Lupus Society of Illinois 

eChronicle May 2015
In This Issue
Quick Links
Upcoming Events

Educational Teleconference: Lupus & Bone Health

May 24
MB Financial's Bike the Drive

May 30
Stephanie Wetzel Charity Golf Outing

May 31
Northern Suburbs Illinois Lupus Walk

June 3
Spanish Language Educational Event

August 8
Western Suburbs Illinois Lupus Walk

September 27
Chicago Illinois Lupus Walk
Mother's Day
It makes sense that May is Lupus Awareness Month since Mother's Day is also this month. This year, World Lupus Day is the same as Mother's Day - which makes both more special. I know many mothers with lupus - I'm married to one - and I am awestruck by how they manage to do everything they do while living with the effects of lupus. If ever the word "champion" was appropriate, it is for these women.

 

If you'd like to make a donation in honor of Mother's Day, LSI will send a note to acknowledge your generous gift.

Bank of America
Chicago Marathon
LCR
Didn't win the
Bank of America
Chicago Marathon
Lottery?

You can STILL run for LSI!

For the first year, LSI has post-lottery spots!

Act fast, spots are going quickly!

For more information contact Brianna Svec.
Join a Committee

Committees are great opportunities to meet others in the lupus community. 

Contact LSI to find out more about ongoing committees and how you can help.
Volunteer!
Help make a difference this Lupus Awareness Month by helping at the LSI's office!  LSI needs volunteers interested in coming into the office and making telephone calls. 
  Contact Taurean Jackson today.
CFC #: 21759
Our Mission
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.

A Message from the President & CEO

 

Lupus Awareness Month is upon us. If you haven't already I encourage you to take a look at the materials and opportunities available to you. We have stickers and flyers, posters and wristbands, ideas and opportunities. Our Illinois Lupus Walks are a terrific way to make a statement for your support of lupus awareness.

 

A new opportunity this year is the "I fight for lupus because" social media campaign. It only takes about 5 minutes but the reach can be huge. We ask that you complete the sentence "I fight for lupus because" and post a photo of you holding up your answer to social media using the hashtag #LSILupusAwareness.

 

 

It's fun and easy and we even have a downloadable sign for you to use. All participants will be up for a prize at the end of the month.

 

We're also planning to reach 1,000 "Likes" on Facebook this month, so if you haven't "Liked" us yet, now is the time!

 

Another option for Lupus Awareness Month is joining Lupus Charity Bikers for MB Financial's Bike the Drive. For the 2nd year, LSI will have a team and we've grown every year! Bike the Drive is on May 24th this year.

 

We are constantly looking at new and better ways to reach our constituents. In this edition of the eChronicle you'll read about our Healthcare Professional Outreach efforts. There is one training remaining and it was a location solicited by LSI.

 

We also have information about what some of our constituents are doing to raise awareness in their communities. Whatever you do to recognize Lupus Awareness Month, we hope you'll share your activities with us.

 

Together we make a difference,

Charles Brummell

 

Lupus Awareness Month  

Lupus Awareness Month is the time of year when the lupus community takes time to educate their families, workplaces and neighborhoods about lupus.  Education can be as modest as sending an email to your friends and family about lupus to organizing a Lupus Awareness Day at your office.  We encourage you to get creative as you raise awareness about this often misunderstood disease.

Here are just a few activities from the 1st week of Lupus Awareness Month!  Thanks to: 
Tara Joseph for hosting a Jewelry Event on May 3rd and raising $250 for LSI's mission!
Lupus Awareness Table
 
Tawny Smith and Kanefus Walker for hosting an awareness table at
Advocate South Suburban Hospital!

Mike Rakoczy for inviting LSI to present on lupus to his 5th grade class! (For the 2nd year!) 

Please let us know what you're up to - you may inspire others in the lupus community to take action!

Click here to see some awareness building ideas and to see what others in the lupus community are up to.

Email 
mary@lupusil.org or call 312-648-6053.
Donations Making A Difference

Funds raised through the Illinois Lupus Walks and general donations are used to achieve LSI's mission in
Illinois.  T hese are just some of the examples of how LSI turns donation dollars into service to the lupus community.
LSI's Healthcare Professional Outreach
"Teaching F ellows in Lupus" Educates Healthcare Providers in Four Major U.S. Cities -LSI represents at all Chicagoland presentations 

Teaching Fellows in Lupus, a new partnership program of the Lupus Research Institute (LRI) and the American College of Rheumatology (ACR), aims to alleviate racial disparities and reduce the time to diagnose and treat lupus by giving providers the tools they need to recognize symptoms and refer patients on to proper treatment and specialist care. 
  
Read full story
Impact: Lupus
Making A Difference
 
Every month, LSI provides 2 grants up to $400 each to cover lupus-related medical expenses.  Below is a letter received from a recent recipient:

 

Dear Lupus Society of Illinois,


I am sending this letter to thank you for selecting me in the generous grant through a wonderful program.  I've known I've had lupus for 7 years and have struggled the last year financially due to the change in my insurance plan.  Receiving this grant has helped me pay a portion of my deductible ($2,400) to my skin/dermatologist.  I was unaware of the program until I reached out to my local chapter here in Peoria.  I have worked personally with Mary and she has been very kind and helpful through this process.  I can't thank you enough and will let my support group know of this wonderful program.

Thank you,  

Navigator Corner 
Support when you need it

The Lupus Society of Illinois offers support on virtually any lupus related topics.  Over the last few weeks, LSI has received several questions on everything from support groups, medications and physician referrals. 

One question LSI received was from a lupus patient recently diagnosed with breast cancer and the concern was if radiation would impact lupus.  We checked with Dr. Robert Katz and were informed that there is no known risk of radiation affecting lupus. 

As you may know, people with lupus (and other autoimmune diseases) are linked to an increase in cancer risk.  According to Johns Hopkins, some data indicates that women with lupus experience an increased risk of breast cancer.

It's important to remember to talk to your doctor about cancer screenings and make sure you are screened as often as appropriate.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002 
Educational Opportunities 
 
Studies have found an increase in bone loss and fracture in individuals with lupus. In fact, women with lupus may be nearly five times more likely than those without the disease to experience a fracture from osteoporosis.

Join us for this important teleconference on Lupus & Bone Health presented by the LSI's Medical Advisory Board Chair's Dr. Robert Katz.

Thursday, May 21, 2015 at 6:30pm

REGISTRATION REQUIRED
Registered participants will receive toll free information to access the teleconference.

 

Save the Date
June 3, 2015 - Latino Educational Event (Spanish Langauge)

On January 22, 2015, Dr. Curran (a member of the LSI's Medical Advisory Board) presented on Preventing and Managing Infections for Lupus Patients.  A copy of the transcript from this teleconference is not available to download here.
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