NEW LFA IN logo_stacked_smallweb   

November 2013 

 

NEWSLETTER

Serving INDIANA

 
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Are flu and pneumonia vaccines safe if I have lupus? 
Find out the answer below!

 

 

Upcoming Events

Happy Thanksgiving!
Special Activities Enhance the Holidays

 SAVE THE DATES!


We just get finished with one Walk, and we're off to another! 

 

Please save the dates for next year:

 

Crown Point Walk to End Lupus Now

May 17, 2014

 

Indianapolis Walk to End Lupus Now

September 27, 2014

 

Registration pages will be coming soon, so stay tuned!

 

Wanted: Leaders!

 

LFA Indiana is in search of committee chairs for our 2014 Walks. Please contact LFA of Indiana CEO Jan Ferris  at jan@lupusindiana.org.

As we enter this holiday season, we're often inundated and overwhelmed with the expectations and stress associated with this time of year.

 

Even for those without health issues, this time of year can be a challenge. For lupus patients, fatigue and stress can equal disaster. 

 

Instead of thinking about all the things one cannot do or doesn't have, we'd like to suggest substituting those longings with a moment each day that you mindfully consider those things for which you are grateful. Sound silly? Consider this: Studies concerning gratitude have shown that those who consistently used "gratitude journals" experienced increased and long-lasting positive effects. One famous proponent of these "gratitude journals" is media mogul, Oprah Winfrey. Click here to gain information on the power of gratitude.

 

How to start? A simple notebook and five minutes a day should be sufficient! The experts suggest keeping it simple, personal, authentic/real, and savor the surprises. For smartphone users, there are even apps to create a daily log of gratitude. By noting your daily gratitude you'll be celebrating "thanksgiving" year round!

 

 

 

... And We Are Grateful for Our Volunteers!
In appreciation of all our volunteers do for LFA Indiana, we are hosting an annual Volunteer Recognition Luncheon on Saturday, December 7. The event is scheduled to begin at 11:30 a.m. at the Embassy Suites North (3912 Vincennes Road, Indianapolis).

Please be our guest for this very special occasion. Reservations are required;  click here to RSVP by Wednesday, December 4. Reservations made after that date can only be made by calling the office directly at 317.225.4400.

 

To nominate someone for the Phyllis Simko 2013 Volunteer of the Year award, click here. Nominations are due by November 30, 2013.

 

Make Tuesday, Dec. 3 "Giving Tuesday"
Please support the Lupus Foundation of America, Indiana Chapter on Giving Tuesday, December 3. First, you can support us with your online contribution from the Donate Now button on our home page.Then, you can share your reasons for supporting the Indiana Chapter with your friends, family, and co-workers through social media. Research shows that the use of social media peaks over the holidays. Let your friends know that you support the Indiana Chapter and why through Facebook, Twitter, Instagram, etc. You can also let them know which of our services and programs you find most helpful. Don't forget to provide them with a link to Donate Now as well
 

 

Get the Most Out of Your Doctor's Appointments
In order to continue living well with lupus, it is essential that you have access to high quality information about the diagnosis, treatment, and management of the disease. At times, this may seem like a daunting task.

Living well with lupus means playing an active role in your care and treatment, and one of the best ways to do this is to ensure that every doctor's appointment is as successful as possible. So what are some ways to ensure this?

Check out these great tips about how to maximize your time with your physician. 

 

Recent Study Reveals Black Females at Risk for Earlier Onset, Increased Complications

According to the largest and most far-reaching epidemiology study ever conducted

on the disease lupus, there are substantial racial disparities in the burden of lupus. Published online last month, the report in Arthritis and Rheumatism reveals black females are disproportionately burdened by lupus. 

 

An extensive review of records from hospitals, specialists' offices and clinical laboratories within Georgia and Michigan showed blacks had an increased proportion of lupus-related renal (kidney) disease and progression to end-stage renal disease than whites, and that black females developed lupus at a younger age than white females. To learn more, click here.


 

Background Medications ... 
The Impact on Clinical Trials

(San Diego, California) - A new study that analyzed lupus treatment data from past global clinical trials suggests that when testing new drugs in combination with other background therapies, clinical trials should be designed to account for the effects that initial disease activity and background drug treatment have been shown to have on planned endpoints, like response and flare rates. The analysis was conducted by the Lupus Foundation of America to improve the design of future lupus clinical trials in order to secure a full arsenal of new treatments for lupus, an unpredictable and potentially fatal disease that affects millions of people worldwide. Click on the image above to hear more or visit the lupus website.


Programs & Support Services

 

Groups Update Meeting Schedules for the Holidays
Health Insurance Marketplace Update
 
Still trying to navigate the new healthcare marketplace? Visit the Lupus Foundation website for tips and recent updates.
 
In addition, for Hispanic lupus patients and their families and caregivers, the Kaiser Family Foundation has launched a helpful Spanish language consumer resource center including a subsidy calculator and an


Several of our "Living With Lupus" support groups throughout Indiana will be adjusting their schedules in the next couple of months for the coming holidays. Our Indianapolis West group will not meet in November. Valparaiso, Carmel and West Lafayette will not be meeting in December. Indianapolis West is moving its support group meeting to Wednesday, December 11. Indianapolis North is meeting the third Wednesday of December in Room 120 (instead of Room 125). 

Other changes: The Bloomington support group will now meet on the first Tuesday of the month from 7 - 8 p.m.; the West Lafayette support group will now meet on the second Saturday of the month from 10:30 a.m. to noon.


To see the full schedule of all our "Living With Lupus" support groups, visit our website.
 

 

Give the Gift of Hope

The LFA Indiana Chapter is the only organization in Indiana dedicated to improving the quality of life for all people affected by lupus through programs of research, patient education, and advocacy.
  
Today, more than ever, we need your support in meeting the needs of the lupus community. Click here to learn more about joining the fight.


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When you have lupus, it is very important to know that you are at increased risk for infections, compared to the general population. This is true as lupus itself increases the risk of infections. Find out more HERE.

 


  
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