Epilepsy Foundation of Delaware
Brainstorms Newsletter
In This Issue
Upcoming Training
Purple Day
5K Run Walk
Teens Speak Out
Quick Links
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Several trainings are schedule this spring.  If your group is interested in learning more about epilepsy, please give us a call at 302-999-9313.   


Sussex County:

-Telemon Head Start 

-Indian River High  School

-Milford High School

-Phillip Showell

-Elementary School

-SCOPE North

-SCOPE South

 

Kent County:

-Wilmington University

-Make a Difference  Conference

-Caesar Rodney High  School

 

New Castle County:

-Delaware State Police  Academy


 
We thank our fabulous education team for helping us reach thousands in Delaware:

 

Cheryl Anderson

Dianne Baker

Diane Chandler

Marsha Levine

 


 

School Nurse
Training
Our annual School Nurse Training for continuing education credits will be held on June 2  in Kent County this year. Stay tuned and check back to our website for more information.



SEE Conference
Back by popular demand! The SEE (Seizure and Epilepsy Education) Program will be returning this fall. The conference will be held on November 8, 2015 at Nemours/Alfred I. duPont Hospital for Children. More information will be available shortly.

 

 

What We Do

 

The Epilepsy Foundation of Delaware is an organization of volunteers and professional staff. We provide information and support for individuals with seizures and their families, increase awareness in the general community through education and provide leadership and advocacy for epilepsy issues. We are affiliated with the Epilepsy Foundation of America.


 

Mission Statement

 

The Epilepsy Foundation leads the fight to stop seizures, find a cure and overcome the challenges created by epilepsy.

 


March 2015

 

Hello and welcome to our Spring 2015 E-newsletter!  The Epilepsy Foundation of Delaware has undergone some transition over the past few months. Both I and Val Budischak LCSW, our new Program Director have recently joined the staff. We both bring many years of experience in the health and human service arenas and can't wait to share our enthusiasm and well-honed skills with this incredible organization.

 

Val and Ellen with Rep. Joseph Miro at our Legislative Lunch

Many great things have happened over the past few months and we are proud to say that because of the ongoing commitment of our staff and board, our work in the community has flourished during this transition.  In this issue we provide a recap of some our recent happenings, as well as information on upcoming events!

 

Ellen Spoehr, Executive Director
Purple Day
March 26, 2015
Cassidy Megan created the idea of Purple Day in 2008, motivated by her own struggles with epilepsy. Cassidy's goal is to get people talking about epilepsy in an effort to dispel myths and inform those with seizures that they are not alone. 

 

Here are some things you can do to promote Purple Day in our community:

  • Wear purple on March 26th!
  • Deck out your Twitter and FaceBook accounts
  • Bake some purple cupcakes and host a bake sale to raise awareness
  • Organize a Purple Day coffee house or concert
  • Set up an information booth at your church, work or school
  • Set up a training by contacting us at 302-999-931
Freedom from Seizures 5K  
Save the Date - May 16, 2015  

This Run/Walk to support the Epilepsy Foundation of Delaware is the perfect spring event! Bring the kids and enjoy a pleasant walk through Park or 

participate in a challenging 5K run on a USATF-certified course

 

Brandywine Park

North Park Drive, Wilmington

Saturday, May 16, 2015 

Registration begins at 8:00am
Race Starts at 9:00am

$20 early registration
 

Prizes for top finishers and
fundraisers!T-shirts for the first 400 racers!
 
 


 

Seizure  Training for Medical Professionals
DHSS - March 25
With the support of a very generous Blueprints Grant from Highmark, we have been developing a model training program with a focus on both medical and behavioral health providers in Delaware.

 

The grant has allowed us to train over 400 providers to date, and we are pleased to announce that our team will be training staff from the Delaware Department of Health and Human Services on throughout the spring and summer. The first session will be in New Castle Counton March 25. Additional trainings will be offered in all three counties this year.


 To schedule a training for healthcare providers, please call 302-999-9313!

Support and Education
Next Meeting - April 8th
Our monthly meet and greet offers individuals with epilepsy and their families an opportunity to learn more about epilepsy, as well as share information, concerns, frustrations, and progress. Facilitated by Val Budishack, LCSW, the meeting are held in our office in Newport on second Wednesday of the month at 6:30pm. Light refreshments are offered.


 

Our last two topics have been Seizures vs. Epilepsy and  Coping with Epilepsy in Everyday Life.  Please feel free to share your ideas for topics by emailing Val at: [email protected]g.  We hope to see you in April!

T eens Speak Up
2014 Conference
April 12-14, 2015  

We will once again be joining with The Epilepsy Foundation of America for the Teens Speak Up! Conference in Washington, DC from April 12-14, 2015. Teens Speak Up! is a program that provides an opportunity for teens with epilepsy and their parents to join other young advocates in the nation's capital, receive advocacy training, meet with their legislators, and tell their personal stories. 

 

We thank our delegate Rebekah Marvin, a 14 year old from Wilmington and her mother Margaret, who will be joining Ellen and Val in Washington, DC to participate in this event.

Recap of Winter Events 
Legislative Lunch
Our very first legislative luncheon was held on January 29th in Dover! During this event our staff, board and volunteers met with many of Delaware's legislators to discuss the epilepsy communities policy priorities.  Attendees shared why epilepsy is so important to them and to encourage legislators to support the Epilepsy Foundation. We thank all Delaware legislators who attended the event.

Annual Gala
 
Our Annual Gala on March 6th was a huge success and we thank our sponsors, silent auction donors, volunteers, guests and donors.  

This is our largest fundraising event of the year and we couldn't have don e it without the support of our community of supporters.