Lupus Society of Illinois 

eChronicle  August 2015
In This Issue
Quick Links
Upcoming Events

August 8
Western Suburbs Illinois Lupus Walk

August 12
Educational Teleconference:Lupus & Disability

September 12
Lupus & the Musculoskeletal System Educational Coffee

September 27
Chicago Illinois Lupus Walk

October 11
Bank of America
Chicago Marathon

November 12
Teleconference: Resources for the Lupus Community

March 10
2015 Illinois Lupus Walks!

Thanks to the 800+ participants who came out to the Southern & Northern Suburbs Illinois Lupus Walks last month!

The walk has brought in over $80,000 so far!  What an amazing accomplishment!

Don't miss one of the largest and most inspiring lupus events of the year!

Join us at one of our remaining  events - register today!
Western Suburbs -
August 8, 2015
Chicago (Lincoln Park) - September 27, 2015

Find out MORE!
Bank of America
Chicago Marathon
LCR

Running the
Bank of America
Chicago Marathon?

Want to run for a reason?

Join Lupus Charity Runners!

Contact Brianna Svec.
Raven & Shantel Lauer 
Western Suburbs Illinois Lupus Walk Ambassadors

Raven Lauer was diagnosed with lupus in August of 2011 after a year of symptoms at 14 years old. Together, they've been fighting to raise awareness ever since. "My daughter has always amazed me," says Shantel, "but seeing her persevere in the face of lupus - now she's my hero." 
Join a Committee Committees are great opportunities to meet others in the lupus community. 

Contact LSI to find out more about ongoing committees and how you can help.
LRI Research News 
 
Epratuzumab Results Can Help Build Better Trials for Lupus Learnings from two epratuzumab studies will inform progress in this complex autoimmune disease
 
The Lupus Research Institute (LRI) is disappointed but undaunted by the results announced yesterday by UCB of two clinical trials evaluating the investigational drug epratuzumab for systemic lupus erythematosus (SLE). 

In the Phase 3 trials (EMBODY™ 1 and EMBODY™ 2), epratuzumab did not significantly reduce symptoms of lupus compared with placebo, when added to standard of care therapy. Epratuzumab is a monoclonal antibody that targets CD22, a protein that modulates B-cells which are key components of the immune system.

MORE 
CFC #: 21759

A Message from the President & CEO

 

It's happened - LSI has announced our first event in 2016!  

 

We've been working hard on our educational events - our focus is always on providing expert information on lupus-related issues. The newly announced educational events are:

These events are provided at NO COST to participants thanks in large part to funds raised through the Illinois Lupus Walks.

 

The 10th Annual Western Suburbs Illinois Lupus Walk is this Saturday in Naperville. Last week, we named this year's Western Suburbs Lupus Walk Ambassadors as Raven and Shantel Lauer. I'm sure their story will resonate with everyone in the lupus community. A story like the Lauer's is why we work so hard to serve the lupus community in Illinois - and the Lupus Walks make achieving our mission possible.

 

Thanks to everyone who has already helped make 2015 such a successful year. We hope to see you this Saturday in Naperville or on September 27, 2015 in Lincoln Park for the Chicago Lupus Walk.

 

As we move towards fall, the LSI's Lupus Charity Runners program is picking up steam! This year, LSI has 25 runners taking on the Bank of America Chicago Marathon on behalf of lupus. Running 26.2 miles is no small task and we can't thank this group of dedicated individuals enough for their commitment to our mission.

 

There's still time for runners registered for the Bank of America Chicago Marathon to join Lupus Charity Runners! For more information contact Brianna Svec at (312) 542-0006.

 

With so many activities coming up, we certainly hope to see you at one of our Walks or Educational Events! 2016 is right around the corner and we're planning to make it another successful year for the Lupus Society of Illinois.

 

Together we make a difference.

 

Charles Brummell

Donations Making A Difference
Funds raised through the Illinois Lupus Walks and general donations are used to achieve LSI's mission in
Illinois.  T hese are just some of the examples of how LSI turns donation dollars into service to the lupus community.
News You Can Use 
Transportation

Recently, the LSI was contacted with a question about transportation home from an out-patient service.  The patient was told she could not drive herself home from the procedure.

Hospitals may provide complimentary transportation from such a procedure.  Contact your hospital directly for information.

Some health insurance plans also include transportation for its members.  Be sure to contact your insurance company to find out if this service is offered to you.
Navigator Corner 
Support when you need it

The Lupus Society of Illinois offers support on virtually any lupus related topics.  Over the last few weeks, LSI has received questions on everything from support groups, medications and physician referrals. 

The LSI's Lupus Community Navigator received a call from a member of the community whose girlfriend was diagnosed with lupus.  She was also told by a doctor she had Sickle Cell Anemia and a second doctor told her she did not have Sickle Cell Anemia.

Although many people with lupus will have an overlapping disease, Sickle Cell is not considered one of them.  After researching Sickle Cell Anemia and reaching out to a local organization, LSI found out Sickle Cell Anemia is genetic and present at birth however it can be diagnosed later in life and the disease can impact internal organs. 

The Navigator advised that the patient see a hematologist for a blood test to determine a Sickle Cell diagnosis and if the patient was born after 1989, to request a "newborn screening result" which would include that information. 

Finally, the LSI referred the individual to a hematology clinic and the organization working with the Sickle Cell Anemia community.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Impact: Lupus 
Making A Difference

Every month, LSI provides 2 grants up to $400 each to cover lupus-related medical expenses.  Below is part of a letter received from a recent recipient:

 

To the Lupus Society of Illinois,

 

I very much appreciate this foundation and the help that you are providing not only to myself but to all of the people you are able to help out here in Illinois that are living with lupus. One (medical) bill paid is one less thing to stress about and for us who have lupus know that stress can be the number one trigger for flare ups that can lead to more serious conditions.

 

 Click here for more information on the Living With Lupus Grant. 

Educational Events 
 
Lupus & Disability  Teleconference 
Presented by Jeffrey Rabin of Jeffrey Rabin and Associates
Wednesday, August 12, 2015 | 6:30pm

Jeffrey Rabin of Jeffrey Rabin and Associates will present on Lupus & Disability via teleconference for LSI.

Registration is required.

Lupus and the Musculoskeletal System Educational Coffee
Presented by Dr. Meenakshi Jolly
Saturday, September 12, 2015 - Naperville, IL
9:30am  - Registration/Coffee
10:00am - Presentation begins

Over 50% of people with lupus include joint pain as one of their first symptoms. Over 90% of people living with lupus will experience joint and/or muscle pain.

Join us for this seminar detailing the connection between lupus and the musculoskeletal system.

For more information and to register click here.

Resources for the Lupus Community Teleconference
Presented by the Lupus Society of Illinois
Thursday, November 12, 2015 | 6:30pm

Having lupus is challenging.  Misinformation is prevalent and the varied needs can make finding help difficult-especially those who are living with a chronic illness.

Join us  for the Resources for the Lupus Community teleconference and learn about practical opportunities available to you from the LSI, a reliable organization that has been serving Illinois' lupus community for over 42 years.

Registration Required.  For more information and to register click here.  
 
Nutrition and Lupus Teleconference Presented by Marla Brodsky, RD, LD, BCIM
Thursday, March 10, 2015 | 6:30pm

"Good nutrition" is the only "lupus diet" advocated - but what does that mean?  What about restricting gluten and dairy?  What about vitamins?  How do I know if I have an intolerance to a certain food?

Join us   for the Nutrition and Lupus educational teleconference as long-time supporter and Registered Dietician Marla Brodsky talks about what constitutes good nutrition and answers your questions.

Registration Required.  For more information and to register click here.
 
Our Mission
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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