Lupus Society of Illinois 

eChronicle November 2016
 We've Moved! 
Our new offices are: 
411 S. Wells St., Suite 710 | Chicago, IL 60607 
Our phone, email and website address will remain the same!  

In This Issue
Quick Links
Upcoming Events

November 29
Giving Tuesday

January 28
Empowering Lupus Patients Educational Seminar

April 2
Bank of America
Shamrock Shuffle

October 8
Bank of AmericaChicago Marathon
Giving Tuesday
Coinciding with the Thanksgiving Holiday and the kickoff of the holiday shopping season, #GivingTuesday will inspire people to take collaborative action to improve their local communities, give back in better, smarter ways to the charities and causes they support and help create a better world.

MORE
Have you used creativity to cope with lupus? 

If so, we want to hear from you!

Please email Mary with your name and contact information and a bit about how you've used creativity to cope with lupus.

Questions?  email Mary or call 312-648-6053.
Lupus Research Alliance

NEW YORK, NY. July 14 -- The Alliance for Lupus Research (ALR), the Lupus Research Institute (LRI), and the S.L.E. Lupus Foundation today announced the merger of the three organizations to form the Lupus Research Alliance. As the largest private sector organization dedicated to advancing lupus research, the Lupus Research Alliance leads the quest to free the world of this autoimmune disease through the power of scientific research.
FULL STORY 
Bank of America Shamrock Shuffle
Registration is open!

Join the Lupus Charity Runners for the Bank of America  Shamrock Shuffle 8K!

RACE DAY: Sunday, April 2, 2017
LOCATION: Chicago-Grant Park
TIME: 8:20am Find out more here.
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
CFC #: 21759
A Message from the President & CEO

The Holidays are here!  One week from today is Thanksgiving and then, before you know it, the new year.
 
Looking back on 2016, we have much to be thankful for.  All four Illinois Lupus Walks have been a huge success.  Our educational events are reaching more people - the teleconference last week on Lupus & Fibromyalgia presented by Dr. Katz had an unprecedented 140+ registered participants (if you missed the presentation, you can listen to it in its entirety here).  The Lupus Charity Runners program completed another successful B ank of America Chicago Marathon and we are already recruiting for our 2017 team. 
 
Lupus Charity Runners is a tremendous program. Since 2007, LSI has had a team in the Bank of America Chicago Marathon and each team brings awareness and much needed funds to our mission. This year, LSI is partnering with Chicago Endurance Sports (CES) to offer group and virtual training to runners and Lupus Charity Runners will get access to the Race Day Resort CES hosts on race day. The Race Day Resort will be a place runners can go to before the race to meet up with other Lupus Charity Runners, grab some carbs, and check their gear before heading over to the marathon. We are so excited about this new partnership - we're looking forward to the 2017 team!
 
LSI has guaranteed spots for the Bank of America Chicago Marathon. That means, if you don't want to risk getting selected through the lottery, you can run for lupus and agree to raise $1,250. LSI will provide you the online platform to raise funds, a fundraising catalogue and all of the support you'll need to raise funds. As a Lupus Charity Runner, you'll get your training, a Lupus Charity Runners singlet, water bottle, and 2 tickets to the pasta dinner the Friday night before the race.
 
We hope you'll join us for the 2017 Lupus Charity Runner team!
 
Funds raised by Lupus Charity Runners enable the LSI to continue to provide our programs and services at no cost to those in need - like our upcoming Empowering Lupus Patients Educational Seminar on January 28, 2017. The event will again be at St. Xavier University on Chicago's South Side.  Information is still coming in and I would definitely save the date.
 
From everyone at the LSI, we wish you a Happy Thanksgiving!
 
Together we make a difference,
 
Charles Brummell
The Lupus Voice Grows 
by Heather Mingus

Heather Mingus is a volunteer for the LSI and has donated her time over the past year to help educate the world about lupus by telling one story at a time.  Heather attended her first Illinois Lupus Walk this past September and shared this story with us.  Thank you, Heather, for all of your support! 

On the morning of September 18th, 1,000+ people woke up with one purpose: joining the Lupus Society of Illinois (LSI) in Lincoln Park to walk in support of this consuming, confusing disease. For the 16th year in a row, LSI hosted this event to spread awareness and raise money for the supp
ort survivors and families of this disease. But these walks are only one facet of their dedication to bringing people together, giving them hope, and building a steadfast community for their members to turn to when the larger world may not understand what it is they truly need.

FULL STORY
2016 Bank of America
Chicago Marathon


On October 9, 2016, Lupus Charity Runners set out to raise awareness and funds for lupus and the LSI! 

The Friday before the race, LSI hosted its Lupus Charity Runners pasta dinner - a great opportunity to meet and network with other runners and individuals in the lupus community.

As always, the Chicago Marathon was an inspiring event and together the LSI's 7 runners raised over $10,000 so far!

Thanks to the volunteers who came out to cheer our runners on!

But very special thanks to the Lupus Charity Runners themselves who chose to run 26.2 miles to support the LSI.

THANK YOU!



For more pictures from the Bank of America Chicago Marathon click here!
2017 Bank of America
Chicago Marathon
Guarantee Your Spot TODAY!
 
The Bank of America Chicago Marathon launched early this year! 

GUARANTEE YOUR SPOT in the 2017 event and join Lupus Charity Runners for the Bank of America Chicago Marathon!


Fundraising minimum for pre-drawing guaranteed spots are 
$1,250!
  • Live Training or Virtual Training through Chicago Endurance Sports!
  • 2 tickets to the pre-marathon pasta party! 
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage via FirstGiving to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself

Don't miss your chance to MAKE A DIFFERENCE AND JOIN LUPUS CHARITY RUNNERS TODAY!

 

Register and find out more here 

Navigator Corner
Affordable Health Care

Enrollment or changes to your 2017 Marketplace health insurance.  **Make sure your doctor(s) are included in whichever plan you choose.

Important dates to note:

November 1, 2016: Open Enrollment started - first day to enroll, re-enroll, or change a 2017 insurance plan through the Health Insurance Marketplace. Coverage can start as soon as January 1, 2017.

December 15, 2016: Last day to enroll in or change plans for coverage to start January 1, 2017.

January 1, 2017: 2017 coverage starts for those who enroll or change plans by December 15.

January 31, 2017: Last day to enroll in or change a 2017 health plan. After this date, you can enroll or change plans only if you qualify for a Special Enrollment Period.

For more information on obtaining insurance, contact Get Covered Illinois at https://getcovered.illinois.gov/en.

Need help?  Contact the Lupus Community Navigator!

If you have any questions about sharing your story, please contact Mary Dollear at mary@lupusil.org or 312-648-6053.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Charity Cycling Class

On October 22, 2016 the LSI hosted an event at Flywheel - the Charity Cycling Class.  Hats off to participants for raising over $5,200!

Special thanks to LSI Board Member Craig Griffith and the Junior Board for making this event happen!

Past Educational Events
Lupus & Fibromyalgia Teleconference
Dr. Robert Katz
On Thursday, November 10, 2016, LSI hosted an educational teleconference featuring Dr. Robert Katz from Rush University Medical Center on Lupus & Fibromyalgia.  Over 140 people registered for the event.

The event included information about these two diseases and how treatments vary.  There was also a lengthy question and answer session.

The teleconference was recorded and can be downloaded in its entirety here.
 
Upcoming Educational Events:
Save the Date!


Empowering Lupus Patients Educational Seminar
Saturday, January 28, 2017
St. Xavier Univeristy
3700 W 103rd St.
Chicago, IL

10:00am - 1:00pm

Check back soon for more information!  
Our Mission 
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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