Lupus Society of Illinois 

eChronicle April 2016
In This Issue
Quick Links
Upcoming Events

Lupus Awareness Month
 
May is Lupus Awareness Month and you're invited to help increase lupus awareness in YOUR community!

LSI has a variety of activities planned and we encourage you to spread awareness and let us know how you're making a difference in your community!

Click here for more information! 
Make a Difference!
Run the Bank of America
Chicago Marathon
for Lupus Charity Runners!
October 9, 2016

LSI welcomes runners to the Lupus Charity Runners Team!

Confirm your spot TODAY!
MORE

Contact Brianna Svec at brianna@lupusil.org.
Bike the Drive
May 29, 2016

Don't miss your opportunity to Bike the Drive for the Lupus Society of Illinois!

Register as an individual through MB Financial Bank's Bike the Drive.

click here or contact Brianna Svec at brianna@lupusil.org.
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

MORE 
Annual Reports

LSI's mission is at the core of our work.  Find out how the LSI has been moving the mission forward by reviewing our Annual Reports from past years.

CFC #: 21759
It appears as if spring has sprung!  Fingers crossed that we have clear skies coming our way!

Lupus Awareness Month starts May 1st and LSI has materials to help you reach your community with lupus information!  Be sure to visit our Lupus Awareness Month page to see what's available and how you can make a difference in the fight against lupus!

Our two BIG Lupus Awareness Month activities are the Northern and Southern Suburbs Illinois Lupus Walks.  Our Illinois Lupus Walks raise funds to allow LSI to provide programs and services at NO COST to the lupus community - Lupus Walks are also great awareness builders.  Every time a participant registers for a walk, sets up a personal fundraising page and sends a link to that page out to their friends and family is an awareness opportunity!

Register for one of the Illinois Lupus Walks today!

Northern Suburbs
Sunday, May 15, 2016
Southern Suburbs
Saturday, May 21, 2016
Western Suburbs
Saturday, August 13, 2016
Chicago (Lincoln Park)
Sunday, September 18, 2016

The Illinois Lupus Walks have been hosted by LSI since 2001.  Don't be confused by other walks hosted by out of state lupus organizations - funds raised through the Illinois Lupus Walks stay right here in Illinois!

Also, don't miss my interview on WGCI airing this Saturday at 7am.  You can also listen to my interview with WLIT's Brooke Hunter here.  The interview aired on WLIT on April 3, 2016.

I look forward to hearing how you celebrate Lupus Awareness Month.  Don't forget to share your efforts with us!  Use hashtag #LSILupus Awareness or email info@lupusil.org with details.

Together we make a difference.

Charles Brummell
Shamrock Shuffle   
Lupus Charity Runners
 
Two of the more than 23,000 runners at the 2016 Bank of America Shamrock Shuffle raised awareness and funds for lupus!
 
Our 2016 Shamrock Shuffle Runners: Both runners set up fundraising pages and donations are still being accepted.

Thank You!  Every Step Makes A Difference!
Great Ideas
Lupus Fundraiser

The Fielder Family team from the Northern Suburbs is hosting a fundraiser for the Northern Suburbs Illinois Lupus Walk team!

The event is Saturday, April 30, 2016 at 4pm at Lakes Bowl, Round Lake. 

The event includes raffles and door prizes!

For more information and to purchase tickets contact Donna Fielder at fielderfamily1102@att.net or call 847-307-9639.

Thanks Fielder Family!
News You Can Use
Speaking Engagements

The Lupus Society of Illinois is available to present on lupus at workplaces, churches, support group meetings or other gatherings. 

Charles Brummell, LSI's President & CEO and Mary Dollear, LSI's Vice President, are both available to speak to groups and can customize presentations to the needs of the audience.

Charles attended the Trinity United Church of Christ's support group in March.

Mary presented at the Apostolic Church of God Lupus Luncheon.

Although LSI cannot guarantee a speaker will be available, we will certainly do our best to accommodate your request.

For more information on speaking opportunities or to inquire about speaker availability, please contact Mary at mary@lupusil.org or call her at 312-648-6053.
Navigator Corner 
Support when you need it

The Navigator is available to help the lupus community with any lupus related concerns.

Recently, the Navigator has helped with questions about finding a lung doctor, a rheumatologist and a dentist. 

Other questions include help with insurance, individual peer support, and information on how to handle insurance issues.

The Lupus Community Navigator is here to help the lupus community with issues large and small. 

Don't hesitate to contact us with any questions you may have.

If you have any lupus-related questions please contact the LSI's Navigator for assistance or call 312-542-0002.
Making a Difference
LRI Hosts Advocacy Day in Washington, DC
Illinois Delegates

With over 50 lupus advocates out in force, LRI was able to tell the lupus story to 75 members of Congress and their staff, representing 15 states.

Four of the 50 lupus advocates were from Illinois and two were representing the LSI!

Hettie Collins and Tawny Smith attended on behalf of the LSI and shared some photos from their experiences.

Click here for more photos.

The Lupus Society of Illinois is a coalition member of the Lupus Research institute.
Nutrition & Lupus Teleconference 

The March 10, 2016 educational teleconference "Nutrition and Lupus" was a huge success, bringing out a record number of participants to benefit from the knowledge of Marla Brodsky!

If you missed the teleconference, LSI has posted a recording of the session on our website here.

LSI archives educational teleconferneces on our website here
Educational Events   
 
Presentado por: Karen Mancera-Cuevas, MS, MPH, CHES
Fecha: junio 1,  2016
Hora: 6:00pm-8:00pm
Registro: 6:00pm
Se inicia el evento: 6:30pm
Casa Michoacán
1638 S. Blue Island Ave.
Chicago, IL 60608
Para inscribirse y obtener más información, póngase en contacto con taurean@lupusil.org o llame al 312-542-0004.   


Presented by: Zineb Aouhab, MD and 2nd year Rheumatology Fellow at Northwestern University 
Naperville Library - 95th St.
3015 Cedar Glade, Naperville IL 60564
Saturday, July 30, 2016 - tentative date
9:30am - Registration
10:00am - Program begins
Registration Requested

Thanks to the generosity of donors and the success of the Illinois Lupus Walks, LSI is able to provide these programs at NO COST to participants. 

The Lupus Society of Illinois is working with Dr. Rosalind Ramsey Goldman and Northwestern University to identify the concerns, needs and interests of African-American lupus patients and their caregivers.  We are particularly interested in learning about access to care and support needs in the African-American community.  We invite African-American individuals with lupus and African-American caregivers for those with lupus to participate in a small focus group discussion.

For more information and to find out if you are eligible to participate, please contact Mary Dollear at mary@lupusil.org or by phone at (312) 648-6053.

Funded by the US Department of Health and Human Services Office of Minority Health
Our Mission

LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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