null
September 2016
Newsletter.png
Serving Indiana
Question
 
Are flu and pneumonia vaccines safe if I have Lupus?  



Dear Friend,

As I write we are two short weeks away from our biggest fundraiser of the year, the Indy Walk to End Lupus Now, and, unbelievably, the leaves are starting to turn and we are getting into cooler weather and Fall. Didn't we just get the kids back to school a few shorts weeks ago?  

The change of seasons around here has been busy as usual with strategic planning, preparations for our November "Living with Lupus" seminar,and "Purple for a Purpose" Youth Experience, the launch of free yoga and tai chi classes for people with lupus and one caregiver, and readying for the upcoming October 1 st Walk in downtown Indy, at Military Park.  We absolutely love seeing so many of you participating from near and far - we now have 445 of you signed up to join our fundraising and awareness campaign at the Indy Walk!  As we have made calls to team captains and past participants we've been reminded of how lucky we are and what an amazing community of support we have behind all that we do.
 
As you plan for Fall Break and the upcoming holiday season, I hope you are able to find a bit of rest for a job well done on our behalf.  I also hope that we'll be lucky enough to have you participate in one of our upcoming educational seminars or yoga/tai chi classes or perhaps join us as a volunteer on October 1st - Walk day for Indianapolis!
 
Regardless of your plans, remember that we are always here for you as a resource and support  for you and/or your loved one's journey with lupus.  
 
As always, if you want to get more involved, have an idea to run by us, or simply just want to say hello, please stop in to visit or give us call!

Now focus these next two weeks on bringing in more dollars for our Chapter and helping us to make our 2016 Walk goal of $135,000.00. We can do this together! For our 10th Anniversary Indy Walk, why not ask 10 friends, co-workers, neighbors, or family members to give just $10 to support ending lupus. With ten $10.00 donations you'll earn your Club 100 T-shirt!
 
We can't wait to strengthen our bond with you on October 1st and to show Indianapolis a sea of purple-clad walkers!


Sincerely ,

Morgan E. McGill
CEO


I ndianapolis Walk to End Lupus Now™

It's almost time for the 10th anniversary of the Walk to End Lupus Now™ in Indianapolis on  Sat., October 1, at noon

We're very excited about this year's Walk  at Historic Military Park , 601 West New York Street in downtown Indianapolis!  The Walk site with registration form and all of the tools needed to build your team and  fundraise  is available here.

We hope you will plan on joining the fun of participating in this year's Walk to End Lupus Now™!  We need your help to raise critically needed funds for local support services, vital research for a cure, and to increase lupus awareness.

The Walk to End Lupus Now in 2016 includes :  1) an earlier End Lupus Now 5K (chip-timed) run; 2) a Kid Zone with balloon animals, face painting and a moon bounce; 3) entertainment by Toy Factory, local Indianapolis band; 4) grilled hot dogs, brats (with chips and a drink) and food truck offerings by Flying Cupcake, Frigid Frog, and a coffee vendor truck! 

Contact:  Lisa Kelly, Office Manager | 317.225.4400 | Lisa @lupusindiana.org  
Phone: 800.948.8806

 Check out National's video that shows the power of the movement and the Walk experience: 

Thank you to our Gold and Silver sponsors:
  


In Search of a Few Good Volunteers

We are looking for several health fair volunteers to help us on  Saturday, October 8th at the Indiana Latino Expo for 2-3 hour shifts. If you speak conversational Spanish and you would like to volunteer,  please email lisa@lupusindiana.org - Volunteers must be age 16 or older. The event is from 9-5 p.m. Different shift times are available. Admission is free. Location: Indiana Stair Fair Ground, 1202 E. 38th Street, Indianapolis, 46205.

Please get involved. SIGN UP TO VOLUNTEER TODAY!
   
We're also still looking for volunteers for our 10th Annual End Lupus Now Walk at Historic Military Park/Canal Walk on October 1st, 2016. Different shifts and stations are available. If you and your friends would like to volunteer, please email Terry Cala at calats717@aol.com. We hope to see you there!
Upcoming Events
September 18, 2016
Lupus Foundation at Bankers Life Fieldhouse
Indiana Fever Game
Tipoff @4:00 PM
Doors open @ 3:00 PM

September 24, 2016
Tai Chi Class at Dragonfly 360, from 11:30 AM-12:30 PM.
Click here to find out more.

October 1, 2016
Walk to End Lupus Now™, Indianapolis
H istoric Military Park
@ 12 noon

There is no fee to participate this year, however, fundraising is encouraged as we strive to raise $135,000 for our chapter activities and programs! Raise $100 or more and become a member of the Club 100 - receive a Commemorative Tshirt for this benchmark! 
This year includes musical entertainment by the local band Toy Factory, a Kid Zone, a 3 mile and 1 mile walk course, an earlier (11AM) chip-timed 5K running race for runners. Registration is required - please sign up early and join the fun! 
___________________

November 19, 2016
Purple For A Purpose Youth Experience
Park Tudor Middle School Media Center, 7200 N. College Ave.
Open to any youth or teen (7-19) who has lupus has family member with lupus. All attendees will participate in a 1-hour breakout and Q&A session with medical professionals from Riley Hospital for Children. There will also be an instructor-led canvas painting session. 


___________________

November 29, 2016
Living with Lupus Seminar - Valparaiso
Community Room, Porter Health Care System, 85 East, US Highway 6, Valpo 46383

Save the date! More details will be available soon at lupusindiana.org
 

Follow us @lfaindiana.
We are 208 followers and growing. Follow us!  


Please be reminded that if you would like to hold a Third-Party Fundraiser for our Foundation we will post your event on our Chapter website.

We want to let you know about a community partner hosting our Chapter on Saturday, September 17th. Peppers restaurant and bar, in the Lawrence area, will hold an LFA-Indiana Night to help us promote the Walk and fundraise towards our Walk goal of 135K! Board Member Carla Day will be on hand that evening to offer information to the public about our Chapter services and to generate excitement about our October 1st Walk event in downtown Indy.  The night will also feature a live band and there will be LFA-Indiana merchandise to purchase and customers can contribute to our cause by buying a special purple cocktail created by Peppers! 

 
We are hosting a chip-timed 5K Run as part of this year's Indianapolis Walk activities on October 1. Please tell your friends, neighbors and family members who are runners to sign up now at Itsyourrace.com (search "lupus" and "indianapolis). 

We want to have over 50 runners for this year's course through Canal Walk.  Awards will be given in multiple categories & runners can fundraise just like our Walk participants!

Click here to register & see you there! Check in at 10:30am, race begins at 11am. 



Hispanic Heritage Month
September 16 through October 15 is National Hispanic Heritage Month and we are highlighting resources available in Spanish to help diagnose, manage and cope with the disease. You can access these resources with 
English navigation 
here.





'Purple for a Purpose' Youth Experience Rescheduled for Fall ~ Please SAVE THE DATE for November 19th
'Purple for a Purpose' Youth Experience is an event for  children and teens ages 7-19 who have lupus or have a family member with lupus.  Parents are welcome to attend with their children. 
This educational and fun event, originally scheduled for July 30, has been rescheduled and will be held Saturday, November 19th from 1-4 p.m. Additional details and registration are available here.

 Funding the Mission
Make Your Mark™, our NEW community fundraising program. It gives everyone a chance to get involved in supporting the fight against lupus. If you have a love for cooking, biking, performing or even just getting together with friends for a good time, you can turn that passion into a wonderful way to raise money for a great cause. The Make Your Mark™ program will help you to create a unique event - so that you can make your mark in solving the cruel mystery of lupus.
 
HOST A PARTY!
Dedicate your wedding, Bar Mitzvah or birthday party to raise funds to end lupus. How about hosting a party at a bar with signature purple drinks? 
 
GET ACTIVE!
From marathons to 5Ks, triathlons to cycling events, walking, swimming or jumping rope the possibilities are endless.
 
DO WHATEVER YOU HAVE IN MIND!
Ever host a fashion show? Maybe you could do this at the community college or at your local church?

 

Support Groups
Join Our Team as a Support Group Facilitator

We are looking for some dedicated individuals to lead our support group meetings! We are currently in need of co-facilitators for existing support groups in Bloomington, Lafayette and Indianapolis East. We're also hoping to start new groups in Evansville and southeastern Indiana and need co-facilitators for these groups. Facilitators will need to attend a 4-hour training session which will be held on a Saturday in Oct or Nov. Read the  Facilitator Role Description:  

If you're interested or would like additional information, please contact Debbie Campbell.
What to expect when you attend our lupus support group meetings...A warm and caring environment  where people with lupus, their family members, caregivers, and loved ones spend time with others impacted by this complicated disease. Sharing experiences, methods of coping, and insights into living with lupus helps members develop coping strategies to reduce the stress that often accompanies living with a chronic illness.  We hope you'll attend a support group meeting soon.   Click here  to see all Indiana locations and details about each group.
Promising Research in Fight Against Autoimmune Diseases
In a new report released by the Pharmaceutical Research and Manufacturers of America (PhRMA) and Lupus Foundation of America (LFA), we have learned that American biopharmaceutical research companies currently have 311 medicines and vaccines specifically for autoimmune diseases. These drugs are in clinical trials or awaiting review by the U.S. Food and Drug Administration (FDA).  

Stephen J. Ubl, PhRMA's president and CEO says, "The question of why the immune system in some people attacks healthy cells remains top of mind for biopharmaceutical researchs striving to discover new treatments and cures for the 23.5 million Americans affected by autoimmune disease. For Lupus in particular, there are now 39 medicines (or vaccines) currently in development.  "While there are a number of challenges in diagnosing and treating these diseases," Ubl continued, "the significant progress that has been made in the last decade provides hope for the future."

Source: Lupus News Today, September 13, 2016
______________________________________________

Tai Chi for People With Lupus - Fall Programming 
Did you know that exercise and gentle yoga can lesson symptoms for people with lupus?   Over 90% of people with lupus experience joint or muscle pain. In September we launched our new yoga and tai chi offerings for people diagnosed with lupus - together with one caregiver. 

Stemming from feedback received in our strategic planning process, we have identified two expert practitioners to hold yoga and tai chi sessions on Saturdays for people with a lupus diagnosis and a caregiver/support person.   

The sessions will be held at IU North Hospital - 11700 N. Meridian Street, in their Learning Center rooms next to the concierge desk at north end of hospital across from the Cafe.  Yoga classes will be held the second Saturday of the month and tai chi classes will be held on the fourth Saturday. The next session is scheduled to take place on September 24th from 11:30AM-12:30PM. For this date only, the location is   Dragonfly360, 1724 E. 86th Street, Indianapolis. In October, classes will be held on the 3rd and 5th Saturday  from 11AM-12PM at IU North Hospital and in November and thereafter, classes will resume on the 2nd and 4th Saturday from 11AM - 12PM AT IU North Hospital.

Gentle Yoga is led by Pam Glenn, a long-time practioner and certified yoga instructor.  Tai Chi is led by Bonnie Sweeney , certified in Tai Chi for Arthritis. 

Registration is required. More details and registration is available here.

Questions?
 Contact Debbie Campbell at debbie@lupusindiana.org 
______________________________________________

Ask The Experts - Lupus & Clinical Research 
The development of more effective lupus treatments requires that new and innovative therapies be evaluated. Clinical trials are a part of clinical research and lead to the evaluation of safe and effective new drugs or treatment strategies. You can learn more about clinical trials by listening to this audio recording and downloading the accompanying presentation in the link below.

 
Answer:  Overall, the flu shot is considered to be safe and effective for people with Lupus since they do not generally experience any side effects. The pneumonia vaccine is also recommended for people with Lupus, and a second dose should be given five years after the first dose.
 

If you're shopping online, don't forget that a portion of your purchase will benefit LFA Indiana Chapter when you shop using the links below.

Give Back While You Shop
 
Lupus Foundation of America, Indiana Chapter | 800.948.8806 | morgan@lupusindiana.org | http://www.lupus.org/indiana
9302 N. Meridian St., Ste. 203
Indianapolis, IN 46260