September 2010
In This Issue
Calendar
Lupus: Back to the Basics
Living Well With Lupus Symposium
Workplace Giving
Lupus Loop
Goldie Simon Preceptorship Award Update

Lupus in the Family
Living Well With Lupus Chat
Thursday
September 9, 2010
7:30pm
Register online

Pain Management

Lupus Educational Teleconference Series
Saturday
September 11, 2010
12:00pm - 1:00pm
Please register

Lankenau Hospital
Support Group Meeting*
Saturday
September 11, 2010
12:00pm - 2:00pm

St. Francis Hospital
Support Group Meeting
Wednesday
September 15, 2010
6:30-7:30pm

Lancaster General
Support Group Meeting*
Sunday
September 19, 2010
4:30-6:00pm

Kresson Elem. School
Support Group Meeting*
Tuesday
September 21, 2010
7:00-8:30pm

St. Eleanor's Church
Support Group Meeting*
Wednesday
September 22, 2010
7:00-8:30pm

Systemic Lupus Erythematosus Self Help Course
Wednesdays
September 22 -
October 20, 2010
3-5pm
Penn's Place
New Castle, DE
Reserve your spot online

8th Annual Bridge Tournament for Lupus
Monday
September 27, 2010
10:30am
Bala Golf Club
2200 Belmont Avenue Philadelphia, PA
RSVP Online

Christiana Hospital
A Telephonic Support Group Meeting*
Wednesday
September 29, 2010
7:00-8:00pm

Living Well With Lupus
Annual Symposium
Saturday
October 2, 2010
9:00am - 3:30pm
Springfield Township High School
Erdenheim, PA 19038
Register Online

Riddle Hospital
Support Group Meeting*
Saturday
October 2, 2010
10:30am-12:30pm

Vivir con Lupus
Lupus Educational Teleconference Series
Martes
12 de octubre de 2010
7:00pm - 8:00pm
Please register

Living with Lupus
Lupus Educational Teleconference Series
Wednesday
October 13, 2010
7:00pm - 8:00pm
Please register

Abington Mem. Hospital
Support Group Meeting*
Wednesday
October 13, 2010
7:00-9:00pm

Living Well with Lupus Chat
A Telephonic Support Group Meeting*
Thursday
October 14, 2010
7:30-8:30pm
Please register

Lupus Loop
5k Run and 2 Mile Walk for Lupus Now
Sunday
October 31, 2010
Check-in at 7:45am
Run/ Walk begins 9:15am
Register or Donate Online

Living Well with Lupus Chat
A Telephonic Support Group Meeting*
Thursday
November 11, 2010
7:30-8:30pm
Please register

Lupus and the Brain
Lupus Educational Teleconference Series
Saturday
November 13, 2010
11:00am - 12:00pm
Please register

*Support Group Meeting locations and details can be found on our website.
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Greetings!

Lupus Loop season is in full swing! We are busy making plans for what we are sure will be another fun-filled, heartwarming and successful event. We hope that you will join us!

Make sure your have you have saved the date of Saturday, October 2, 2010 for the 10th Annual Living Well With Lupus Symposium. We are thrilled to welcome Joan T. Merrill, M.D. the Medical Director for the national Lupus Foundation of America to deliver the Keynote presentation.

This Saturday marks the start of the Fall series of the 2010 Lupus Educational Teleconference Series. The Spring series included 5 teleconferences on topics such as Kidney Involvement, Disability Issues, and Lupus and the Skin. This fall we will discuss Pain Management , Living with Lupus (in English and en espanol: Vivir con Lupus!) and Lupus and the Brain. Each program is available via a toll-free telephone conference call. View the calendar of events in the left bar of this email for more details on registration.

This fall, please remember us during your annual workplace giving campaign! Many employers will match contributions made by their employees to qualifying charitable organizations. This is an easy way to double or even triple your donation to the Lupus Foundation of America, Philadelphia Tri-State Chapter.

We look forward to this time of year because it means that we get to see many familiar faces - and meet new friends - at the Living Well with Lupus Symposium and the Lupus Loop!

As always, thank you for your generous support and continued friendship!

Sincerely,
-Annette
Annette Myarick
CEO
Lupus Foundation of America, Philadelphia Tri-State Chapter

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Lupus: Back to the Basics

Anyone can get lupus. But 9 out of 10 people who have it are women. African American women are three times more likely to get lupus than Caucasian women. It's also more common in Hispanic/Latino, Asian, American Indian, Native Hawaiian and Native Alaskan women.
Both African Americans and Hispanics/Latinos tend to develop lupus at a younger age and have more symptoms at diagnosis (including kidney problems).

They also tend to have more severe disease than Caucasians. For example, African American patients have more seizures and strokes, while Hispanic/Latino patients have more heart problems. We don't understand why some people seem to have more problems with lupus than others.

Lupus develops among women mostly during their childbearing years, between ages 15 and 45. About eight of every ten new cases of lupus develop among women in this age group. However, men and women of all ages, as well as children and older people, do develop lupus. Lupus is not exclusively a disease of young women so everyone needs to be aware of the early warning signs of lupus.

Lupus is still often a misunderstood disease and there is a lack of knowledge and awareness in many communities. Take advantage of the opportunities available to you to better educate yourself about lupus, so that you can in turn raise awareness in your community.

Understanding Lupus
Diagnosing Lupus
Treating Lupus
Living with Lupus
Coping with Lupus

You can also request print materials in English and Spanish by contacting the Chapter office at 215-517-5070 or info@lupustristate.org.
Living Well With Lupus: Annual Symposium

Joan T. Merrill, M.D.
Joan T. Merrill, M.D.

Medical Director from the national
Lupus Foundation of America joins us for the
Living Well With Lupus
Annual Symposium
Saturday, October 2, 2010
Springfield Township High School
1801 East Paper Mill Road
Erdenheim, PA 19038
Registration and Continental Breakfast: 9:00am
Symposium: 9:45 - 3:30pm
Register online

Keynote Presentation
Lupus in the Lab: Lupus Expert Weighs in on the Future of Lupus Research
Speaker: Joan T. Merrill, M.D. the Medical Director of the national Lupus Foundation of America

The symposium will also feature a variety of workshops such as I Have Lupus Now What?, Cool Moves: Exercise Options for Better Health, and Taking Good Care, a workshop for friends and family only. Visit our website at www.lupustristate.org to find more information and register online.
Workplace Giving

Thank you for remembering the Lupus Foundation of America, Philadelphia Tri-State Chapter during your annual workplace giving campaign!

Workplace Giving Donor Option Numbers:
United Way of Southeastern PA: 1071
United Way of Delaware: 1179
PA State Employee Combined Appeal (SECA) giving through CHC: 2000-0013
Philadelphia School District Employees giving through United Way: 11011071
City of Philadelphia Employees' Campaign: 14-0018
Delaware State Employees Charitable Campaign (SECC): 50144

If you do not see us listed in your campaign booklet, contact the Chapter office at 215-517-5070. Don't forget... many employers match contributions made by their employees to qualifying charitable organizations. Contact your personnel or community relations department for a copy of the matching gifts forms. Complete this form and include it with your gift. The LFA, Philadelphia Tri-State Chapter will fill in the required verification information and mail the form to the appropriate company contact. If you have questions, please contact the Chapter office at 215-517-5070 or via email to info@lupustristate.org.
19th Annual Lupus Loop
5K Run and 2 Mile Walk for Lupus Now
Raising Awareness and Funds to Support the 40,000 Individuals Living With Lupus in the Philadelphia Tri-State Region

19th Annual Lupus Loop

The 19th Annual Lupus Loop brochures are here! Brochures are currently on their way to the mailboxes of all past Loop participants and donors. If you simply cannot wait until you receive your brochure to get started, visit the Loop website at lupusloop.org today to create your team, register to walk or run or make your donation!

By creating a team or registering as an individual participant you are joining the 211 participants and 80 teams that have already signed up to walk or run and fundraise for the 2010 Lupus Loop. By making your donation to the 19th Annual Lupus Loop today you are bringing us closer to achieving our goal of raising $240,000! Do your part to raise awareness and funds to support lupus research, programs, and services in your community. Get started on lupusloop.org today!
Goldie Simon Preceptorship Award Recipients

JiaHao Hu
University of Pennsylvania
B Cells in SLE
Preceptor: Robert Eisenberg
Amanda Schmidt
University of Pennsylvania
The Role of Age-Associated B Cells in the Development of Autoimmunity
Preceptor: Michael Cancro, M.D., Ph.D.
Katherine Weissler
The Wistar Institute
Regulatory T Cell Formation in Response to Self Antigens
Preceptor: Andrew Caton, Ph.D.
Katie Williams
The Wistar Institute
Pulmonary Development of Tertiary Lymphoid Organis in Murine Models of Autoimmunity: Systemic Lupus Erythematosus and Rheumatoid Arthritis
Preceptor: Jan Erikson, Ph.D.
Arielle Glatman Zaretsky
University of Pennsylvania
The Contribution of T Follicular Helper (TFH) Cells to Antibody Production During Chronic Inflammation or Secondary B Cell Responses
Preceptor: Christopher Hunter, Ph.D.
Kristen Foering
University of Pennsylvania
Characterization of Self-Reported Photosensitivity in Lupus
Preceptor: Victoria Werth, M.D.

Click here to make a donation to support lupus research, services and programs!