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November 2015
CHAPTER
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Serving Indiana
Question
 
Are flu and pneumonia vaccines safe if I have                lupus?
                 Scroll down to see the answer  

As We Approach a Season of Giving

Dear Friends,
As my first year ends, I am remembering the many patients and families I have had the honor to serve and the pleasure to meet. With your support and your volunteer efforts, the LFA-Indiana Chapter continues to provide and expand the invaluable statewide lupus programs and awareness efforts - including a launch in January 2016 of a new strategic plan for the next three years and the establishment of at least two new support groups in new communities.  
 
With the growth of our Chapter, our goal will be to provide you with more HOPE and more ANSWERS. As we speed towards the Thanksgiving holiday and the #GivingTuesday promotions, I hope you will consider a year-end contribution in honor or in memory of someone you know with lupus. A gift, no matter how big or small, will ensure that people with lupus and caregivers are supplied with information and know that lupus matters!  Ninety percent of every dollar donated remains in Indiana to fight for the estimated 36,000 Hoosiers living with lupus.  The other ten percent goes to the national LFA for research into finding a cure for lupus. Please consider a year-end gift of $25, $50, $100, $250 or more!  As we know, lupus knows no limits - it can affect anyone, any organ, at any time.
 
I offer below a few examples of how your gift to the LFA-Indiana Chapter could be put into ACTION:
               *$25-$49 level ...  Could help three-five people with lupus, register or attend an educational seminar.
 
               *$50-$99 Family Level ... Can send newly diagnosed informational packets to eight -ten individuals who have recently been diagnosed with lupus.
 
               *$100-$249 Sustaining Level ... Can underwrite a portion of a lupus education program. In 2016 we are focused on providing a physical activity/exercise program for people with lupus.
 
               *$250-$499 Patron Level ... Can help create a new peer support group aimed at nurturing people affected by lupus. 

 * $1000 Chairman Level...Can help underwrite an education or advocacy day event with national speakers or support a summer experience for youth.
 

Sincerely ,
 
Morgan E. McGill, CEO
317-225-4400
morgan@lupusindiana.org




  First-ever National Lupus Public Health Agenda Provides Roadmap to Improving Care and Treatment
 
The Lupus Foundation of America, the National Association of Chronic Disease Directors and the United States Centers for Disease Control and Prevention (CDC) convened on Capitol Hill to unveil the first-ever National Public Health Agenda for Lupus to Congressional leaders. The National Public Health Agenda for Lupus identifies public health priorities, strategies and recommendations that are relevant and complementary to efforts in lupus bio-medical research and clinical care and serve as a model of a comprehensive approach to lupus care and treatment. The National Public Health Agenda for Lupus was developed by the Lupus Foundation of America and the National Association of Chronic Disease Directors in collaboration with leading lupus and public health advocates.  The effort is made possible through funding from the CDC.     READ MORE      
 

Upcoming Events

Nov. 21  Support Group Facilitator                  Training, Merrillville

Dec. 11  Support Group Facilitator                   Training, Indianapolis

Dec. 16  'Living with Lupus'                               Seminar, Evansville

Save the Dates for 2016:

Walk to End Lupus Now
 
Crown Point
May 14, 2016
 
Indianapolis 
October 1, 2016
 
Lupus Awareness Month 
May 2016
 
Put on Purple Day  
May 20, 2016
 
A Tasteful Affair 
June 30, 2016
 
 Youth/Family Event
July 23, 2016

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January 11, 2016

Punch Burger Fundraiser - Carmel Location Only
Want a reason to eat out on Monday , January 11  from 4-9 pm and enjoy a great burger?  Punch Burger, Carmel location only will  donate a percentage of all sales (excluding sales tax) generated that evening to LFA-Indiana! This program supports our community outreach efforts. If you can't make it there, we are told that to-go orders qualify too- just be sure to mention or show this ad upon pick-up:














Follow us @lfaindiana.
We are 154 followers and growing! Follow us!  



Please be reminded that if you would like to hold a Third-Party Fundraiser for our Foundation we will post your event on our Chapter website. If you would like assistance creating a third-party fundraiser, we will work with you to help plan. Here are two ways that you can help support our chapter:
1. Ask your favorite restaurant to donate a portion of their daily sales to the LFA-Indiana Chapter for one day. Please let the Chapter know if your restaurant agrees, so we can work with the restaurant to promote the event for its greatest reach.
2. Hold a fall yard sale and donate all or a portion of your proceeds to the LFA-Indiana Chapter. 
3. Host a holiday craft party nd sell your wares then donate a portion of the proceeds to LFA-Indiana.


   

The LFA-Indiana Chapter encourages you to  please schedule your yearly flu vaccination . People with lupus are at increased risk of developing infections, including the flu, so it is important that those with lupus receive a flu vaccine as soon as they become available. 

  Workplace Giving?

Does your employer have a Workplace Giving campaign?  This is the time of year when many employers provide their employees with the opportunity to donate to their charity of choice through payroll deductions.  Learn more.



LFA, Indiana Chapter Calendar

What's going in with the Indiana Chapter of the LFA in 2016? View



Lupus Foundation of America, Indiana Chapter awards the 
 2015 Phyllis Simko Volunteer of the Year  Award to Kenny Verrill
 
This award varies every year for the reasons it is given. Whether it is for money raised, an incredible idea or the hours involved in Chapter activities, it always recognizes a truly special person who has enthusiastically supported the LFA-Indiana Chapter. This year's Volunteer of the Year has provided service to the organization that has positively impacted lupus patients, outreach initiatives and the organization as a whole. Kenny Verrill has been a huge supporter of the Foundation for several years. He has been a member of the Indianapolis Walk Committee the last four years and has been a big help to Team Deno with their third-party fundraiser (mum sale) in the Fall. Kenny was a member of the Logistics Sub-Committee and organized the parking for the 2015 Indianapolis Walk (and at a new park!) while working his full time job and helping to plan his October wedding.  He certainly deserves recognition for his dedication and commitment to the Indiana Chapter.
Designate Dollars in December
 

Giving Tuesday - December 1, 2015

On Tuesday, December 1, 2015, charities, families, businesses, community centers, and students around the world will come together for one common purpose: to celebrate generosity and to give.
   
Giving Tuesday is a global day of giving fueled by the power of social media and collaboration.  Since its inaugural year in 2012, #GivingTuesday has become a movement that celebrates and supports giving and philanthropy with events throughout the year and a growing catalog of resources. 

On December 1st , we hope you will make LFA-Indiana your charity of choice and make a donation to help support our programs and services. After you have made your donation, let the world know by posting a photo on social media. Make sure to tag our Chapter so we can repost and retweet your photo! 
 
 

Get Involved!
Would you like to invest your time and talents in an organization that is helping those affected by lupus? Then we have a place for you. The LFA-Indiana Chapter needs volunteer assistance in reaching lupus patients across the state and educating them about lupus and our organization. Based on 2010 census information, it's estimated that 36,000 of Indiana's residents have lupus, so we have a lot of work to do.
How can you help?
  • Serve on a committee to help plan events such as Walk to End Lupus Now (Crown Point and Indianapolis) - or be an "event day" volunteer.
  • Distribute LFA-Indiana provided materials to medical professionals and medical centers in your community about lupus and the Lupus Foundation of America, Indiana Chapter.
  • Distribute LFA-Indiana provided materials about lupus to libraries in your hometown.
  • Notify the LFA-Indiana Chapter of dates and locations of upcoming health fairs in your community.
  • Volunteer to represent the chapter at local health fairs.
  • Submit short articles about LFA-Indiana activities and lupus to your company newsletter or church bulletin.
  • Become a Support Group Meeting Facilitator.  Facilitator Role Description (We are currently in need of co-facilitators in Anderson, Bloomington, Evansville, Greencastle, Greenfield, Kokomo, Richmond, southeastern Indiana and Valparaiso.  Please contact Debbie Campbell at  debbie@lupusindiana.org for additional information.)
  • Consider becoming a candidate for our volunteer Board of Directors.  If interested, call our office at 317.225.4400 or 800.948.8806 for more details.

Come Join Us in Evansville for a Free Seminar on Pain Management and a Combination Yoga/Tai Chi Session
 
In partnership with Deaconess Hospital, we will be offering a 'Living with Lupus' seminar at Deaconess Hospital Health Sciences Building, Johnson Hall, 600 Edgar St. in Evansville. The Seminar will be held on Wednesday, December 16, 6:00-8:15 pmMore than 90% of people with lupus will experience joint and or muscle pain related to their lupus.  This educational program will address management of chronic pain associated with lupus. 
There will be a combination yoga/tai chi session led by Kathy Uebelhor, registered yoga teacher, and John Hufstedler, certified tai chi instructor.  Don't let the word 'yoga' scare you! This will be a seated and chair-supported session that all attendees should be able to participate in, regardless of their level of mobility.

To register, email by December 14th.

Anifrolumab Shows Positive Results in Lupus during Phase II Clinical Study
Dr. Richard Furie, Chief, Division of Rheumatology, North Shore-LIJ Health System, discusses the very positive results of a phase II clinical study of anifrolumab as a potential treatment for systemic lupus.   Anifrolumab is a new monoclonal antibody against the type I interferon (IFN) receptor that inhibits the activity of all type I IFNs, which play a central role in lupus. The trial met its primary endpoint of difference in the percentage of patients who achieved response as measured by the SLE Responder Index 4 (SRI4) at day 169, along with a sustained reduction of oral corticosteroid (OCS) use between day 85 and day 169. Responses occurred for 34.4 percent of patients receiving anifrolumab 300mg IV and for 28.8 percent of patients receiving anifrolumab 1,000mg IV every four weeks versus 17.6 percent of patients receiving placebo.
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Grocery Shopping? 



An easy way to support your chapter is through Kroger Community Rewards program. Enroll by linking your Kroger plus card to the LFA-Indiana  at   

For additional information, visit



 
Answer
Overall, the flu shot is considered to be safe and effective for people with lupus. People with lupus generally do not have any side effects from the flu shot. When they do, their symptoms are usually mild.


Contribute to Our Mission Work...
If you join the fight, we will not have to concede victory to this terrible disease.  With your support and involvement, we will be able to solve the cruel mystery of lupus in our lifetime and end its devastating impact on millions of lives.
Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260