OMF Newsletter | Eye On A Cure
Issue: 1 Summer 2010
In This Issue
1st Annual Patient & Caregiver Conference
LAB Ride + Other Events
Research Consortium Update
Upcoming Events
August 21, 2010:
"Eye Believe in a Cure" Team: LIVESTRONG Challenge Philly
October 23-24, 2010:
1st Annual Patient and Caregiver Conference
(open to the public)

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Dear Friend,

Welcome to the first Ocular Melanoma Foundation (OMF) e-newsletter! The OMF has been busy planning exciting events and supporting our patient and physician-researcher communities. We are also thrilled to introduce and welcome Becky Selig as our part-time Interim Executive Director. Becky comes to us with a good deal of non-profit experience and has already added a great deal of value to the OMF in the few months she has been with us.
Thanks to your support, we are growing fast! We host an online Patient Forum providing support for more than 950 patients and caregivers and our website receives 4,000 visitors a month. Under our umbrella we also support the Ocular Melanoma Research Consortium (OMRC) which is currently comprised of approximately 100 physicians and researchers who come from all over the U.S. and Europe and represent several medical specialties. The OMF strives to be the main source of information and resources for the ocular melanoma community and we are continuing to work toward this goal on a daily basis.

Thank you for being a part of our growth and for helping us get to where we are today. We could not be doing any of this without your dedicated support!
- The OMF Team
OMF Plans 1st Annual Patient & Caregiver Meeting
Eye Am Not Alone Conference LogoOMF has announced the first patient and caregiver conference for those affected by ocular melanoma (OM). The two day conference, Eye Am Not Alone: Educating, Supporting and Building Hope for the Ocular Melanoma Community will be held at the Dana Farber Cancer Institute (DFCI) in Boston, MA on October 23 - 24, 2010. The international meeting is first of its kind.

Made possible by the generous sponsorship of the DFCI, the conference will provide attendees the opportunity to learn about the latest research and treatments for ocular melanoma, while clinicians and researchers from institutions across the U.S. share their latest data and insights.

Clinicians and researchers from a range of medical specialties and from several research institutions throughout the U.S. will share the latest information with participants. Other conference highlights include, a panel addressing integrative therapies such as nutrition and acupuncture, a "how to" session on navigating clinical trials, and several opportunities for patients and caregivers to meet and share experiences in small group sessions.
Reserve your spot today - hotels will fill up quickly. You can cancel the reservation by 6pm on the day of arrival. We look forward to meeting everyone in person!
Local Events Provide Much Needed Funding for OMF
As the OMF continues to grow, funding is more important than ever. Warriors running a race for the OMF As a 501(c)(3) non-profit, we rely on supporters like you to help us provide research and advocacy support. Many OMF Warriors choose to hold local events near their homes and donate the proceeds to the OMF. We're immensely grateful to these people for their hard work and dedication.

Kevin Byrne, an OMF Warrior, has organized an annual bike ride in San Francisco, the LAB Ride, in honor of his mother, who lost her battle with ocular melanoma. The OMF is excited to be partnering with Kevin as the recipient of the proceeds of this annual event. Thanks to all who have participated!
In April, OMF Warrior Jim Ryan ran the world-renowned Boston Marathon in memory of his dear friend, Barb Strong, who lost her battle with ocular melanoma in March. Jim decided to turn his 26.2 mile run into a fundraiser and generously donated 100% of the proceeds to the OMF. In 2009, Jim completed the Marine Corps Marathon in Washington, DC, also raising funds for the OMF. We look forward to following him in his next marathon!

Ukrops race in Richmond VAThank you to all who have generously donated your time and money - from the runners in the Ukrop's 10K in Richmond to Tanya and Carissa who are now prepping for their 2nd race - we could not be doing what we're doing without your support and enthusiasm.


Interested in holding your own fundraising event?
Visit our Fundraising Page for some ideas.
Ocular Melanoma Research Consortium Update
The First Annual Ocular Melanoma Scientific Working Group Symposium (OMSWG) was successfully held in October 2009 and resulted in the formation of the international and interdisciplinary Ocular Melanoma Research Consortium (OMRC).
In follow up to the initial meeting, approximately 40 doctors from all over the world gathered in Washington, DC, in April 2010 to provide updates and establish next steps.
The 2nd annual OMSWG Symposium, sponsored by DFCI and Delcath, is scheduled for October 2010.
The aim of these meetings is to bring together key experts to address the urgent need to accelerate the development of effective treatments for patients with ocular melanoma. The group's goals are to identify research priorities and increase collaboration in order to improve patient outcomes.

Learn more about the Ocular Melanoma Research Consortium >>

Ocular Melanoma Scientific Working Group (OMSWG) Symposium - Doctor Attendees
If you have information you think would be helpful or interesting to include in future newsletters or if you are interested in getting involved with the OMF, please email Becky at becky@ocumel.org.