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October 2015

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Serving Indiana

Question

 

 What is photosensitivity?


Scroll down for the answer.  


As We Approach a Season of Giving

Dear Friend,

First, thank you all for your participation in our 9th Annual Walk to End Lupus Now! event held on Saturday, September 26th at Southeastway Park.  We had almost 500 walkers present and raised almost $70,000 for our chapter activities.  This would not have been realized without a dedicated base of committee members, volunteers, lupus thrivers and friends and supporters. Plans for our 2016 10th Annual Indianapolis Walk celebration are underway. If you have interest in serving on the planning committee, please contact our office for additional information. 

Additionally, we participated in several health fairs in September, including 

Our hope is that one day we can reach community events in all 92 counties in Indiana, through the help of trained volunteers and more staff. These types of activities are critical to raise awareness and to rally public support, and often result in enduring partnerships in the business and social service arena.  We are indebted to the few volunteers who were able to represent our Chapter at these events. 

On November 7, we look forward to honoring those dedicated volunteers at Wilfong Pavilion in Founder's Park in Carmel with an indoor BBQ Luncheon to thank our volunteers for their support and meet and greet. If you know of a volunteer, please encourage them to attend to mingle with Chapter staff and board members. We will also announce our 2015 Volunteer of the Year award winner on this date, and hope that nominations will be forthcoming.  Please visit our website for more details, as nominations will be accepted until October 31

In a few more weeks, we will be revealing more details about the launching of the 2016 Walks and about the important work progressing for our Strategic Plan release in January and plans for this year's Giving Tuesday campaign.  If you provided feedback towards our strategic planning initiative, your time and attention is greatly appreciated. More details will be announced soon. 

Sincerely ,
 
Morgan E. McGill
CEO
morgan@lupusindiana.org




Thank you to our National Walk™ Sponsor

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All 2016 Volunteers - It's Time We Celebrate YOU
If you volunteered at one of our events in 2015 you are invited to our informal indoor BBQ hosted by LFA-IN Staff and Board on Saturday, November 7th at 11AM-1PM in Carmel, at Founder's Park, Wilfong Pavilion (at northside of intersection of 116th Street and Hazel Dell Parkway; pavilion is past the playground towards the back of the park).  We hope you can join us!  We will toast volunteers, announce awards and offer two valuable door prizes.  There is no cost to attend, however, we would appreciate the kindness of a response by November 3rd, to help us plan.  
Please R.S.V.P. to Susan Perry, Office Manager, at susan@lupusindiana.org
*please fill out a submission form for Volunteer of the Year.  Click here to be linked to the required submission form.  
Upcoming Events
October 24, 2015
Facilitator Training
11:00am -5pm
LFA-Indiana Office, 9302 N. Meridian Street, Suite 203, Indpls, 46260. Please gather at Grace College, to the left when you exit the elevator on the 2nd floor.This is a free training event which is mandatory to become a volunteer facilitator for an Indiana support group. If interested or for more information, contact debbie@lupusindiana.org
Registration is required.


October 27, 2015
Granite City Fundraiser
Want a reason to eat out on Tuesday, October 27 and enjoy a great meal? Granite City Northside and Downtown locations will donate 10% of every meal purchased (all day!) that mentions or shows the flyer to their server! Dine to Donate program supports our community outreach efforts. Please consider patronage of Granite City on Tuesday, October 27th! If you can't make it there, we are told that to-go orders qualify too- just be sure to mention or show the ad upon pick-up!

 

November 17, 2015
'Living with Lupus' Seminar
6:00pm-7:45pm
St. Vincent Anderson Regional Hospital
Please mark your calendars, more details to come!
 











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Please be reminded that if you would like to hold a Third-Party Fundraiser for our Foundation we will post your event on our Chapter website. If you would like assistance creating a third-party fundraiser, we will work with you to help plan. Here are two ways that you can help support our chapter:
1. Ask your favorite restaurant to donate a portion of their daily sales to the LFA-Indiana Chapter for one day. Please let the Chapter know if your restaurant agrees, so we can work with the restaurant to promote the event for its greatest reach.
2. Hold a fall yard sale and donate all or a portion of your proceeds to the LFA-Indiana Chapter. 



YOU can help us Reach our Goal - there is still time! 
All walkers have until October 26 to collect all walk donations!  We can truly make a difference with just one final push - send a brief reminder email to friends and family and encourage them to visit your walk page and help you reach a higher incentive level before the deadline! 



Grocery Shopping? 

LFA-IN now partners with Kroger in its Community Rewards program. Enroll by linking your Kroger plus card to the Lupus Foundation of America-Indiana Chapter at
www.krogercommunityrewards.com

The Kelly Report on Health Disparities in America

 
The Lupus Foundation of America had the opportunity to contribute to a new Congressional report examining health disparities in America and what can be done to improve treatments and outcomes in minority communities. In this column, Sandra C. Raymond, president and CEO of the Foundation, discusses the importance of the report and why lupus was included in the report. Read More.
An Update on Hydroxychloroquine Prices
Recently, there's been growing concern over generic drug price increases in the news and on social media. The Lupus Foundation of America has been tracking the cost and availability of hydroxychloroquine (Plaquenil®)
since June 2014. Please read this update from Health Educator Sarah Stothers, RN, BS, for options on how to make your medications more affordable. Learn More. 
Support Groups
One of our chapter goals is to have co-facilitators for all support groups to ensure the sustainability of the groups. To that end, we are seeking dedicated volunteers who would be interested in becoming co-facilitators for existing support groups in Bloomington, Greenfield, Indianapolis North, Otterbein & Valparaiso.
We are also in search of new facilitators to take over or start new support groups in Anderson, Evansville, Greencastle, Kokomo, Richmond & southeastern Indiana.
A passion to serve & modest time commitment are necessary. The co-facilitator must attend LFA facilitator training; a session is scheduled in Indianapolis on Sat., Oct. 24. Please view the Facilitator Role Description for additional information.
The philosophy of LFA support groups is to provide a warm & caring environment where people with lupus, their family members, caregivers & loved ones can share their experiences, methods of coping & insights into living with lupus. LFA support groups encourage & accept people as they are & provide a comfortable learning environment to help them develop the best coping strategies to reduce stress that often accompanies living with a chronic illness. 
We hope that you or someone you know might be interested in volunteering for this important role in meeting support needs for people whose lives are impacted by lupus.
 
Interested candidates should contact Debbie Campbell via email at debbie@lupusindiana.org .
 
Click here  to see all Indiana locations and details about each LFA-Indiana support group.

Chapter participates in Black Nurses Association Health Fair on October 29th 

Swine Flu  

On October 29, LFA-IN will once again exhibit at the 11th Annual Black Nurses Association Luncheon at the Ritz-Charles in Carmel from 11AM-2PM. This provides an opportunity to educate on lupus and health disparities to over 250 attendees.

On behalf of nurses, the Chapter encourages you to please schedule your yearly flu vaccination. People with lupus are at increased risk of developing infections, including the flu, so it is important that those with lupus receive a flu vaccine as soon as they become available. 

Design the 2016 Walk To End Lupus Now! Tshirt!
For the first time, National is asking YOU to design the  2016  Walk to End Lupus Now ™ t-shirt. Submit your design to National by October 26 and it could end up on shirts worn by thousands of people from New York to LA. Including our very own walks in Indiana -Crown Point in May and Indianapolis in October!  Only two finalists will be chosen by a special panel and put up for a vote on Facebook and Instagram. Good luck to all participants! To learn more,
 
AnswerPhotosensitivity is the term used to describe sensitivity to the ultraviolet (UV) rays from sunlight and other light sources, such as indoor fluorescent light. Photosensitivity can cause rashes, fever, fatigue, joint pain, and other symptoms in people with both cutaneous (skin) and systemic lupus.
  Learn more.

If you're shopping online, don't forget that a portion of your purchase will benefit LFA Indiana Chapter when you shop using the links below:

Give Back While You Shop
 
Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260