Lupus Society of Illinois 

eChronicle August 2016
 We've Moved! 
Our new offices are: 
411 S. Wells St., Suite 710 | Chicago, IL 60607 
Our phone, email and website address will remain the same!  

In This Issue
Quick Links
Upcoming Events
NBC Channel 5's Make A Difference Campaign
See LSI Board Vice Chair Erica Collins, PhD and Vice President Mary Dollear talk about lupus on NBC Channel 5's Make a Difference Campaign 
Make a Difference!
Run the Bank of America
Chicago Marathon
for Lupus Charity Runners!
October 9, 2016

Lupus Charity Runners will again participate in the
Bank of America
Chicago Marathon!

If you would like to join Lupus Charity Runners for this or any other race, contact Mary Dollear at mary@lupusil.org or call 312-648-6053.

Lupus Charity Runner Fundraiser

Save the date to help Lupus Charity Runner Audrey Adalwulf raise funds for LSI!

September 15, 2016
Brixies
9526 Ogden Ave,Brookfield
7:00pm-10:00pm

Awesome raffle prizes and lupus awareness opportunity!

More inforamtion to come!
Upcoming Educational Events 
Thursday September 22, 2016 
6:30pm-7:30pm 
Presented by Dr. Mark Yoder, Rush University Medical Center 
Registered participants will receive toll free information to access the teleconference. 

Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.
 
Educational Event Wrap Up 
 
Past Educational Teleconferences - Recordings
Nutrition and Lupus
Lupus Resources
Lupus & Disability
More!

Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.  
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
CFC #: 21759
A Message from the President & CEO

The summer is almost over and kids are going back to school! The Lupus Society of Illinois is getting ready for a busy and inspiring fall season. A couple of weeks ago, we hosted the 11th annual Western Suburbs Lupus Walk in Naperville. About 600 people came out and have raised over $60,000 so far. What a wonderful day!
 
The last Illinois Lupus Walk is coming up on Sunday, September 18th, 2016 in Lincoln Park in Chicago. This is the largest lupus walk in the area and this year we welcome tremendous new sponsors!
 
Lakeshore Recycling Systems (LRS) got involved with the Lupus Walks in May and have had a huge impact on our walks - the Chicago Lupus Walk specifically. LRS has 5 teams for the Chicago Lupus Walk and the Lakeshore Morton Grove team is currently the third highest fundraising team for the entire event!
 
LRS is just one of several new sponsors for all of our walks this year - new sponsors include Capstone Partners LLC, Comerica Bank, Compactor Rentals of America, Cottingham & Butler, Hirewell, Mallinckrodt, Much Shelist and The Private Bank. These new sponsors join our existing sponsors The Mix/WSHE, Genentech, Hinckley Springs Water and Walgreens.
 
Welcome and thank you to all of our sponsors!
 
Walks enable the LSI to continue our important mission in Illinois. In this issue of the eChronicle, you'll see how busy we have been. Hosting an educational event, participating in a symposium in Springfield, IL, and helping the Rockford Lupus Support group host their 4th annual awareness event. Funds raised make all of these efforts possible.
 
Our next educational event is a teleconference on Lupus and Lung Health presented by Dr. Mark Yoder. The event is coming up on Thursday, September 22, 2016.
 
Last Monday, I had an opportunity to speak to Seniors at Academy Square Apartments about lupus. The LSI is often asked to present to small groups on lupus and whenever possible, we do. Every opportunity to increase lupus awareness is an opportunity to fight lupus.
 
Thanks to our generous sponsors, donors and walkers, we are moving our mission forward.
 
Together we make a difference,
 
Charles Brummell
Meet the Chicago Lupus Walk & Fun Run Ambassador: Cody McCray 

One diagnosis can turn a person's life upside down. Life can become flooded with information, new medication regimens, and days take on an entirely new cadence from what they used to be. But what happens when diagnosis takes years? And what happens when, even after diagnosis, little is known about the disease and the treatments are few and far between? The best of us could become lost or overwhelmed, but for Cody McSellers-McCray and her husband, they found a new strength and a mission to make the world aware of "the great imitator": lupus.

It was 15 years ago when Cody, Chicago Lupus Walk Ambassador, had her first positive ANA (antinuclear antibody test, used to diagnose autoimmune disorders). She was in her senior year of college and dealing with a serious bout of joint issues that left her unable to walk; and in subsequent years she faced a host of serious and diverse symptoms that would later be recognized as "flare-ups" of her condition.

MORE
Bank of America Chicago Marathon  
The Bank of America Chicago Marathon is fast approaching on October 9, 2016.

LSI will again be represented by a strong team dedicated to raising funds and awareness about lupus!

The Lupus Society of Illinois is the only organization in Illinois providing services and programs for individuals living with lupus and those close to them.

The Lupus Society of Illinois' mission is to promote lupus awareness and complement the work of health care professionals by providing personalized resources for the lupus community while supporting research.

LSI's runners come from all walks of life and are all dedicated to our mission. 

Check out our AMAZING runners and their stories here.
 
Rockford Day at the Riverrockford

On Saturday, August 6, 2016, the Lupus Rockford Support Group hosted its 4th Annual Lupus Awareness at the River.  This year's event was headquartered at the YMCA Log Cabin in Rockford and the awareness event was again hosted along the Sinnissippi River.

Over 100 people attended this awareness event.  Festivities included a raffle and items were sold to benefit the LSI.

Thanks to the entire Rockford Lupus Support Group -  especially Shaunda Anderson!

 
Making a Differencesymposium
 
LSI participated in "Lupus in the Heartland" - a symposium presented by IPHA in Springfield, Illinois on August 8, 2016.

The event offered credit hours to health care professionals and was open to the public.

The Lupus Symposium will focus in addressing identification of lupus diagnosis and care, advances in research, significance of lupus among special populations, lupus patient education and an integrative team approach to patient care.  

The event's keynote speaker was Rosalind Ramsey-Goldman, MD, DrPH Northwestern University, Feinberg School of Medicine. Solovy Arthritis Research Society Professor of Medicine.

Other sponsors included
National Association of Chronic Disease Directors
   

American College of Rheumatology

Center for Disease Control and Prevention

Southern Illinois University School of Medicine

Area Health Education Centers - Center for Rural Health Professions - Illinois

Thanks to the IPHA and Patricia Canessa, PhD for their continued dedication in the fight against lupus!
To Live with Lupus We Must Know About Lupus   wsedevent
Western Suburbs Educational Event held on July 30, 2016 reaches people with important information

Dr. Zineb Aouhab presented "To Live with Lupus We Must Know About Lupus."

Dr. Aouhab first presented this comprehensive program in January at the Empowering Lupus Patients Educational Seminar. The event was so well received, we asked if Dr. Aouhab would bring it to the Western Suburbs.

Over 50 people registered and 25 people attended the event. For a copy of the presentation, click here.

Thanks to Dr. Aouhab for her dedication to people living with lupus!
Lupus Research Alliance LRA
NEW YORK, August 23, 2016 --The Lupus Research Alliance congratulates Aurinia Pharmaceuticals on achieving the first positive Phase II study of a greatly needed potential treatment for lupus nephritis.

Up to 60% of people with lupus develop lupus nephritis, a devastating complication that can cause kidney failure and even death. Lupus nephritis is usually treated with heavy doses of steroids and, in most cases, additional potent drugs that suppress the immune system.  People with lupus nephritis are at high risk for heart and blood vessel damage.

Top-line results from the landmark   AURA-LV trial  reported that compared with patients receiving only standard-of-care treatment with immunosuppressants and steroids, those who also received the investigational drug voclosporin were twice as likely to achieve complete remission. Safety issues, however, raised concerns with 13 deaths reported. Aurinia spokespeople noted that a disproportionate number of deaths occurred in Asia and hypothesized that this disparity may be explained by several factors including patient management and exposure to infections as well as the severity of disease in this patient population. Further data analysis is expected to confirm whether adverse effects were related to the drug or to the disease itself.

Our Mission LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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