Lupus Society of Illinois 

eChronicle March 2016
In This Issue
Quick Links
Upcoming Events

March 10
Guarantee Your Spot
at the Bank of America
Chicago Marathon!
October 9, 2016

LSI has a limited number of guaranteed spaces for the Bank of America
Chicago Marathon!

Confirm your spot TODAY!
MORE

Contact Brianna Svec at brianna@lupusil.org.
Bike the Drive
May 29, 2016

Don't miss your opportunity to Bike the Drive for the Lupus Society of Illinois!

Register as an individual through MB Financial Bank's Bike the Drive.

click here or contact Brianna Svec at brianna@lupusil.org.
Shamrock Shuffle
April 3, 2016

Kick off the spring season with the 37th Annual Shamrock Shuffle!

This 8k (4.97 mile) winds its way through the loop - starting and finishing in Grant Park.

For more information click here or contact Brianna Svec at brianna@lupusil.org.
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
Annual Reports

LSI's mission is at the core of our work.  Find out how the LSI has been moving the mission forward by reviewing our Annual Reports from past years.

CFC #: 21759
Spring is here.

We all know it will eventually get here but every year it's a pleasant surprise.
 
For the LSI, Spring means Lupus Awareness Month in May and the beginning of walk season! We have 2 Illinois Lupus Walks in May - the Northern Suburbs on May 15th and the Southern Suburbs on May 21st.
 
Don't miss tonight's Nutrition and Lupus teleconference. You can register until 3pm today - however, you MUST register to get the toll-free call-in information.
 
Events like the Nutrition and Lupus Teleconference are free to participants due in large part to the success of our Illinois lupus Walks.
 
The Illinois Lupus Walks benefit the Lupus Society of Illinois' mission:   To promote lupus awareness and complement the work of health care professionals by providing personalized resources for the lupus community while supporting research.
 
Don't get confused by lupus walks in Chicago raising money for out of state organizations.   
 
You know us. 

The Lupus Society of Illinois has been serving the lupus community for over 40 years.

LSI is the only organization in Illinois serving the needs of lupus patients today.  Funds raised through the Illinois Lupus Walks ensures that our mission endures and we can continue to provide programs and services at NO COST to those in need.
 
Register for one of our Illinois lupus walks today!
 
Sunday, May 15, 2016
Southern Suburbs
Saturday, May 21, 2016
Western Suburbs
Saturday, August 13, 2016
Chicago (Lincoln Park)
Sunday, September 18, 2016

Don't miss the other Lupus Awareness Month activities we've got planned. If you need materials or have ideas for awareness activities in your community, please let us know. We are here to support you!
 
Together we make a difference.

Charles Brummell

Illinois Lutheran High School Basketball Game Spotlights Student with Lupus
Raises Awareness and Funds for LSI
Tess & her mom at the ILHS event
 
Tess, a sophomore at Illinois Lutheran High School (ILHS) was the inspiration for a fundraising and awareness event at her high school in Crete, IL.

The event was held on February 5, 2016 during a basketball game and funds were raised through a raffle, 50-50 raffle and general donations.

Tess had an opportunity to talk to attendees about her experiences.

The event raised over $1,000 for the LSI's mission in Illinois!

Special thanks to Mark Kjenstad for making this event possible!

The Lupus Society of Illinois is a coalition member of the Lupus Research institute.
News You Can Use
Lupus and the Lungs
 
An estimated 50% of people with lupus will develop lung disease at some point during the course of their disease.  For people with lupus, symptoms like shortness of breath, chest pain - or pain in the chest area - pain in your lungs when you take a deep breath, dry cough, coughing that brings up blood or wheezing should be mentioned to your doctor.

There are typically six lung issues that might occur with SLE:
  • Pleuritis
  • Acute Lupus Pneumonitis
  • Chronic Lupus Pneumonitis
  • Pulmonary Hypertension
  • Shrinking Lung Syndrome
  • Pulmonary Embolism
MORE

The Lupus Society of Illinois is a coalition member of the Lupus Research institute.
Navigator Corner 
Support when you need it

The Navigator is available to help the lupus community with any lupus related concerns.

Recently, the Navigator has helped with questions about find a lung doctor, a rheumatologist and a dentist. 

Other questions include help with insurance, individual peer support, and information on how to handle insurance issues.

The Lupus Community Navigator is here to help the lupus community with issues large and small. 

Don't hesitate to contact us with any questions you may have.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Making a Difference
LRI Researcher Identifies a Possible Cause of Lupus.

Important results initiated with a Lupus Research Institute (LRI) Novel Research Grant to Changchun Xiao, PhD of The Scripps Research Institute (TSRI), have identified a molecule that plays a critical role in the development and progression of the disease.

As reported by TSRI, higher than normal levels of this molecule allow autoimmune B cells to avoid destruction by the body's natural control mechanisms and escape into the blood stream to attack the body's own tissues.

MORE

The Lupus Society of Illinois is a coalition member of the Lupus Research institute.
Archived Educational Teleconferences 

LSI archives educational teleconferneces on our website here.

LSI's next teleconference is scheduled for Thursday, March 10, 2016.  Register today! 
Medical Advisory Board Member News 
Meenakshi Jolly, MD, MS, publishes article in journal LUPUS

LSI's own Medical Advisory Board member Dr. Meenakshi Jolly published an article in the February issue of LUPUS Journal. 

An abstract of her article "Quality of life in systemic lupus erythematosus: description in a cohort of French patients and association with blood hydroxychloroquine levels" can be found on PubMed.

The objectives of the research was to assess for the first time the association and predictive value of blood HCQ levels towards health-related quality of life (HRQOL) in SLE.

Read the abstract here.
Educational Events  
Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.   
 
Presented by
Marla Brodsky, RD, LD, BCIM
Thursday, March 10, 2016 | 6:30pm
Registration Required for toll free call-in number

Presented by: Zineb Aouhab, MD and 2nd year Rheumatology Fellow at Northwestern University
Naperville Library - 95th St.
3015 Cedar Glade, Naperville IL 60564
Saturday, July 30, 2016 - tentative date
9:30am - Registration
10:00am - Program begins
Registration Requested 
The Lupus Society of Illinois is working with Dr. Rosalind Ramsey Goldman and Northwestern University to identify the concerns, needs and interests of African-American lupus patients and their caregivers.  We are particularly interested in learning about access to care and support needs in the African-American community.  We invite African-American individuals with lupus and African-American caregivers for those with lupus to participate in a small focus group discussion.

For more information and to find out if you are eligible to participate, please contact Mary Dollear at mary@lupusil.org or by phone at (312) 648-6053.

Funded by the US Department of Health and Human Services Office of Minority Health
Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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