Lupus Society of Illinois 

eChronicle May 2016
In This Issue
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Lupus Awareness Month
 
May is Lupus Awareness Month and you're invited to help increase lupus awareness in YOUR community!

LSI has a variety of activities planned and we encourage you to spread awareness and let us know how you're making a difference in your community!

Click here for more information!

Look for next week's announcement on other Lupus Awareness Month Activities like the Northwestern Twitter Chat, Windy City Live activity, fundraisers and more! 
Make a Difference!
Run the Bank of America
Chicago Marathon
for Lupus Charity Runners!
October 9, 2016

LSI welcomes runners to the Lupus Charity Runners Team!

Confirm your spot TODAY!
MORE

Contact Brianna Svec at brianna@lupusil.org.
Bike the Drive
May 29, 2016

Don't miss your opportunity to Bike the Drive for the Lupus Society of Illinois!

Register as an individual through MB Financial Bank's Bike the Drive.

click here or contact Brianna Svec at brianna@lupusil.org.
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
CFC #: 21759
Lupus Awareness Month is in full swing!  LSI has provided Lupus Facts of the Day through social media, continued our "I fight for lupus because" campaign, provided educational materials to lupus advocates, found volunteers for health fairs and taken advantage of every opportunity possible to raise awareness of lupus.

I've been on the radio several times the last couple of months - tonight you can hear me on Real Talk, Real People with Chat Daddy on WVON 1690AM at 7:35pm.  You can also hear me talk about lupus on WKKC 89.3FM tomorrow at 9am

LSI has supported organizations like Northwestern University Medical Center and Dr. Rosalind Ramsey Goldman's office who hosted a Twitter Chat to recognize World Lupus Day.

My favorite aspect of any lupus event is always the people.  On Wednesday - World Lupus Day - LSI orchestrated an effort to get the television program Windy City Live to mention lupus awareness on the air.  Wednesday morning my wife and I showed up along with dozens of lupus supporters.  We are so grateful to count on such tremendous support for all lupus activities!

Speaking of lupus activities - the first of the four LSI Lupus Walks is Sunday in the Northern Suburbs.  The Southern Suburbs walk is next Saturday in Olympia Fields.  Both events are already larger than last year's event and we expect big turnouts in support of lupus!  

LSI relies on the success of the Illinois Lupus Walks to continue to provide programs and services to the entire lupus community in Illinois.  We couldn't carry out our mission - supporting an LSI sponsored Illinois Lupus Walk is supporting the estimated 65,000 Illinois residents with lupus.

Register for one of the Illinois Lupus Walks today!
Northern Suburbs
(Vernon Hills)
Sunday, May 15, 2016   
Southern Suburbs
(Olympia Fields)
Saturday, May 21, 2016
Western Suburbs (Naperville)
Saturday, August 13, 2016   
Chicago (Lincoln Park)
Sunday, September 18, 2016

We hope to see you there.    

Together we make a difference.

Charles Brummell
2016 Northern Suburbs Lupus Walk Ambassadors!
Tracy & Kevin Juggan make a difference

This year, the Lupus Society of Illinois (LSI) will host the 9th annual Northern Suburbs Illinois Lupus Walk on May 15th, 2016, with area resident Kevin Juggan and his family as its ambassador. Kevin was diagnosed with lupus two years ago.  Since then his family has committed themselves to supporting the Lupus Society of Illinois (LSI) and the annual Lupus Walks. Tracy Juggan, Kevin's mom, seeks to help others understand that, though her son doesn't look visibly ill, he is very sick on the inside, and to bring to light the private struggle of someone with this type of illness. They also hope to continue to raise awareness and funds for lupus research to contribute to someday finding a cure.

Full Story
Making a Difference
Lupus Support Group Leader Luncheon
Lupus Champions come together to celebrate
Kanefus Walker, Robertha McNeil, and Lena Lopez

On Saturday, May 7, 2016, the LSI's Lupus Support Group Leaders had a luncheon to celebrate their accomplishments and to discuss their experiences.

The event was chaired by Kanefus Walker, Hazel Crest Lupus Support Group leader.

"It was an awesome experience being able to connect with other support group leaders and I look forward to other opportunities for the support group leaders to come together in fellowship," said Kanefus.

Thanks to Kanefus and all of the LSI's Lupus Support Group Leaders for making a difference

Click here for photos 
LSI Junior Board Hosted Zumba Night
The LSI Junior Board hosted a Zumba event on Sunday April 24, 2016.

The event was a HUGE success! 19 people participated and benefitted from this free event!

The instructor, Jillian Garza, donated her time and had great energy. Jillian instructed everyone with low impact dance routines and cardio, and she was super upbeat!

The LSI Junior Board is hosting another event June 11, 2016. Stay tuned for more information on this still developing event.
 
Questions about the Junior Board? Contact Brianna Svec at 312-542-0006 or call 312-542-0006.
Lupus Story on WGN

Thanks to LSI Medical Advisory Board Member Dr. Meenakshi Jolly and Stacey Jaimes for sharing their story on WGN TV!

Check out the WGN story here.
Read Stacey's story on LSI's Story Sharing site here.
NBC Channel 5's Make A Difference Campaign
   
See LSI Board Vice Chair Erica Collins, PhD and Vice President Mary Dollear talk about lupus on NBC Channel 5's Make a Difference Campaign 
Lupus On the Radio

On April 13, 2016, LSI's President & CEO Charles Brummell was interviewed for a segment on WLIT with Brooke Hunter.  You can listen to the segment here.

Tune in to WVON (1690AM) on Thursday, May 12 at 7:35pm to listen to Charles and his wife Shirley talk about lupus on Real Talk, Real People with Chat Daddy.
News You Can Use
Legal Services

LSI recently received a call asking for legal assistance. 

LSI refers questions regarding disability to our past educational activities (click here) or to attorney Jeff Rabin at Rabin, Kodner & Brown.  Jeff has been a long time supporter of the LSI and presented at numerous educational events.  

Other legal services available in Illinois include Illinois Legal Aid (http://www.illinoislegalaid.org/)

MORE
Educational Events   
 
Presentado por: Karen Mancera-Cuevas, MS, MPH, CHES
Fecha: junio 1,  2016
Hora: 6:00pm-8:00pm
Registro: 6:00pm
Se inicia el evento: 6:30pm
Casa Michoacán
1638 S. Blue Island Ave.
Chicago, IL 60608
Para inscribirse y obtener más información, póngase en contacto con taurean@lupusil.org o llame al 312-542-0004.   

Presented by: Zineb Aouhab, MD and 2nd year Rheumatology Fellow at Northwestern University 
Naperville Library - 95th St.
3015 Cedar Glade, Naperville IL 60564
Saturday, July 30, 2016 - tentative date
9:30am - Registration
10:00am - Program begins
Lupus and Lung Health Educational Teleconference
Thursday September 22, 2016 
6:30pm-7:30pm 
Presented by Dr. Mark Yoder, Rush University Medical Center 
Registered participants will receive toll free information to access the teleconference. 

Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.
 
Our Mission LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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