Lupus Society of Illinois 

eChronicle  October 2015
In This Issue
Quick Links
Upcoming Events

October 11
Bank of America
Chicago Marathon

October 31
Bowl-O-Ween Junior Board Fundraiser

November 12
Teleconference: Resources for the Lupus Community

January 30
Empowering Lupus Patients Educational Seminar

March 10
Bank of America
Chicago Marathon

Join LSI as we cheer on our
Lupus Charity Runners participating in the
Bank of America
Chicago Marathon!

Join us at our cheer tent on October 11, 2015 on the NORTH EAST corner of Laflin & Adams - at mile 14!

Questions?  Contact Brianna Svec at brianna@lupusil.org or call 312-542-0006.
Chicago Walk Incentive Prize Deadline


The fundraising deadline for Chicago Lupus Walk incentive prizes is Friday, October 23, 2015!

Questions?  Contact Brianna Svec at brianna@lupusil.org or call 312-542-0006.
Chicago Walk Ambassador!
Gwendolyn Young

"People don't understand the impact lupus has on a person's life," says Gwendolyn.  "Lupus is an internal disease - people with lupus don't necessarily look sick." This is one of the reasons Gwendolyn decided to share her story - and help put a face to this misunderstood disease.

Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
News You Can Use 
Statewide Lupus Support Opportunities

The LSI's office is in Illinois and we serve the entire state of Illinois though our programs and services.
 
To meet the needs of the nearly 28,000 square miles that comprise Illinois, LSI offers:
 
FULL ARTICLE
Genetic Lupus Study

You Could Change the Future of Lupus.

Be one of 5,000 participants
to join the largest genetics study of lupus.

Find out More
Archived Educational Teleconferences 

LSI archives educational teleconferneces on our website. Download the Disability & Lupus presentation and the Lupus & Bone Health teleconference here.

LSI's next teleconference is scheduled for Thursday, November 12, 2015.  Register today! 
CFC #: 21759
A Message from the President & CEO

Thank you to everyone who walked, donated, biked, ran, volunteered or participated in an LSI activity! You have made 2015 a wonderful year!
 
This Sunday, LSI will have 25 runners participate in the Bank of America Chicago Marathon as Lupus Charity Runners. Undertaking a marathon under any circumstance is a gigantic feat, undertaking a marathon in honor of lupus is an expression of hope. Thank you to each and every runner making a difference this Sunday.
 
The four metro-Chicago Illinois Lupus Walks have performed incredibly well and funds are still coming in! The 15th Annual Chicago Lupus Walk on September 27th was a great success with over 1,200 people coming out to show their support for the lupus community and the LSI.
 
We are grateful for all of our Lupus Walk Ambassadors - individuals who share their lupus story to help raise awareness about lupus and the LSI. Gwendolyn Young, the Chicago Walk Ambassador's story is included in this issue of the e-Chronicle. Our other ambassador's stories are also available: Mike Rangel, Mazzy Teich, and Raven & Shantel Lauer.
 
We hope the entire lupus community - our lupus "family" - feels as if they are ambassadors.
 
When you are ever asked why you support the LSI, I hope you can reply with pride that for over 40 years, the Lupus Society of Illinois has existed to support individuals living with lupus - through referrals to doctors or social services or its own programs like the Living with Lupus Grant that provides financial assistance for lupus related medical expenses or the Lupus Navigator Program that provides personal assistance for any lupus-related concern.
 
As an organization, we are responsible for the health of the entire lupus community and endorse clinically proven treatments and health care providers.
 
We are already planning a spectacular 2016 and have several events and activities planned. Newly scheduled is the 9th annual Empowering Lupus Patients Educational Seminar on January 30, 2016 at a new location. This is the largest educational event of the year and we certainly hope you'll be able to join us.
 
We always welcome input from you. If you have any ideas on how to improve our programs and services or any awareness and fundraising ideas, please don't hesitate to reach out to us.
 
Together we make a difference.
 
Charles Brummell 

Donations Making A Difference
Funds raised through the Illinois Lupus Walks and general donations are used to achieve LSI's mission in
Illinois.  T hese are just some of the examples of how LSI turns donation dollars into service to the lupus community.
Navigator Corner 
Support when you need it

The Lupus Society of Illinois offers support on virtually any lupus related topics.  Over the last few weeks, LSI has received questions on everything from support groups, medications and physician referrals. 

The Lupus Community Navigator has been asked about the Individual Peer Support Program.  The Individual Peer Support Program puts individuals in the lupus community in touch with volunteers in the lupus community with a similar background.

This program can be particularly helpful with individuals struggling with a specific aspect of lupus - for instance, men with lupus who comprise on 10% of lupus cases or people whose lupus is impacting a specific system like the central nervous system.

The Individual Peer Support Program is also valuable for family members of people with lupus.  Mothers of people with lupus and spouses of people with lupus may find unique and important support from others in their unique situation.

Individuals who are not able or interested in attending support groups may also benefit from this program.

In order to take advantage of this program, please contact the Lupus Community Navigator or call (312) 542-0002.

You'll be asked to share general information about yourself and then the navigator will reach out to volunteers with a similar background.  This process may take 7-10 days and you may receive more than one individual to communicate with.

We encourage anyone in the lupus community to take advantage of this resource.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Impact: Lupus 
Making A Difference

Every month, the Lupus Society of Illinois provides up to two financial assistance grants of up to $400 each to help pay for a medical, lupus-related expense.

This past month, two grants were paid out both to help cover the cost of prescriptions.

The financial burden of lupus can be overwhelming.  The LSI strives to support the lupus community however we can and the Living with Lupus grant financial assistance program is one way we work to achieve that goal.

If you are interested in applying for the grant, please complete the application here or contact Taurean Jackson at (312) 542-0004 for more information. 
Educational Events  
Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants. 
Resources for the Lupus Community Teleconference
 
Presented by the Lupus Society of Illinois 
Thursday, November 12, 2015 | 6:30pm 

Nutrition and Lupus Teleconference

Presented by
Marla Brodsky, RD, LD, BCIM
Thursday, March 10, 2016 | 6:30pm 
 
Empowering Lupus Patients Educational Event
Saturday, January 30, 2015
10:00am-11:00am Lupus and Clinical Trials
11:15am-12:15pm Lupus Basics
12:30pm-1:30pm Living Well With Lupus Panel Discussion

WAC L203, Butler Reception Room
Saint Xavier University
3700 West 103rd St.
Chicago, IL 60655 
Past Educational Events
Lupus and the Musculoskeletal System Educational Coffee in Naperville, IL, presented by Dr. Jolly

THANK YOU to Dr. Meenakshi Jolly for presenting and everyone for attending the Lupus and the Musculoskeletal System Educational Coffee on Saturday, September 21, 2015!

Over 50% of people with lupus include joint pain as one of their first symptoms. Over 90% of people living with lupus will experience joint and/or muscle pain.

Dr. Jolly's presentation can be downloaded here.

Dr. Jolly presenting at the educational event on 9/12/15

AWARE for All Clinical Research Educational Event

On Monday, September 29, 2015, the LSI joined other organizations in the Chicago area to present the Aware for All Clinical Research Educational Event.  AWARE for All is an educational program free and open to the public for the purpose of providing information to help people make informed decisions about clinical research participation.

The Center for Information and Study on Clinical Research Participation (CISCRP) is a national nonprofit organization founded for the purpose of educating the public, patients, the media, and policy makers in order to promote greater understanding and awareness of the clinical research process.

CISCRP is not involved in recruiting patients for clinical trials, nor is it involved in conducting clinical trials.

LSI's table at the Aware for All event
Our Mission
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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