Lupus Society of Illinois 

eChronicle January 2016
In This Issue
Quick Links
Upcoming Events

January 30
Empowering Lupus Patients Educational Seminar

March 10
Teleconference: Nutrition and Lupus

April 3
Bank of America Shamrock Shuffle

May 14
Stephanie Wetzel Charity Golf Outing

May 21
Southern Suburbs Illinois Lupus Walk

May 22
Northern Suburbs Illinois Lupus Walk

August 13
Western Suburbs Illinois Lupus Walk

September 18 (tentative)
Chicago Illinois Lupus Walk

October 9
Bank of America
Chicago Marathon
Shamrock Shuffle
April 3, 2016

Kick off the spring season with the 37th Annual Shamrock Shuffle!

This 8k (4.97 mile) winds its way through the loop - starting and finishing in Grant Park.

For more information click here or contact Brianna Svec at brianna@lupusil.org.
Annual Reports

LSI's mission is at the core of our work.  Find out how the LSI has been moving the mission forward by reviewing our Annual Reports from past years.

Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
Our Mission
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
CFC #: 21759
A Message from the President & CEO

Happy New Year! I hope everyone's holiday season was full of joy. I want to start the New Year with a special thank you to all involved in the 4th annual Holiday Dreams: Cure for Lupus Dinner Dance-particularly the SSLO and especially Regina Casto, Don Ransford and Hettie Collins. This terrific event raises funds and awareness for lupus and the LSI.
 
The LSI is very excited because we have launched our 2016 Illinois Lupus Walks!
 
 
We need your help to make these the best walks ever! Planning committees are getting started and we welcome your participation! Please let us know if you would be interested in joining a committee!
 
You know us. We are right here in Chicago and we continue to serve as the ONLY organization in Illinois serving the needs of the lupus community TODAY. Our mission - since 1973 - has included funding research and offering programs and services that meet the needs of people living with lupus.
 
Speaking of meeting the needs of people living with lupus - the Empowering Lupus Patients Educational Seminar is scheduled for Saturday, January 30, 2016. We also have an Educational Teleconference - Nutrition and Lupus - scheduled for March 10, 2016 - both are open for registration.
 
These educational events are possible thanks to the tremendous support of our Illinois Lupus Walks.
 
I'd also like to highlight the efforts of Kay Mimms - if you've been to an event on the South Side of Chicago or Southern Suburbs, you've likely seen Kay and her husband Cecil. Kay recently published a book " Fighting Lupus Battles: Hope For A Cure" about lupus and a portion of the proceeds will come to the LSI. You can purchase the book here or contact Kay directly via email here.
 
I wish everyone a happy, healthy and successful 2016! I hope to see you at one of our upcoming educational events and the Illinois Lupus Walks!

Together we make a difference.
 
Charles Brummell  
LRI Update

LRI Advocacy Goals for Patients Realized in Congressional Omnibus Bill Passed by Congress, Signed by President

Thanks to persistent advocacy by Lupus Research Institute (LRI) supporters and others, lupus patients have much to celebrate in the 2015 Omnibus Appropriations Bill released by Congress! The Bill passed in the House of Representatives and the Senate and was signed by President Obama.

Here's what the legislation includes:
  • The National Institutes of Health (NIH) would receive the full increase that the LRI and others requested -- $2 billion to advance biomedical research, for a total funding level of $32 billion in 2016.   
  • $2 million allotted to further the Lupus Initiative, the lupus provider education program conceived by the LRI and the federal government to alleviate racial disparities in lupus diagnosis and care.  
  • Half of this funding will launch a new effort to ensure that minorities are proportionately represented in clinical trials and at the LRI's request, will involve lupus stakeholders in the program design and implementation.
  • The Department of Defense research program again includes lupus as one of the designated diseases covered by the proposed $278.7 million budget.  
  • $6 million is budgeted for the Lupus Patient Registry at the Centers for Disease Control and Prevention.
- See more at: http://www.lupusresearchinstitute.org/lupus-news/2015/12/16/lri-advocacy-goals-patients-realized-congressional-omnibus-bill-passed#sthash.oOVGnjUK.dpuf
Navigator Corner 
Support when you need it

New to Lupus
The Lupus Navigator often gets calls from people newly diagnosed with lupus or family of people newly diagnosed with lupus. 

Being newly diagnosed with a chronic illness can be frightening.

After answering any immediate questions the individual may have, the first thing we like to do is send out general information about lupus and the programs and services of the LSI.

We also suggest people begin to establish a "lupus network" by attending a support group, taking advantage of the Individual Peer Support Program, attending a walk or participating in an educational event.

Finding a group of people who understand what lupus is and learning from their personal experiences is an invaluable resource for anyone living with lupus and is at the center of what the LSI tries to accomplish through our activities.

The Empowering Lupus Patients Educational Seminar on January 30th is a terrific opportunity to build your lupus network.  This year's event includes a panel discussion with individuals from the lupus community - both people living with lupus and the caregivers - to provide first hand information about how to live with the disease.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
News You Can Use 
Support when you need it

Lupus Apps
Technology is a terrific thing - especially if it helps you manage a chronic illness and communicate with your doctor.

In the last several years, several Android and iOS apps have been created to assist people living with lupus.  We did a bit of research and found some apps you might be interested in.  Some of the apps are free.

We are providing this information for you but we aren't advocating for any app.  As always, our hope is to provide you with information to help manage lupus effectively.

Click here for more.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Educational Events  
Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.  

Saturday, January 30, 2015 
10:00am-11:00am Lupus and Clinical Trials 
11:15am-12:15pm Lupus Basics 
12:30pm-1:30pm Living Well With Lupus Panel Discussion

WAC L203, Butler Reception Room 
Saint Xavier University 
3700 West 103rd St. 
Chicago, IL 60655  
Presented by
Marla Brodsky, RD, LD, BCIM
Thursday, March 10, 2016 | 6:30pm
Registration Required for toll free call-in number 
  
Archived Educational Teleconferences 

LSI archives educational teleconferneces on our website. Download the Resources for the Lupus Community teleconference here.

LSI's next teleconference is scheduled for Thursday, March 10, 2016.  Register today! 
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