Issue: December 2013
 

Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.


Be sure to check this email, our website and thetrainingcalendar.org for information on rescheduled events.

  


You may also find an archive of past issues and additional information at www.efnj.com.
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Help Support EFNJ!!
  

To our valued supporters,

 

With your help, The Epileps Foundation of NJ could be a winner in a $2,000 Holiday giveaway from our fundraising partner, Goodsearch.com.

 

All you have to do is shop through Goodshop - their online shopping mall that donates to our cause every time you shop at 4,000+ partner brands, like Macy's, Target, Lands' End, Expedia and more. Weekdays from Dec 2 - Dec 13, every purchase you make enters us for a daily draw of $200!

 

If you're shopping for the Holidays anyway, why not shop through Goodshop and make every purchase count? It's safe, quick, easy and you can also find 100,000+ coupons and Holiday deals on the site.

 

Every little bit counts towards supporting important programs that give back to the community.

 

Thanks for you support & helping to make the Holidays matter!

 

 

  
SAVE THE DATE...

 

 

The 3rd Annual Paint the Pony Purple will be held on March 30, 2014 1:00pm-5pm at

The Stone Pony in Asbury Park!

Visit our facebook events page!

More details to follow.

 

                  
  
Thank you to the Cake Boss's Carlo's Bakery and Cameo Cakes for their dessert donations.
  
  

In This Issue
- Help Support EFNJ
- SAVE THE DATE: 3rd Annual Paint the Pony
- National Walk for Epilepsy
- Muses in the Vineyard
- Thanks to ucb Pharma
- Are You a Parent of a Child with Epilepsy
- It's Never Too Soon to Plan for Camp
- Research Opportunity
- School Nurse Training Program
- Updated Patience Assistance Program
- Mini Grant for Infantile Spasms
- New Seizure Drug Wins FDA Approval
- Donate Your Car to EFNJ
Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"

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National Walk for Epilepsy

 nat epilespy walk

 

Are you planning on attending the National Walk for Epilepsy on March 22, 2014 in Washington D.C.? If so, we invite you to join our Epilepsy Foundation of New Jersey team "Jersey Strong!" This will be a great way for you to meet others from New Jersey! To register visit www.walkforepilepsy.org and join team "Jersey Strong!"

 

 

  
 
  
We are excited to be partnering with Candlelight Concerts for Epilepsy Awareness, Foul Rift Productions and Four Sisters Winery to promote a two-day festival benefiting the Epilepsy Foundation of New Jersey. Muses in the Vineyard is a festival of music, of the women, by the women and for EVERYONE.
  

When:
Saturday May 17th 1:00pm - 7:00pm (doors at noon)
Sunday May 18th 12:00pm - 6:00pm (doors at 11:00 a.m.)

 

Where:
Four Sisters Winery
783 County Route 519
Belvidere, NJ 07823

Tickets: Early Bird Pricing - $12.50 to $30.00

 

Performers

 

SaturdaySunday
Christine HavrillaRed Molly
Sarah Ayers BandAmy Speace
Trina HamlinDanielle Miraglia
Sarah BlackerMaura Kennedy
Regina SaylesJess Klein
Kathy MoserShawnee Kilgore
Camela WidadMara Levine
  
  
 Thanks to ucb Pharma
  
  
Volunteers from ucb Pharma joined the staff at EFNJ's Parsippany office  on December 13th to help prepare for our upcoming holiday party to be held for program participants.
  
Thanks to all!!
  
                   
Are You a Parent of a Child with Epilepsy?

 

In the upcoming months, EFNJ will be holding several parent focus groups throughout the state. In these focus groups we will be gathering information on programs and services that are needed in NJ. We would love your input. If you are a NJ parent of a child with epilepsy age 21 or younger please contact Jenna Andolora at 800.336.5843 or jandolora@efnj.com with interest in participating.

 

 

 

  
                   
It's Never Too Soon to Plan for Camp!!
  
 

The Epilepsy Foundation of New Jersey's camp schedule for 2014 is confirmed and preliminary planning is underway.  If you have not had the opportunity to join us for a Camp experience maybe 2014 will be the year for you.  Our Camp experiences start at age 12
8 and continue through adult life.  Camp activities vary from camp to camp, but include activities that are age appropriate, promote independence and provide opportunities for making friends.  Deadlines for Campership opportunities through the Division of Developmental Disabilities and the Department of Children and Families have been moved up for 2014 so we encourage you to apply early.

 

Super NOVA (Age 29 and Up)

March 14-16, 2014

September 19-21, 2014

YMCA Camp Ockanickon

1303 Stokes Rd.

Medford, NJ08055 (Burlington County)

 

Bounce Out the Stigma Basketball Camp (Age 8 - 21)

 

Ocean County

July 21-25, 2014

9:30-3:00pm

Toms River Intermediate South

1675 Pinewald Rd.

Beachwood, NJ 08722

 

Bergen County
August 11-15th

9:30-3:00pm

St. Nicholas Greek Orthodox Church

467 Grandview Ave.

Wyckoff, NJ 07481

 

Camp NOVA (Ages 12-18, 19-28)

August 3 - 9, 2014

Linwood McDonald

YMCA 1 Flatbrook Rd.

Sandyston, NJ 07826, NJ (Sussex County)

 

 

 

For additional information and/or to be placed on our mailing list please call Jenna Andolora at 800.336.5843.

          
  
  
Research Opportunity

 

At Northeast Regional Epilepsy Group researchers test new anti-epileptic medications and diagnostic and surgical techniques. Patients who participate in this gain access to new treatments provided at no cost to them.

 

If your child has generalized or partial epilepsy, There are 2 new open-label studies to determine safety, tolerability, and efficacy of oral Lacosamide as Adjunctive therapy. There are ongoing clinical trials for adults as well who has refractory partial epilepsy. For more information visit www.epilepsygroup.com. You may contact Munazza Malik,MD, Research Coordinator, at mmalik@epilepsygroup.com.

 

 

  
School Nurse Training Program
  

The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.

 

Managing Students with Seizures

 

April 16, 2014

4-7pm

 

Dr. Megdad will be co-presenting

 

Centrastate Medical Center

Star and Barry Tobias Ambulatory Campus

Conference Center Auditorium

901 W. Main Street Freehold, NJ 07728

 

Continuing Education Units available. To register, please contact Jenna Andolora at jandolora@efnj.com or 800.336.5843.

  

  
  
Updated Patience Assistance Program on EFNJ Website
  

Please visit Epilepsy Foundation of  NJs website to see the latest Patient Assistance Programs. Individuals with epilepsy may obtain funding through pharmaceutical companies or other organizations for their epilepsy medications through programs listed here. For more information please visit:

http://www.efnj.com/resources/about-epilepsy/patient-assistance-programs/ 

 

 

Mini Grant for Infantile Spasms
  

Infantile Spasms Awareness Week is December 6-12, 2013. In honor of this, Questcor is sponsoring a mini grant to individuals with Infantile Spasms. $1,000 will be offered to offset expenses not covered by insurance including therapies, assisted devices, assessments, and/or home modifications. For more information please contact http://infantilespasmsinfo.org/ 

 

 

  
New Seizure Drug Wins FDA Approval
  

SILVER SPRING, Md. -- Eslicarbazepine acetate (Aptiom) has been approved by the FDA for adjunctive treatment of partial seizures, the agency said Friday.

 

The agent is a prodrug for S(+)-liscarbazepine, which is the active metabolite of an existing seizure medication, oxcarbazepine (Trileptal). Pharmacokinetic studies have suggested that eslicarbazepine acetate is metabolized more slowly, reducing peak levels of the metabolite in circulation, thought to improve its tolerability for some patients.

 

The FDA said it based the approval primarily on three clinical studies, which demonstrated that eslicarbazepine was more effective than placebo in reducing seizure frequency.

 

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Donate Your Car to EFNJ
  

Are you thinking of selling or trading in that old car? Why not donate it instead? As a charitable contribution your vehicle donation could make a big difference. Our process is simple, quick and convenient and we will provide free and timely pick-up of your vehicle donation. Our program is simple ... The better the car, the greater your tax deduction.

 

Please contact Michelle Smith at 732-262-8020 or msmith@familyresourcenetwork.org