Lupus Society of Illinois

eChronicle December 2016
 We've Moved! 
Our new offices are: 
411 S. Wells St., Suite 710 | Chicago, IL 60607 
Our phone, email and website address will remain the same!  

In This Issue
Quick Links
Upcoming Events

Making A DifferenceTawny


LSI supporter shares her story to educate thousands with lupus!
Give the Gift of Hope

You know that when you contact the LSI, you will be talking to someone who can help you move forward on your lupus journey - with personal assistance.

REMEMBER LSI IN YOUR YEAR END GIVING
Bank of America Shamrock Shuffle
Registration is open!

Join the Lupus Charity Runners for the Bank of America  Shamrock Shuffle 8K!

RACE DAY: Sunday, April 2, 2017
LOCATION: Chicago-Grant Park
TIME: 8:20am Find out more here.
Have you used creativity to cope with lupus? 

If so, we want to hear from you!

Please email Mary with your name and contact information and a bit about how you've used creativity to cope with lupus.

Questions?  email Mary or call 312-648-6053.
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
CFC #: 21759
Our Mission 
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
Annual Reports
A Message from the President & CEO

It's here.  December.  The holidays are days away and so is 2017.

We hope that as you look back on 2016, LSI will have been a part of your year. If you have attended an educational event or support group, participated in a walk or a run, found information on our website or raised awareness during Lupus Awareness Month, we thank you.

You have helped make 2016 a year to remember!

We're getting our annual report ready and next week we'll share information on our accomplishments - and by "our" I mean the entire lupus community. 

Because together we make a difference.

We hope you'll enjoy this final eChronicle of 2017.  Our first Bank of America Chicago Marathon runner has set up her page - Cassandra Siegfried's inspiring story is below.

We also highlight Lakeshore Recycling Systems for promoting lupus awareness in the company's newsletter.

And the Empowering Lupus Patients Educational Seminar - our first educational event for 2017 - is open for registration.  You don't want to miss this event.  Topics are Lupus and the Workplace and Legal Issues and Lupus.  We hope we'll see you there!

Last week, many of you received an email featuring a video of LSI supporter Tawny Smith.  This outstanding video will play in doctor's offices across the country - reaching thousands with lupus information.  LSI was instrumental in facilitating this awareness opportunity.  Just one more way LSI makes a difference in the lupus community.

Our Holiday Appeal is going strong - thanks to everyone who has donated already!  If you haven't yet - it's not too late!  Your donations enable us to continue to provide outstanding educational events to everyone in the lupus community - including personal support.

Together we make a difference,

Charles Brummell 
Cassandra SiegfriedCassandra
Lupus Charity Runner shares her reason for running

My sister Elisha Siegfried Lopez passed away on January 24, 2016 at the age of 32. She was diagnosed with Lupus several years ago and suffered daily from it. She had her good and bad days as people with Lupus do. One day she decided she would become a Lupus Support Group Leader in New Jersey to help others like her. She put everything she had into that and met some great people along the way until she became too sick to continue on. She always supported everything I chose to do even if it didn't seem like a great idea at first she still went with it.

FULL STORY
2017 Bank of America
Chicago Marathon


If you weren't one of the lucky runners who won a spot in the Bank of America Chicago Marathon - don't despair!

LSI has spots for you!

Not only do you get to participate in an internationally renown race - you can raise funds and awareness for lupus as well!

SPOTS ARE LIMITED!  Click here to find out more and reserve your spot!

THANK YOU!



For more pictures from the Bank of America Chicago Marathon click here!
Navigator Corner
Affordable Health Care

Enrollment or changes to your 2017 Marketplace health insurance.  **Make sure your doctor(s) are included in whichever plan you choose.

Important dates to note:

November 1, 2016: Open Enrollment started - first day to enroll, re-enroll, or change a 2017 insurance plan through the Health Insurance Marketplace. Coverage can start as soon as January 1, 2017.

December 15, 2016: Last day to enroll in or change plans for coverage to start January 1, 2017.

January 1, 2017: 2017 coverage starts for those who enroll or change plans by December 15.

January 31, 2017: Last day to enroll in or change a 2017 health plan. After this date, you can enroll or change plans only if you qualify for a Special Enrollment Period.

For more information on obtaining insurance, contact Get Covered Illinois at https://getcovered.illinois.gov/en.

Need help?  Contact the Lupus Community Navigator!

If you have any questions about sharing your story, please contact Mary Dollear at mary@lupusil.org or 312-648-6053.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Past Educational Events

LSI records and archives our Educational Teleconferences. 

Visit the Programs & Services section of our website here.

Archived topics include:
  • Lupus & Fibromyalgia presented by Dr. Katz
  • Lupus & Lung Health
  • Lupus and Nutrition
  • Lupus Resources
  • and more! 
Making A Difference  LRS
Lakeshore Recycling Services

Educating your community about lupus is a great way to MAKE A DIFFERENCE in the fight against lupus.

Lakeshore Recycling Systems published information about lupus in its Fall 2016 newsletter.

Thanks to everyone at Lakeshore Recycling Systems for Making A Difference!

Read the article here.
 
Upcoming Educational EventELPE
Empowering Lupus Patients

Empowering Lupus Patients Educational Seminar
Saturday, January 28, 2016
St. Xavier Univeristy
3700 W 103rd St.
Chicago, IL

10:00am-11:00am Lupus and the Workplace
Presented by Erica Collins, PhD
About this presentation
Should I tell my employer about my lupus diagnosis?  What can I expect from my employer?  What can I expect from my co-workers? Working when you have a chronic disease like lupus can be challenging.  Find answers to these and other Human Resource issues during this informative presentation.

11:15am-12:15pm Lupus and Legal Issues
Presented by Hettie Collins
About this presentation
What is the Americans with Disabilities Act?  What is the difference between a Will and a Living Will?  Lupus and any chronic illness can create legal questions that can cause stress.  Find out more about lupus and legal issues at this informative presentation

12:30pm-1:30pm Living Well With Lupus Moderated Panel Discussion
Featuring leaders in Illinois' lupus community
About this presentation
How have others learned to live well with lupus?  
Join us as we learn from others in the lupus community who have learned how to live well  with lupus.   

There will be two fifteen minute breaks.
Light refreshments provided.

Registration Requested!  Click here to register.
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