APRIL 2013

Long-Distance Caregiving 

Aunt Lois, Linda (caregiver/medical manager), and Joe.
A long-distance caregiver can be defined as a caregiver that lives at least one or two hours away from the care recipient. 
In the recent
Alzheimer's Association 2013 Facts & Figures report, an estimated 2.3 million people are long-distance caregivers.  Taking on the role of caregiver is a huge responsibility but when dealing with caregiving from a distance it poses unique challenges:  coordination of care, assessing the care recipient's condition and needs, communicating with health care providers, family strain, psychological distress, and financial burden.
In June of 2011, Joe and his wife Karen, from Eldridge, Iowa, began caring for Joe's 84 year old aunt Lois who had lived alone for nearly 40 years in Tucson.  The love of Joe for his aunt, who's farm he manages in Illinois, is seen through his dedication for insuring his aunt's needs are being met on a daily basis. 
Joe and Karen took on some unique challenges that were placed on them after some "suspicious" activities at Aunt Lois's bank triggered an intervention and a legal process for them to become her legal guardian.
>Read more of Joe and Karen's story, the struggles they face, and Joe's advice to a long-distance caregiver.
 >Released in March, the 2013 Facts and Figures report reveals new statistics on the ever-growing weight of Alzheimer's disease on our nation. The report uncovers new information on growing death rates, the cost of the disease, and the burden placed on long-distance caregivers
>View the video below to highlight key findings in the report.
Alzheimer's Disease Facts and Figures 2013
2013 Facts & Figures



Obama to Unveil $100M Initiative to Map Human Brain
A powerful commitment by the president as he states, "As humans we can identify galaxies light-years away.  We can study particles smaller than an atom, but we still haven't unlocked the mystery of the three pounds of matter that sits between our ears," says Obama
Tuesday at the BRAIN (Brain Research through Advancing Innovative Neurotechnologies) Initiative at the White House.
"The Alzheimer's Association applauds the president for underscoring the critical need for research to better understand the mysteries of the brain," states Harry Johns, president and CEO of the Alzheimer's Association.  Learn more by clicking the articles below.

Ease the Stress of Long-Distance Caregiving     


Caregiving is difficult no matter the circumstances, but caring for a loved one with Alzheimer's disease who lives miles away is especially challenging. Not being able to see the person on a regular basis may lead to anxiety as you worry about their safety, nutrition and health.

If your loved one lives on their own, it is important to make plans to ensure your visits are enjoyable and your time away as free of worry as possible. Following are three steps that can help: Identify Need, Establish Contacts, and Make the Most of Visits.  Read More

Try these resources offered by the Alzheimer's Association:

  • Attend the 2013 Conference on Alzheimer's & Other Dementia to educate yourself about the disease.  Learn More
  • Complete a personalized action plan for your loved one by visiting Alzheimer's Navigator.
  • Need to locate educational programs, events, or resources in your community?  View the Community Resource Center. 
Iowa Board of Directors Wins Challenge 

The Alzheimer's Association,Greater Iowa Chapter's Board of Directors won the National Board Cup Challenge again for the 2nd year in a row at the Alzheimer's Association Leadership Summit in February.  The award was given for the Board's support of Walk to End Alzheimer's with 100% participation and an average raised of $9,480 per person. 
Congrats and thank you to a great Board of Directors!
Iowa Legislative Update  

State CapitolThe Alzheimer's Disease Response Strategy is bill number SF 269.  It passed the Senate with overwhelming bipartisan support,
42-8.  However, SF 269's future is uncertain as it has stalled in the Iowa House.  It will need to be passed out of the House Human Resources Committee by Friday, April 8th or it will not be viable this session.

Please email your House member today! 

Sample email:  I would like to ask you to support SF 269 to help the 69,000 Iowans suffering from Alzheimer's disease.   We need to plan for the future of this disease now or it will be too late.  Iowa has the 3rd highest Alzheimer's death rate in America.  There has been an 84% increase in Alzheimer's related deaths in Iowa since 2000.  Thus, we need to have a state plan to stop this disease or these numbers will continue to rise.  

You should also consider telling how you are personally touched by the disease.
If you don't know your legislators, go to www.legis.iowa.gov and click on Legislators, add your address and find your legislators. Let them know the importance of passing SF 269.   

>For more information on how you can use your voice to advocate for Alzheimer's disease, contact Public Policy Coordinator, Robyn Mills at 515.440.6383 x102.

>Become an Alzheimer's Advocate






A Concert To Remember

April 28, 2013

Fort Dodge, IA


2013 Conference on Alzheimer's & Other Dementia

April 30, 2013

Des Moines, IA
Memories in the Making
May 3, 2013
Davenport, IA
Blondes vs. Brunettes
May 5, 2013
Burlington, IA
A Ride to Remember
June 15, 2013
Ames, IA

Alzheimer's Association International Conference (AAIC)


Registration now open! At the Alzheimer's Association International Conference, history never repeats itself. Every year, thousands of the world's leading dementia researchers gather to share new discoveries and innovative ideas in a forum that defines the field. At AAIC 2013 in Boston (July 13-18), we'll celebrate 25 years of progress while shaping the future of dementia science. 
More Details

Online Donations


Interested in making a secure online donation to support the Alzheimer's Association's mission?  Just click the DONATE button below! 


Donate Button

Community Resource Finder 


Access comprehensive listings of Alzheimer's resources, community programs and services, and events in your area by clicking the CALENDAR button below.


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"Why I Sponsor"  






"Saint Jude Hospice recognizes the impact Alzheimer's Disease has on patients we serve, their families, and our community. As the most common form of dementia, and a disease without a cure, it is undoubtedly an important cause to support. We are happy to partner with the Alzheimer's Association in their mission of advancing research and enhancing care." 


Melissa Kramer
Communications Director
Alzheimer's Association, Greater Iowa Chapter