Lupus Society of Illinois 

eChronicle  December 2015
In This Issue
Quick Links
Upcoming Events

December 12
Holiday Dreams: Cure for Lupus Dinner Dance presented by the South Side Lupus Organization

January 30
Empowering Lupus Patients Educational Seminar

March 10
Teleconference: Nutrition and Lupus

April 3
Bank of America Shamrock Shuffle

May 21
Southern Suburbs Illinois Lupus Walk

May 22
Northern Suburbs Illinois Lupus Walk

August
Shamrock Shuffle
April 3, 2015

Kick off the spring season with the 37th Annual Shamrock Shuffle!

This 8k (4.97 mile) winds its way through the loop - starting and finishing in Grant Park.

For more information click here or contact Brianna Svec at brianna@lupusil.org.
Giving Tuesday

For the 4th consecutive year, the LSI participated in #GivingTuesday - a charitable variation of Black Friday and Cyber Monday - #GivingTuesday is the first Tuesday after Thanksgiving. 

LSI invited participants to donate and post #Unselfies - and we are so grateful for everyone who used this opportunity to support LSI and lupus awareness!

THANK YOU!
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
Archived Educational Teleconferences 

LSI archives educational teleconferneces on our website. Download the Resources for the Lupus Community teleconference here.

LSI's next teleconference is scheduled for Thursday, March 10, 2016.  Register today! 
Our Mission
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
CFC #: 21759
A Message from the President & CEO

Dear Friends,

You know us because for over 40 years the Lupus Society of Illinois has positively impacted the lupus community.   

You know us because, unlike other lupus organizations, we live and work in Illinois - we are your neighbors and part of the Illinois lupus community - our community.  We support you with comprehensive programs and services like the Living with Lupus Grant financial assistance program and the Individual Peer Support program. 

You know us from our educational events.  Our events connect participants with experts on relevant lupus topics.  Our live educational events include opportunities to network with others in the lupus community and our teleconferences are recorded and archived on our website to benefit a larger audience. 

You know us from our Illinois Lupus Walks - the oldest lupus walks in the state - that increases lupus awareness with thousands who attend, donate or learn about lupus.   

You know us from our capacity to work with health care professionals to increase lupus awareness by partnering on grants like the Teaching Fellows in Lupus Project that brought lupus education to health care professionals throughout Cook County.  You know us because we support you.   

This holiday season, we ask that you support us so that we can continue to support you.  

Together we make a difference,     

Charles Brummell 
President  & CEO  



Volunteer Awards Luncheon     
Karen Mancera Cuevas & Charles Brummell
Will LaBoy, Maureen Faille & Julie Folger
LSI's Support Group Leaders
On Saturday, November 21, 2015, LSI hosted our semi-annual Volunteer Awards Luncheon recognizing the outstanding accomplishments of some of our volunteers.

The first major snow of the season couldn't keep most of our awardees and supporters away. 

We hope everyone enjoyed the event as much as we enjoyed seeing so many of our wonderful volunteers!

Pictures from the event are available here.

Our Awardees are: 
Shaunda Anderson  
Lena Lopez 
The Horan Family 
Kayrene & Cecil Mimms 
Stephanie Russell-Davis 
Meenakshi Jolly, M.D. 
Wanda Ball-Turner 
Maria Robles 
Liz Guzman 
Kanefus Walker 
Julie Folger 
Maureen Faille & Will LaBoy 
Felicia Yates 
Karen Mancera-Cuevas 
Kim & Eric DesBiens 
Annastasia Smith 
Mason Souza

Annual Reports

LSI's mission is at the core of our work.  Find out how the LSI has been moving the mission forward by reviewing our Annual Reports from past years.

Navigator Corner 
Support when you need it

Support Groups and Support Group Leaders
 
LSI's support groups are run by extraordinary volunteers and for people with a common life situation and comprised of people willing to talk freely and to trust openly in the good will of other group members.  A support group provides a source of information, a place to be yourself and is open to the public.

Support groups are not professional counseling/therapy sessions, 12-step programs, or a substitute for medical treatment.

LSI's Support Group Leaders are volunteers who take on the responsibility of planning meetings, coordinating locations and speakers and generally making themselves available to help others in their community with lupus related concerns.

LSI is grateful for our Support Group Leaders and recognize them today:
Tari Ambler
Shaunda Anderson
Nancy Beal
Karen Brown
Bettie Carter
Kelli Comise
Maureen Faille
Chris Fragassi
Maria Gallardo
Mary Gold
Lena Lopez
Karen Mancera-Cuevas
     MS, CHES
Robertha McNeil
Lori Miles
Christine Mooney
Maria Robles
Stephanie Russell-Davis
Charlene Thigpen
Kanefus Walker

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Impact: Lupus 
Making A Difference
Dr. Aman Kugasia, who worked on the project, poses in front of
the ACR Conference Poster
 
Dr. Meenakshi Jolly from Rush University Medical Center approached LSI with an opportunity to participate in a research project - an online survey of SLE (systemic lupus erythematosus) patients and physicians taking care of SLE patients to determine the patterns of medical care provided to SLE patients.
 
LSI was happy to work with Dr. Jolly and her team to develop the survey and send it out to the appropriate audiences.
 
The study was concluded and the abstract accepted at the American College of Rheumatology conference in San Francisco in November.  The manuscript is being completed for publication.
 
This is one example of how the LSI supports the lupus community.
Educational Events  
Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants.  

Saturday, January 30, 2015 
10:00am-11:00am Lupus and Clinical Trials 
11:15am-12:15pm Lupus Basics 
12:30pm-1:30pm Living Well With Lupus Panel Discussion

WAC L203, Butler Reception Room 
Saint Xavier University 
3700 West 103rd St. 
Chicago, IL 60655  
Presented by
Marla Brodsky, RD, LD, BCIM
Thursday, March 10, 2016 | 6:30pm
Registration Required for toll free call-in number 
  
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