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Dear Friends,


It's been a very busy year so far for the PMP Research Foundation: Symposiums, Fundraisers, and more! Check out the latest below, and thanks, as always, for your support.


The PMP Research Foundation

What's New?
Summer Scurry - August 13 - Independence, Ohio
PMP Cancer Walk Raises Over $42,000
UMass and Philly PMP Symposiums
PMP Specialist Meetings
PMPRF Selected as National Member of NORD
PMPRF Officer Changes
3rd Annual Summer Scurry
August 13, 2011 - Independence, OH
Summer Scurry Kids
The 3rd Annual Summer Scurry is so much more than a typical 5k & 10k race. It's about family and taking the time to reflect on how thankful we are for those in our lives, and our mission to bring an end to such diseases that take those people we love out of our lives. 

Recruit your friends, family and colleagues and join us on Saturday, August 13th in Independence, Ohio.  

The fun starts at 8:30am with the 10K Race and 5K Walk/Run, followed by the Family Fun Run, and Post-Scurry Fitness Throwdown.  


Kids will love the sprinklers, water toys, icee pops, an old fashioned lemonade stand, water fun finish, and more!

est your fitness level at the Post-Scurry Fitness Throwdown as you compete against other athletes in an 8-minute CrossFit style workout that will challenge your strength, stamina, flexibility and mental toughness. 

If you can't make it to the walk but want to participate, register as a Virtual Walker - it's free, or sponsor a walker or team.

Visit for more info and to register. 

PMP Cancer Walk Raises Over $42,000

PMP Cancer Walk  

We are grateful to our sponsors, over 500 participants, and more than 250 additional donors for raising over $42,000 at this year's PMP Cancer Awareness Walk to fund research for PMP and related cancers. 


Our 5th Annual PMP Cancer Awareness Walk was held on June 19, 2011 in Philadelphia, PA. This annual event started on Father's Day in 2007 in honor of beloved father and friend Dutch Culbertson who lost his battle to PMP in 2006.  


Family, friends, neighbors and members of the PMP community walk on Father's Day each year to honor Dutch and other loved ones who have lost their battle with PMP, and to provide hope and inspiration for those patients currently fighting the disease as well as their family members. 


Visit us on Facebook to view photos from this event.  


Thank you for  Making a Difference for Dutch and the PMP Community. We hope to see you next year on Father's Day!  


UMass and Philly Symposiums

Drs. Sardi, Lambert, Sugarbaker and Esquivel

May and June were busy months for PMP education. In May, PMPRF was proud to sponsor and participate in UMass Memorial Medical Center's PMP/Appendiceal Cancer Symposium: Awareness, Options and Advances.

Dr. Laura Lambert and UMass put on an impressive program with details about all of the phases of the patient experience as well as some exciting discussions of current research initiatives.

Dr. Richard Alexander from University of Maryland Medical Center conducted grand rounds and gave an inspiring speech. Other presenters included researcher Dr. Thomas McAvoy, and Dr. Martin Goodman from Tufts Medical Center. Check out footage of the symposium at

In June, we hosted our second annual PMP Research Foundation Symposium at Crozer-Chester Medical Center outside of Philadelphia. Our star-studded panel of specialists included Dr. Paul Sugarbaker, Dr. Armando Sardi, Dr. Jesus Esquivel and Dr. Laura Lambert.

In addition to excellent individual presentations, this esteemed panel addressed two case studies and answered questions submitted by the attendees, a number of them PMP patients and their caregivers. Keep an eye out for footage from the symposium coming soon to

And we want to offer one more heartfelt thanks to the specialists who have helped make these events a success - your dedication is inspiring.

Specialist Meetings
One of the exciting things to come out of the Symposium sessions was the inspiration to organize a meeting of the specialists in the Washington, DC/Baltimore region to discuss research initiatives and how to potentially work together on joint projects.

The first meeting of this group took place last week, hosted by Dr. Sardi at Mercy Medical Center in Baltimore with a second meeting to be scheduled in September.

It is early in the process, but we are thrilled at the prospect of being a part of this effort and will keep you posted on our progress.

PMPRF Selected as National Member of NORD

NORD logo
PMPRF is pleased to announce that it has been selected as a National Member of the National Organization for Rare Disorders ("NORD"). By joining NORD, PMPRF is now part

of a powerful, collective voice on behalf of patients with rare diseases.


NORD assists patient organizations such as PMPRF with advocacy and policy development, disease awareness and 

education, organizational growth, and research.


PMPRF started working with NORD in 2008 when they began administering our research grant program, which has resulted in the distribution of $300,000 towards promising research studies designed to improve the understanding, diagnosis and treatment of PMP.


PMPRF looks forward to continuing its successful relationship

with this prestigious organization. Visit NORD for more information.


Officer Changes
PMPRF is pleased to announce the following changes in the officers of the organization: Jerry Lewandowski will be taking over as President from Lisa Luciano; Mike Dvorsky will be taking over as Treasurer from Kathleen Hoover; and Susan Ortega will be taking over as Secretary from Dan Luciano.

We would like to thank Lisa, Kathy and Dan for their dedicated service in these roles over the past three years. Lisa and Dan will continue to serve the organization as Vice Presidents and members of the Board of the Directors, and Kathy will continue working with PMPRF as a non-voting advisory member of the Board of Directors and the Finance Committee.

For more information on our Board of Directors, visit

PMP Research Foundation 

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