Are you planning on attending the National Walk for Epilepsy on March 22, 2014 in Washington D.C.? If so, we invite you to join our Epilepsy Foundation of New Jersey team "Jersey Strong!" This will be a great way for you to meet others from New Jersey! To register visit www.walkforepilepsy.org and join team "Jersey Strong!"

 

 

  

  

We are excited to be partnering with Candlelight Concerts for Epilepsy Awareness, Foul Rift Productions and Four Sisters Winery to promote a two-day festival benefiting the Epilepsy Foundation of New Jersey. Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE.

  

When:
Saturday May 17th 1:00pm - 7:00pm (doors at noon)
Sunday May 18th 12:00pm - 6:00pm (doors at 11:00 a.m.)

 

Where:
Four Sisters Winery
783 County Route 519
Belvidere, NJ 07823

Tickets: Early Bird Pricing - $12.50 to $30.00

 

Performers
Saturday	Sunday
Christine Havrilla	Red Molly
Sarah Ayers Band	Amy Speace
Trina Hamlin	Danielle Miraglia
Sarah Blacker	Maura Kennedy
Regina Sayles	Jess Klein
Kathy Moser	Shawnee Kilgore
Camela Widad	Mara Levine

  

  

  

  

Volunteers from ucb Pharma joined the staff at EFNJ's Parsippany office  on December 13th to help prepare for our upcoming holiday party to be held for program participants.

  

Thanks to all!!

  

 

In the upcoming months, EFNJ will be holding several parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or [email protected] with interest in participating.

 

 

 

  

The Epilepsy Foundation of New Jersey's camp schedule for 2014 is confirmed and preliminary planning is underway.  If you have not had the opportunity to join us for a Camp experience maybe 2014 will be the year for you.  Our Camp experiences start at age 12
8 and continue through adult life.  Camp activities vary from camp to camp, but include activities that are age appropriate, promote independence and provide opportunities for making friends.  Deadlines for Campership opportunities through the Division of Developmental Disabilities and the Department of Children and Families have been moved up for 2014 so we encourage you to apply early.

 

Super NOVA (Age 29 and Up)

March 14-16, 2014

September 19-21, 2014

YMCA Camp Ockanickon

1303 Stokes Rd.

Medford, NJ08055 (Burlington County)

 

Bounce Out the Stigma Basketball Camp (Age 8 - 21)

 

Ocean County

July 21-25, 2014

9:30-3:00pm

Toms River Intermediate South

1675 Pinewald Rd.

Beachwood, NJ 08722

 

Bergen County
August 11-15th

9:30-3:00pm

St. Nicholas Greek Orthodox Church

467 Grandview Ave.

Wyckoff, NJ 07481

 

Camp NOVA (Ages 12-18, 19-28)

August 3 - 9, 2014

Linwood McDonald

YMCA 1 Flatbrook Rd.

Sandyston, NJ 07826, NJ (Sussex County)

 

 

 

For additional information and/or to be placed on our mailing list please call Jenna Andolora at 800.336.5843.

  

  

 

At Northeast Regional Epilepsy Group researchers test new anti-epileptic medications and diagnostic and surgical techniques. Patients who participate in this gain access to new treatments provided at no cost to them.

 

If your child has generalized or partial epilepsy, There are 2 new open-label studies to determine safety, tolerability, and efficacy of oral Lacosamide as Adjunctive therapy. There are ongoing clinical trials for adults as well who has refractory partial epilepsy. For more information visit www.epilepsygroup.com. You may contact Munazza Malik,MD, Research Coordinator, at [email protected].

 

 

  

  

The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.

 

Managing Students with Seizures

 

April 16, 2014

4-7pm

 

Dr. Megdad will be co-presenting

 

Centrastate Medical Center

Star and Barry Tobias Ambulatory Campus

Conference Center Auditorium

901 W. Main Street Freehold, NJ 07728

 

Continuing Education Units available. To register, please contact Jenna Andolora at [email protected] or 800.336.5843.

  

  

  

  

Please visit Epilepsy Foundation of  NJs website to see the latest Patient Assistance Programs. Individuals with epilepsy may obtain funding through pharmaceutical companies or other organizations for their epilepsy medications through programs listed here. For more information please visit:

http://www.efnj.com/resources/about-epilepsy/patient-assistance-programs/ 

 

 

  

Infantile Spasms Awareness Week is December 6-12, 2013. In honor of this, Questcor is sponsoring a mini grant to individuals with Infantile Spasms. $1,000 will be offered to offset expenses not covered by insurance including therapies, assisted devices, assessments, and/or home modifications. For more information please contact http://infantilespasmsinfo.org/ 

 

 

  

  

SILVER SPRING, Md. -- Eslicarbazepine acetate (Aptiom) has been approved by the FDA for adjunctive treatment of partial seizures, the agency said Friday.

 

The agent is a prodrug for S(+)-liscarbazepine, which is the active metabolite of an existing seizure medication, oxcarbazepine (Trileptal). Pharmacokinetic studies have suggested that eslicarbazepine acetate is metabolized more slowly, reducing peak levels of the metabolite in circulation, thought to improve its tolerability for some patients.

 

The FDA said it based the approval primarily on three clinical studies, which demonstrated that eslicarbazepine was more effective than placebo in reducing seizure frequency.

 

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Are you thinking of selling or trading in that old car? Why not donate it instead? As a charitable contribution your vehicle donation could make a big difference. Our process is simple, quick and convenient and we will provide free and timely pick-up of your vehicle donation. Our program is simple ... The better the car, the greater your tax deduction.

 

Please contact Michelle Smith at 732-262-8020 or [email protected]