Lupus Foundation of America, Philadelphia Tri-State Chapter
Lupus Foundation of America, Philadelphia Tri-State Chapter
E-Newsletter August 2010
In This Issue
Bridge Tournament for Lupus
Educational Teleconference Series
Support Group Update
Living Well With Lupus Symposium
Lupus Loop
Eye & Dental Concerns
Walk for Lupus Now Recap
Lupus Research Updates
8th Annual Bridge Tournament for Lupus
Bridge Tournament
Monday, September 27, 2010 Bala Golf Club
2200 Belmont Avenue Philadelphia, PA

Registration, Crudites, and Mix & Mingle begin at 10:30am

Complimentary valet parking

Duplicate Bridge directed by Jane Segal

Couvert: $65.00
Play with a Pro: $225 (for you and a pro, lunch included).

Raffle Tickets: 1 for $10 or 3 for $25 (Please retain your half. You need not be present to win. Please sign and return your stubs)

Proceeds benefit the Lupus Foundation of America, a 501(c)3 not-for-profit organization.
Thank you for your support of the Lupus Foundation of America, Philadelphia Tri-State Chapter!

Raffle prizes include gift certificates to area restaurants, bridge playing lessons, gift certificates for salon services, and autographed bridge books.

Grand Prize: 7 Day Spa Classic Program Double Occupancy at Hotel Ixtapan

Click here for more information, register, or purchase raffle tickets.
Lupus Educational Teleconference Series
The Lupus Educational Teleconference Series is on a hiatus for the summer months. While we are busy preparing for the Fall 2010 lineup, you can revisit the past workshops through the archived recordings and presentation pdfs on our website.

If you are looking for educational information, please contact the Chapter office at 215-517-5070 or toll-free in PA, NJ & DE at 866-517-5070 or info@lupustristate.org.

Fall 2010 Lupus Educational Teleconference Series

Pain Management
Saturday, September 11, 2010
12:00pm-1:00pm

Vivir con Lupus
Martes 12 de Octubre de 2010
7:00pm-8:00pm

Living with Lupus
Wednesday, October 13, 2010
7:00pm - 8:00pm

Lupus and the Brain
Saturday, November 13, 2010
11:00a-12:00pm

Register for these programs now!
Support Group Update
Support
The LFA Philadelphia Tri-State Chapter offers Support Groups throughout the Tri-State Region and even telephonically! Some groups are on hiatus in the summer months, please check the list below and our website for the most up to date information.

Telephonic Support Group
Thursday, August 12th
7:30-8:30pm
and
Wednesday, August 25th
7:00 pm - 8:00 pm
Register here

St. Francis Hospital
701 North Clayton Street
Wilmington, DE 19805
Wednesday, August 18th
6:30pm - 7:30 pm

Kresson Elementary School
1 School Lane
Voorhees, NJ 08043
Tuesday, August 17th
7:00 pm - 8:30 pm

Lancaster General Health Campus
2nd Floor, Conference Room #2
2100 Harrisburg Pike
Lancaster, PA 17601
Sunday, August 15th
4:30 pm - 6:00 pm

NOTE NEW LOCATION
Abington Memorial Hospital
Lenfest Building, P & G Room
Keith and Old York Roads
Abington, PA 19001
Wednesday, August 11th
7:00 pm - 9:00 pm

Lankenau Hospital
Rosengarten Building, Martin Conference Room
100 Lancaster Avenue
Wynnewood, PA 19096
Saturday, August 14th
12:00 pm - 2:00 pm

St. Eleanor's Church
St. Eleanor's Rectory Meeting Room
647 Locust Street
Collegeville, PA 19426
Wednesday August 11th& Wednesday August 25th
7:00 pm - 8:30 pm

Oprah.com/lupus Lupus Awareness Microsite

The LFA, Philadelphia Tri-State Chapter is thrilled to announce the launch of the Oprah.com micro site featuring the Ad Council Lupus Awareness campaign! The LFA is the Founding Partner on the campaign, and LFA spokesperson Mercedes Yvette participated in the launch of the campaign last year.

The micro site (www.oprah.com/lupus) is part of a robust women's health section of oprah.com. It includes general lupus information and encourages visitors to learn more about the disease through interactive assessment tools and personal stories. In addition, the micro site will house several Web banners that direct visitors to the Lupus Awareness campaign site, www.couldihavelupus.gov, for more information.
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Greetings!

What a busy summer this has been! We traveled to Ocean City, NJ in May to Walk for Lupus Now and kept up the great efforts in Wilmington, DE in July! In May we rallied for lupus awareness in LOVE Park, Philadelphia, and just last week over 50 golfers enjoyed 18 holes at Philmont Country Club at the Lupus Links Golf Tournament.

We are now ready to switch gears to our Fall programs and events. While you continue to fill your calendar with picnics, vacations and trips to the beach be sure to save the date for the 8th Annual Bridge Tournament for Lupus, the Living Well with Lupus Symposium, and of course - the Lupus Loop!

While the Lupus Educational Teleconference Series is on hiatus for the summer, take this opportunity to catch up with recordings of the past teleconferences and register for the programs coming up in the Fall 2010 Series!

Remember to find us on Facebook and Twitter!

As always, thank you for your overwhelming support!

Sincerely,
-Annette
Annette Myarick
CEO
Lupus Foundation of America, Philadelphia Tri-State Chapter

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Save the Date: October 2, 2010
Annual Living Well with Lupus Symposium
19th Annual Lupus Loop

Saturday, October 2, 2010
Registration and Continental Breakfast: 9:00am
Symposium: 9:45 - 3:00pm

Springfield Township High School
1801 East Paper Mill Road
Erdenheim, PA 19038

The new location reflects our continued partnership with the Youth in the Loop for Life program at Springfield Township High School and allows us to reduce our expenses!

Early Bird Registration fee: $15, ($10 for a significant other or family member) includes breakfast, admission to all sessions and educational materials and lunch. We are putting the finishing touches on the final program so be sure to check our website for all the details and to register online.
Lupus Loop
19th Annual Lupus LoopWe are excited to announce the kickoff of the 19th Annual Lupus Loop 5K and 2 Mile Walk for Lupus Now!

2010 Lupus Loop
Avenue of the Republic and West Memorial Hall Drive
Philadelphia, PA
Sunday, October 31, 2010
Check-In/ Registration: 7:45am
Run/ Walk Begins: 9:15am

Last year we surpassed our goal of raising over $200,000! Let's smash that record for 2010!

Log onto the website - www.lupusloop.org - today and get started by registering and sharing the link with your friends, family, and coworkers! All the information you need to start a team and to register yourself can be found on the website.

If you have any questions about the Loop, please contact Cate Rooney, Community Development Manager, at the Chapter office at 215-517-5070 or crooney@lupustristate.org.
Living Well With Lupus: Eye & Dental Concerns

How Lupus Affects the Body: The Eyes

Some of the medications used in the treatment of lupus may have side effects that effect your eyes. For example, hydroxychloroquine (Plaquenil«) can cause retinal toxicity if taken in large doses over time. Regular annual comprehensive eye examinations are recommended by the American Optometric Association for people with lupus, especially for anyone taking Plaquenil.

Dry eyes
  • Approximately 20 percent of people with lupus also have Sj÷gren's Syndrome, a condition in which the tear glands do not produce sufficient tears to lubricate and nourish the eye.
  • Typical symptoms are irritated, gritty, scratchy, or burning eyes, a feeling of something in the eyes, excess watering, and blurred vision.
  • Advanced cases of dry eyes may result in damage to the front surface of the eye and impaired vision.
  • The dry eye that is seen in lupus cannot be distinguished from other dry eye conditions.
Learn more about the effects that lupus, and lupus treatments, can have on your eyes.

How Lupus Affects the Body: Oral Disease

The oral mucosa, or lining of the mouth, is one of the most common targets in people with lupus erythematosus (LE). Internists, rheumatologists, and even dermatologists commonly omit examination of the mucous membrane when taking a patient's medical history and during the physical examination. This medical oversight may certainly delay appropriate medical care for LE patients, as LE mucosal lesions often give clues for a correct diagnosis and prognosis. In this article we try to give a practical yet comprehensive overview of the most common mucosal lesions found in LE.

Learn more about how how lupus can affect your teeth, mouth, and overall oral health. Click to download the "Lupus Guide to Dental Care".

To listen to archived recordings from the Lupus Educational Teleconference Series, including "Living with Lupus", click here.
Summer Walk for Lupus Now Recap
19th Annual Lupus Loop
On May 16 in Ocean City, NJ and July 11 in Wilmington, DE over 750 supporters participated in our 2nd Annual Walk for Lupus Now. The Walk for Lupus Now is the siganture event of the Lupus Foundation of America and is a nationwide series that includes the annual Lupus Loop in Philadelphia, PA.

Together, the 2nd Annual Walk for Lupus Now events in South Jersey and Delaware have combined to raise over $44,000 dollars to support lupus awareness, education and programs in both Delaware and Southern New Jersey!

We could like to thank the City of Ocean City, NJ, the Wilmington Riverfront Corporation, Convey2Web, Tonbo Visual Promotions, Wilmington Metropolitan Urban League Nu-Lites Program, Best Buy and Blue Cross/ Blue Shield for their dedication and support of the Walk for Lupus Now. Just as important, we want to thank our participants, fundraisers, volunteers and donors, who helped increase participation and funds raised by an astounding 160 % from 2009! Give yourselves a round of applause!

In the fall we look forward to continuing to engage our supporters and communities in these areas with support groups, health fairs and self help courses. Contact Christopher Waters, Community Development Manager at (302) 622-8700 or cwaters@lupustristate.org if you are interested in volunteering, also stay on the lookout for volunteer and program opportunities.

Lupus Research Updates
An Exploration Study of Umbilical Cord Stem Cell Treatment in Lupus
In animal studies, stem cells taken from the umbilical cord (which connects the mother to the baby during pregnancy) have been found to help treat a variety of diseases, including lupus. However, umbilical cord stem cells have not been given to humans before. The researchers hoped to determine whether umbilical cord stem cells could be given safely to people with severe and treatment-resistant lupus, and whether this might help to treat lupus.
Read more >>

Successful Phase III Trial of CellCept« for Lupus Nephritis
Lupus nephritis, or inflammation of the kidney, is a somewhat common and potentially serious manifestation of lupus. There has not been a new FDA-approved treatment for lupus nephritis in over 50 years. In this study, the researchers wanted to compare the effectiveness of mycophenolate mofetil (CellCept) with that of azathioprine to prevent kidney flares after the initial treatment for nephritis was successful.
Read more >>

Belimumab Reduces Lupus Disease Activity After 76 Weeks
Benlysta™ (belimumab) is a treatment that has recently been studied for use in lupus and researchers hoped to learn about the safety and potential effectiveness of belimumab in the treatment of lupus. Belimumab is an antibody that binds to a protein of the immune system called B-lymphocyte stimulator (BLyS). BLyS helps one of the immune cells (white blood cells called "B cells") to survive and trigger inflammation. By inhibiting BLyS, belimumab might help to inhibit inflammation.
Read more >>


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