Reese!
The Garlands!
FAMILY FUNDRAISERS
It's Easy to Join In!

One very simple way to fundraise for the conference is to create a Crowdrise page. Go to www.crowdrise.com and Join the Team TODAY!  You can create a new account instantly simply by linking to your Facebook page or take a couple of extra seconds to enter an email and create a password. Then you share your Crowdrise page on social media and that's that!! Click here to get started.

Other families have hosted fundraising sales through Pampered Chef (cookware), LuLaRoe (clothing), and Younique (make-up). 

Speaking of Younique, we want to send a warm "Thank you" to Michelle Hill and Becky Garland for the recent sale benefitting the conference! Visit Michelle's Younique business page here. 

Thank you Rob Garland for the Slot Race Car fundraiser which brought in $1800 for the conference!!! What an AMAZING way to use your personal passion and hobby to raise funds!

Currently, Calli Mayotte is hosting a Thirty-One Gifts sale to support the conference from now until April 19th. Do you have tons of supplies? OF COURSE YOU DO! Thirty-One sells a variety of lovely patterned storage bins and bags that help keep you cute and organized. Check it out now!

Heather Kirchmeyer, another friend of the Garland family, is hosting a Scentsy party for the duration of April. When you have loved ones with complex medical needs, non-toxic, pleasantly fragrant cleaning products are a MUST. So head on over to Heather's MTM-CNM Family Conference party and get your supplies, knowing it supports a great community cause!

In June, Kimberly Brown and her family are planning the first "Run for Evan" 5K event, which they are planning to be an annual fundraiser. The run will be hosted by their church at a local golf course to benefit the conference. If you'd like to participate, early/late registration is $20/$25. Learn more about the event here. Maybe you'd like to host a walk/run, too??!

We also have an ongoing " Shave or Save the Beard" fundraiser conceived by Mark Ward!  Have you voted/donated yet? 

As you can see, there are MANY ways to help us reach our fundraising goals! Some other successful fundraisers are "Wear Jeans Day" at work or school (everyone who wears jeans makes a donation, e.g. $5, to the cause), bake sales, yard sales, restaurant nights (a restaurant donates a portion of the day's sales to the charity) and so much more.

Now, what fun and creative ideas do YOU have?? We'd love to hear them!!


CLINICAL TRIALS IN GENE REPLACEMENT MOVE ANOTHER STEP FORWARD!
Announcement from Audentes Therapeutics!

Several days ago, the FDA approved the Audentes IND (Investigational New Drug) application for gene therapy human trials in the US! This is an exciting step in the drug approval process as we enter Phase 1/2 of clinical trials.   Click HERE for the official press release by Audentes.

To learn more about the journey ahead for our community, refer to our drug approval process overview here:  http://www.mtm-cnm.org/drug-approval-overview.html