April 2018
        In this issue TableOfContents
 
Seeing the Futurepaulemployer




Thank you to all the businesses and employment providers for joining us for "Seeing The Future" on April 26. Paul Daugherty, The Cincinnati Enquirer's award-winning columnist and author of An Uncomplicated Life, shared stories about his daughter, Jillian, who has Down syndrome. Jillian works two jobs - one at Northern Kentucky University athletic department and another at a Loveland school as a teacher's assistant.


Paul and his wife, Kerry, spoke about how employers who have hired Jillian have been better for the experience because she's productive, creative and cares about her coworkers. He encouraged businesses to take a chance and hire someone with a developmental disability.

 

Also, thank you to Judge Joseph Kirby of the Warren County Probate Court and John Martin, director of the Ohio Department of Developmental Disabilities, for speaking to attendees.

 

See more pictures on our Facebook page.
HCDDS employee to hit marathon milestone
marcia 
After May 6 Marcia Storm will be a Squealer, joining the elite club of people who completed 10 full Flying Pig Marathons. These 26.2 miles mark her 15th year participating in the Flying Pig, which celebrates its 20th anniversary this year.

Marcia Storm at Mile 25 during the 2017 Flying Pig Marathon
"Every once in a while life happens, so I've missed five," said Storm, a pediatric occupational therapist for Hamilton County DD Services Early Intervention program. "I love the Pig because it's local and it's awesome. My sister comes down from Wisconsin and does it with me every year."

Storm, 60, didn't initially set out to become an endurance athlete. Her first marathon was in North Dakota in 1981 - and she finished dead last. "It was so embarrassing. They were taking the finish line down as I got there," she said.

Not long after that, she blew out her knee on a ski trip. The doctor told her she had to give up long-distance running - no more than three miles at a time. "I thought, 'I hate the first three miles,' so I stopped until the Flying Pig started in 1998. I just decided they could give me new knees."

She ran the Flying Pig's full and half marathons until 2013, when she was in a car accident that later resulted in spinal fusion surgery. "After my surgeries, I could barely walk to the mailbox, and my doctor told me I couldn't run at all," she said. "I was pretty upset about not being able to run. I joined Queen City Walkers so I would stop saying 'I'm just walking' and embrace it."

The walking group encouraged her, but a trip to Norway to visit her son made her reconsider her marathon career. Together, they hiked 13 miles through fjords and mountain passes. That trip also inspired a new hobby-backpacking-and gave her the courage to try another marathon.  "I'm not fast, but I don't give up. I don't think it's hard-it's humbling to walk and not run at all-but I embrace it and keep moving forward," Storm said.

Marcia's collection of Flying Pig medals
To date, she's completed 21 full marathons and 46 half marathons, traveling around the country to feed her passion. Her marathons have taken her to Chicago, Tucson, Memphis, Washington DC and many other cities. Her favorite marathon was in Anchorage, when two of her children and their fiancées signed up for the relay so they could run with her. Storm's new goal is to complete all the marathons in Ohio. Two weeks after the Flying Pig, she'll head up to Cleveland to compete.

"I love being out there with people of all abilities, all ages and all sizes. Everyone has the same goal of having fun and being fit," she said. "It's just really fun and a fun way to have different adventures. And I'm not going to lie, I love the bling of the medal."

Good luck to Marcia and everyone else 
participating in the Flying Pig on May 6!

projectstir

Annual Report

Our 2017 Report to the Community will be published early next month. The annual report features statistics, highlights, stories and financial information from the past year. Sections include tailored supports, empowering providers, making connections and promoting health & safety. 

We'll post it on our website when it's available.

Project STIR

Project STIR is hosting a training in Cincinnati from July 23-25 designed to provide you and your ally tools to advocate for yourself, connect with others and gain leadership skills. 
This event is FREE for Hamilton County residents.

If you live outside Hamilton County and would like to attend, contact Dana Charlton at osda2011@gmail.com or (614) 562-137.

Register by June 15. Click here to learn more
Waiting List rule

The Ohio Department of DD recently released a new rule to improve Ohio's waiver waiting list. This proposal is the result of more than a year of work from a statewide coalition of people with DD and their families, advocacy groups and more.
 
Click here to read the rule, proposed solution and get answers to frequently asked questions. 

Feedback will be accepted until May 3.

On the radio Radio
Earlier this month we were featured on "Cincinnati Edition," a local radio show on 91.7 WVXU, to talk about Project CARE and preventing abuse of people with DD. 

Behavior Support Coordinator Kimi Remenyi and SSA Amanda Stegall joined Holly Watson, Project CARE manager for the YWCA of Cincinnati, and Bree Moss, a self-advocate for Project CARE. 

It was an engaging discussion highlighting some of the important work we do. If you missed it, you can listen online here
writers


The Huffington Post is looking to recruit writers with disabilities. 

"If you have a personal story or an opinion about living with a disability, we want to hear from you. Whatever your story is, email us with the subject: "Disability coverage."
Provider Guide Plus

Next month Provider Guide Plus, a statewide review website is set to go live across Ohio. This new website, piloted in three counties, allows families to review service providers.  We will share the website on our provider search tool when it's available in Hamilton County.
  • Safety Series. 9:30-11:30 a.m. Tuesday, May 1. This session's topic is engaging with first responders and professionals in an emergency. Click here for registration
  • The Resilience Approach.9 a.m. to noon Friday, May 4, at Kingsley. This session is for staff of DD, mental health and family organizations to learn about the impact of trauma and how to help people we support build resilience. Click here for a flier and more details. Register online
  • PigAbilities. 1 p.m. Saturday, May 5. This one-mile event is open to people with disabilities of all ages who want to be part of the Flying Pig Marathon weekend but do not want to compete. Registration is $15. Click here for a flier.
  • Faces of Autism. 7-9 p.m. Monday, May 7, at the Hilton Garden Inn in Blue Ash. This celebration features keynote speaker Brent Anderson, an award ceremony, and more. Click here for a flier and registration details.
  • HCDDS Board Meeting. 5 p.m. Tuesday, May 8, at the Support Center. 
  • Emerald Gala - Night of a Thousand Stars. 6:30 p.m. Friday, May 11, at Anderson Pavilion in Smale Park. Envision event to celebrate 55 years of supporting people. Dinner, raffles and more. Click here to buy tickets.
  • Preschool Parent Playtime. 10-11 a.m. Saturday, May 12, at the Mason Community Center. For children ages 3-6 on the autism spectrum to socialize and build skills in a structured environment. RSVP via email.
  • Trusts and STABLE accounts. 6:30 p.m. Tuesday, May 15, at Kingsley. Learn about STABLE accounts, special needs trusts and more with local experts. Free to attend. Click here for a flier or register online
  • Transition Bootcamp Booster Session: SSI/SSDI. 6-8 p.m. Monday, May 24, at the Cincinnati Children's Medical Office Building, 3430 Burnet Ave. Click here for a flier and registration details.
  • Aging well for people with DD. 9:15 a.m. to 12:30 p.m. Tuesday, May 29, at LADD's Center for Community Engagement, 3603 Victory Parkway. I ncreased life expectancy can bring new challenges. This training will focus on general wellness issues and environmental modifications, as well as the importance of ongoing social engagement. Click here for registration.
  • Future is Now. 6-8:30 p.m. Thursdays, June 7-26, at Starfire, 5030 Oaklawn Drive. This multi-part series is designed to help older caregivers and their family members make plans for the future. Throughout the series, families get help to create a letter of intent, a non-legal document capturing family desires and goals for the future. Click here for registration information.
     
  • Memory Café. 10:30-11:30 a.m. Tuesday, June 12, at the Harrison branch of the public library. This event is an opportunity to socialize and participate in activities for people with Alzheimer's or dementia and their caregivers. Click here for details.
  • Transition Bootcamp Booster Session. 6-8 p.m. Thursday, June 14, at the Cincinnati Children's Medical Office Building, 3430 Burnet Ave. This session will focus on Medicaid application, the determination process, and waiver services. Click here for a flier and registration details.
  • Tech Summit. 9 a.m. to 4 p.m. Friday, June 15 in Columbus. Learn about supports for accessible technology, sample devices to support people with DD, hear from families and connect with others. $50 for professionals. Free for adults with DD and family members. Click here to register.
     
  • Toilet training for children with ASD/DD. 5-8 p.m. Wednesdays, June 20 and 27, at the Cincinnati Children's Medical Office Building, 3430 Burnet Ave. This program coaches family members through toilet training their child and provides an opportunity for questions and answers. Cost is $25 and participants must attend both classes. . Register by calling 513-636-2742 or sending an email to Jennifer.gastright@cchmc.org.