Lupus Foundation of America, Philadelphia Tri-State Chapter
December 2010

Greetings!

During this holiday season, the Lupus Foundation of America (LFA), Philadelphia Tri-State Chapter wishes you and yours good health, peace and happiness. Your support of the LFA's endeavors to bring more attention and resources to lupus is deeply appreciated.

This past year, thanks to your support, the LFA's efforts have increased funding for lupus research, generated greater awareness of the disease and provided education and support to individuals with lupus, their families and their health care providers.

During this season of giving, please consider the LFA, Philadelphia Tri-State Chapter when you are planning your year-end contributions. Each gift you make will help advance the science of lupus and support life-enhancing services to the 40,000 individuals living with lupus in the tri-state region.

Season's greetings to you and we wish you all the best in 2011.


Warmest regards,

Annette Myarick
CEO, Lupus Foundation of America

Philadelphia Tri-State Chapter

IN THIS ISSUE
Donate Now
Programs and Events
Services
Join LFA
Volunteer
About Lupus
Research / Update on Benlysta
Donate Now
The Lupus Foundation of America (LFA), Philadelphia Tri-State Chapter relies on your tax deductible contributions to advance vital research to find the causes and cure for lupus, to educate health care professionals about developments in diagnosis and treatment, and to provide support to individuals affected by lupus.

Programs and Events

Thanks To You, 19th Annual Lupus Loop Raises Over $228,000!


On Sunday, October 31, 2010 over 3200 runners, walkers, volunteers, family and friends joined us in Fairmount Park for the 19th Annual Lupus Loop 5K Run and 2 Mile Walk for Lupus Now. Special thanks to our sponsors, which include Target, Disability Benefits Law Center and Mitsubishi Motors who provided the pace car to lead the race. This year's record breaking crowd was due in part to the incredible and dedicated team member recruitment efforts of our 216 team captains! Congratulations to all of the 5K award winners! Race results may be viewed on lupusloop.org. Thank you to all of our walkers, runners, volunteers and friends who helped to make the 19th Annual Lupus Loop an outstanding success! We look forward to your support again next year for the 20th Annual Lupus Loop on Sunday, October 30, 2011!

Please support our 2010 Lupus Loop Sponsors:

View our 2011 Calendar of Events
19th Annual Lupus Loop
You can still support the Lupus Loop and help us reach our goal!
Chapter Logo
Social Media

Contact Us for more information about education, support and other services.

Your subscription to the Lupus Now magazine is included as a benefit of membership in the Lupus Foundation of America, Philadelphia Tri-State Chapter. In addition to receiving this great magazine, you will receive our local newsletter, Lupus Line, and you will be supporting many local programs and services for those affected by lupus along with local research efforts. Become a member or renew your membership online today!


We need dedicated people to help with Lupus Foundation of America projects. Volunteers need to be at least 14 years of age. Please download and complete the Volunteer Application Form, and submit to our office in order to register to be a volunteer. Please click on the Volunteer Today tab on lupustristate.org for more information. Thank you for your interest in volunteering with the LFA Philadelphia Tri-State Chapter.

About Lupus
Gastrointestinal Issues
Lupus is an autoimmune disease that can affect almost any part of the body, most often the joints, skin, kidneys, heart, lungs, blood, or brain. Lupus can also affect the gastrointestinal (GI) system. The GI system is your body's pathway for taking in, processing, and disposing of everything that you eat and drink.

People with lupus may be affected by problems in any area of the GI system, including the surrounding organs such as the liver, the pancreas, the bile ducts, and the gallbladder. Not all of these problems will be directly related to lupus disease activity; some may be traced to side effects of medication you take or other diseases that may be present. Gastroenterologists are the physicians who specialize in the GI system.

Additional information about GI issues related to lupus, including information about esophageal disorders, digestive difficulties, ulcerative colitis and Crohn's disease, peritonitis and ascites, pancreatitis, liver complications and peptic ulcers can be found here.

Medication Adherence
Dr. Sam Lim discusses the potential side effects of lupus treatments, weighing the risks vs. benefits of treatment options with your physician, and the necessity of medication adherence and open communication with your physician in this LFA lupus chat. The full chat transcript on the topic of "Medical Adherence" can be found here.
The Lupus Foundation of America, Philadelphia Tri-State Chapter is pleased to be a resource for information and education about lupus. In addition to this monthly educational column, you can also request print materials in English and/ or Spanish by contacting the Chapter office at 215-517-5070 or info@lupustristate.org.
Research
International Lupus Congress

Every three years, the world's leading lupus clinicians and researchers gather for the International Congress on Lupus and Related Conditions. The purpose of the meeting is to present data from studies on lupus, share information, develop collaborations and plan the future direction of lupus research. During the Congress, several investigators participated in interviews with the LFA communications team. In addition to highlighting the results of their studies, the researchers shared their insight into the current status and future direction of lupus research. Watch the interviews here.

FDA Arthritis Advisory Committee Recommends Approval of Benlysta

On November 16, 2010, the U.S. Food and Drug Administration (FDA) Arthritis Advisory Committee voted overwhelmingly (13 to 2) to recommend BENLYSTAŽ for approval as a treatment for lupus. If ultimately approved by the FDA, BENLYSTA would become the first new treatment for lupus in 52 years.

Click here to read more about the hearing and to watch video statements from Sandra C. Raymond, LFA President and CEO, with Dr. Gary Gilkeson, Chair of the LFA Medical-Scientific Advisory Council, and personal stories from people with lupus who testified on behalf of individuals affected by lupus.


FDA Extends BENLYSTAŽ Decision Date to March 10, 2011


(Washington, DC) December 03, 2010 - Today, the U.S. Food and Drug Administration (FDA) issued an announcement that a final decision on BENLYSTA for the treatment of the autoimmune disease lupus has been delayed until March 10, 2011. At a public hearing held on November 16, 2010, the FDA Arthritis Advisory Committee voted to recommend BENLYSTA for approval.


Sandra C. Raymond, President and Chief Executive Officer of the Lupus Foundation of America (LFA) has issued the following statement regarding the FDA's announcement:


"It is important to understand that a delayed decision from the FDA does not indicate if they will approve or reject BENLYSTA. We appreciate the efforts of the FDA to ensure that medications for people with lupus are safe, effective, and tolerable. The LFA eagerly awaits the final decision from the FDA, and will continue to follow this process closely."


About BENLYSTA

BENLYSTA was developed by Human Genome Sciences (HGS) and GlaxoSmithKline (GSK) as an investigational therapy to treat lupus and in November the FDA Arthritis Advisory Committee voted to recommend BENLYSTA for approval.


The Lupus Foundation of America, Inc. (LFA) is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus. LFA is a grassroots, volunteer-driven organization. The Lupus Foundation of America Philadelphia Tri-State Chapter serves southeastern Pennsylvania, Delaware, and southern New Jersey.

Click Contact Us above, and complete the online form to request information or to ask a question. Your inquiry will be responded to promptly. Our chapter office staff is available Monday - Friday from 9am - 5pm to answer questions or to respond to requests for information, please contact 215-517-5070 or 302-622-8700 for South Jersey or Delaware.
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