Issue: January 2014

Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.

Be sure to check this email, our website and for information on rescheduled events.


You may also find an archive of past issues and additional information at




National Walk for Epilepsy

 nat epilespy walk


Are you planning on attending the National Walk for Epilepsy on March 22, 2014 in Washington D.C.? If so, we invite you to join our Epilepsy Foundation of New Jersey team "Jersey Strong!" This will be a great way for you to meet others from New Jersey! To register visit and join team "Jersey Strong!"




In This Issue
- National Walk for Epilepsy
- SAVE THE DATE: 3rd Annual Paint the Pony
- Muses in the Vineyard
- 2014 Epilepsy Scholarship Program
- It's Never Too Soon to Plan for Camp
- School Nurse Training Program
- Are You a Parent of a Child with Epilepsy
- NJ High School Senior Raises Money and Awareness
- Eisai Announces Launch of Antiepileptic Drug Fycompa in U.S
- Are You Interested in Taking Part in This Study??
Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"

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The 3rd Annual Paint the Pony Purple will be held on March 30, 2014 1:00pm-5pm at

The Stone Pony in Asbury Park!

Visit our facebook events page!

More details to follow.


Thank you to the Cake Boss's Carlo's Bakery and Cameo Cakes for their dessert donations and to The Molly Pitcher Inn and the Lakewood Blue Claws for their generous silent aution items.
We are excited to be partnering with Candlelight Concerts for Epilepsy Awareness, Foul Rift Productions and Four Sisters Winery to promote a two-day festival benefiting the Epilepsy Foundation of New Jersey. Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE.

Saturday May 17th 1:00pm - 7:00pm (doors at noon)
Sunday May 18th 12:00pm - 6:00pm (doors at 11:00 a.m.)


Four Sisters Winery
783 County Route 519
Belvidere, NJ 07823

Tickets: Early Bird Pricing - $12.50 to $30.00




Christine HavrillaRed Molly
Sarah Ayers BandAmy Speace
Trina HamlinDanielle Miraglia
Sarah BlackerMaura Kennedy
Regina SaylesJess Klein
Kathy MoserShawnee Kilgore
Camela WidadMara Levine

2014 Epilepsy Scholarship Program
The Epilepsy Foundation of New Jersey is pleased to announce the existence of a scholarship program for New Jersey high school seniors who have epilepsy.  We anticipate offering at least three $1,000 scholarships.


New Jersey high school seniors with epilepsy who plan to attend a college or university are eligible.  Academic achievement, participation in activities and financial need will be considered.  The extent of a student's disability(s) will be taken into account as well, so that s/he need not be near the top of her/his class to qualify.  Final awards will be made by the Epilepsy Foundation of New Jersey, which reserves the right not to make any awards.


Click here to download the application.
Applications and supporting documents are due April 25, 2014.  Should you  have any questions, please contact Andrea Racioppi at the (800)336-5843 or by email at
It's Never Too Soon to Plan for Camp!!

The Epilepsy Foundation of New Jersey's camp schedule for 2014 is confirmed and preliminary planning is underway.  If you have not had the opportunity to join us for a Camp experience maybe 2014 will be the year for you.  Our Camp experiences start at age 8 and continue through adult life.  Camp activities vary from camp to camp, but include activities that are age appropriate, promote independence and provide opportunities for making friends.  Deadlines for Campership opportunities through the Division of Developmental Disabilities and the Department of Children and Families have been moved up for 2014 so we encourage you to apply early.


Super NOVA (Age 29 and Up)

March 14-16, 2014

September 19-21, 2014

YMCA Camp Ockanickon

1303 Stokes Rd.

Medford, NJ08055 (Burlington County)


Bounce Out the Stigma Basketball Camp (Age 8 - 21)


Ocean County

July 21-25, 2014


Toms River Intermediate South

1675 Pinewald Rd.

Beachwood, NJ 08722


Bergen County
August 11-15th


St. Nicholas Greek Orthodox Church

467 Grandview Ave.

Wyckoff, NJ 07481


Camp NOVA (Ages 12-18, 19-28)

August 3 - 9, 2014

Linwood McDonald

YMCA 1 Flatbrook Rd.

Sandyston, NJ 07826, NJ (Sussex County)




For additional information and/or to be placed on our mailing list please call Jenna Andolora at 800.336.5843.

School Nurse Training Program

The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.


Managing Students with Seizures


April 16, 2014



Dr. Megdad will be co-presenting


Centrastate Medical Center

Star and Barry Tobias Ambulatory Campus

Conference Center Auditorium

901 W. Main Street Freehold, NJ 07728


Continuing Education Units available.


There will a $35.00 fee for a light meal.


Please fill out the attached registration form and submit the $35.00 fee to:

Student Health Awareness Center

901 West Main Street

Freehold, NJ 07728


Are You a Parent of a Child with Epilepsy?



EFNJ is holding parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or with interest in attending. See below for dates and locations:


February 6, 2013


Parsippany, NJ


February 20, 2014


Barrington, NJ


We will also be holding a Spanish speaking parent focus group as well. Dates and location will be provided at a later date.




NJ High School Senior Raises Money and Awareness

Morgan Leaf a senior at Our Lady of Mercy Academy, Newfield,  promoted epilepsy awareness in November by selling purple bracelets.  Morgan raised $836 which was donated to EFNJ.  Morgan attached an epilepsy fact to each bracelet to spread awareness!  Morgan, a Jersey Pride All-Star cheerleader  has recently committed to Alderson Broaddus University where she will be a part of their acrobatics and tumbling team. 
Thank you Morgan!




Eisai Announces Launch of Antiepileptic Drug Fycompa in U.S.

Eisai Co., Ltd. (Headquarters: Tokyo, President & CEO: Haruo Naito, "Eisai") announced today that on

January 2, 2014, its U.S. subsidiary Eisai Inc. launched the AMPA receptor antagonist Fycompa™

(perampanel), a first-in-class antiepileptic drug (AED) discovered and developed in-house, in the United States as an adjunctive therapy for partial-onset seizures with or without secondary generalized seizures in patients with epilepsy aged 12 and older.


Fycompa is a highly selective, noncompetitive AMPA receptor antagonist discovered and developed by

Eisai. With epileptic seizures being primarily mediated by the neurotransmitter glutamate, the agent works as a first-in-class AED that reduces neuronal hyperexcitation associated with seizures by targeting glutamate activity at postsynaptic AMPA receptors. It is approved in more than 35 countries worldwide,mostly in Europe and North America, and has been already launched in Canada and in a number of European countries. In the United States, following approval by the U.S. Food and Drug Administration (FDA) in October 2012, Fycompa was recommended to the U.S. Drug Enforcement Administration (DEA) for scheduling classification under the country's Controlled Substances Act and subsequently placed as a Schedule III drug.


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Are You Interested In Taking Part In This Study???

Vince & Associatesis looking for people with epilepsy to be part of a study to evaluate the bioequivalence of generic to branded medications. If you are a person with epilepsy between 18 and 55 please click to see if you qualify. Your travel, room and board will be paid and you will receive approximately $4,000 for participation. Please act now.Go to for more information.