Lupus Foundation of America,
Philadelphia Tri-State Chapter

Fall Newsletter
In This Issue
Lupus Loop & Team Week Update
Current Research Update
Bridge Tournament
Quick Links
Ensure People with
Lupus Have
Treatment Options!
 

 

Take Action WebAd

 
Lupus Awareness on 
The View 

Check out Whoopi Goldberg as she helps raise awareness by talking about the signs and symptoms of lupus on The View. The LFA was thrilled to have her join us at the Butterfly Gala in New York City as a guest of our Global Ambassador, Julian Lennon.

 The View posted additional information about lupus on their blog as well. Watch the video now!

 

Upcoming Programs:

Register for Advances in Lupus Research: Spotlight on Treatment Webinar

Wednesday

October 26, 2011
5:30 Eastern Time

Join Dr. Susan Manzi, Member of the LFA Medical-Scientific Advisory Council and National Board of Directors, from Allegheny General Hospital as she leads a discussion with Dr. Michael Lockshin and Dr. Jane Salmon from Hospital for Special Surgery on the state of lupus research and new lupus treatments.

Register online today!

 

Lupus Update: Live,Learn and Ask
 
Presented by the

Penn Lupus Program
Saturday

November 19, 2011
9:00am-lunch
 

 

Penn Tower, 4th Floor Conference Room

34th St. &

Civic Center Blvd.

Philadelphia, PA


RSVP to Lindsey (SLE Program Coordinator) at 215-615-8515


 

Parents Caring for Children with Lupus

TELECONFERENCE 
 

Saturday, November 19, 2011
1:00-2:00pm
Presenter: Emily von Scheven, M.D.
 Register now

 

 

 

Stay in Touch
Join Our Mailing List
Community Events

We are always looking to get involved with events in the community! If you know of a health-related event in your area, or are thinking of running your own third party event to help in the fight against lupus, please

Contact Us now!

Stay Connected
Stay connected with us via Facebook & Twitter!


 


Upcoming Support Group Meetings
Delaware:
New Castle County:
Christiana Hospital
Room 1001
4755 Ogletown Stanton Rd.
Newark, DE 19718
Wednesday, October 28
(7:00-8:00pm) 

Aldersgate United Methodist Church
2313 Concord Pike
Wilmington, DE 19805
Saturday, November 12
Saturday, December 10
(9:30-10:30am)

Kent County:
Bayhealth Medical Center
640 S State Street
Dover, DE 19901
Tuesday, November 1
Tuesday, December 6
(6:00-8:00pm)

Pennsylvania:
Delaware County:
Riddle Hospital
Outpatient Pavilion
Lobby Level
1068 Baltimore Pike
Media, PA 19063
Saturday, November 5
Saturday, December 3
(10:30am-12:30pm) 

 Lancaster County:
Lancaster General Health Campus, 2nd Floor
Conference Room #2
2100 Harrisburg Pike
Lancaster, PA 17601
Sunday, October 16
Sunday, November 20
Sunday, December 18
(4:30-6:00pm)


Montgomery County:
Abington Memorial Hospital
Lenfest Building, P&G Room
Keith and Old York Roads
Abington, PA 19001
 
Wednesday, October 12
Wednesday, November 9
Wednesday, December 14
(7:00-9:00pm) 


Bala Cynwyd Library
Meeting Room, 2nd Floor
131 Old Lancaster Road
Bala Cynwyd, PA 19004
Saturday, November 12
(12:00-2:00pm)

St. Eleanor's Church
St. Eleanor's Rectory Meeting Room
647 Locust Street
Collegeville, PA 19426
Wednesday, October 12
Wednesday, October 26
Wednesday, November 9
(7:00-8:30pm)

South Jersey Support Group Coming Soon!
October 2011
Greetings!

Ten years ago I lost my aunt to lupus. At the time, it left a hole in my heart. I found solace in the words of Helen Keller: "What we have once enjoyed we can never lose. All that we love deeply becomes a part of us." Over time I filled that hole in my heart with memories of Cindy, and with the resolve to fight against lupus in her memory. Cindy and lupus will always be a part of me.

Therefore, although my term as Chair of the Board of Directors has ended, there's no point in saying goodbye. First, the Arnold family will continue its strong support of the Philadelphia Tri-State Chapter and Team Haas will always be a presence at the Lupus Loop. Second, the Chapter's work is hardly finished, so it seems silly to pat ourselves on the back when we have so much more to accomplish. This will not be a lengthy, emotional, "goodbye column."

Instead, I would like to take this opportunity to recognize and thank a lot of very deserving people. First and foremost, many thanks to you, our readers, donors and volunteers, who continue to support us during an extended economic downturn that has forced many non-profits to close their doors. We cease to exist without the financial support we get from unrestricted donations, membership fees, and special events.

Next, thank you so very much to our dedicated Board Members, past, present and future. Our Board Members carve out time away from family and work to map the future of the Philadelphia Tri-State Chapter and ensure that we advance our mission. My predecessors, Hope White and Eileen Harmon Council, laid a foundation for leadership that will be carried forward by our new Board Chair, Debra Riegel Jepson. Deb, who battles lupus with dogged determination and bravery, is an inspired choice to lead the Chapter. My deepest thanks to Dr. Laura McCloskey and Cheri Peron, who rotate off the Board after six years of service marked many years on the Executive Committee and by immeasurable contributions to the Chapter.

Thank you to our Chapter Staff, who breathe life into our mission every day, who wear the lupus cause on their sleeves, and who have just the rights words for everyone, be it a scared lupus patient, a Congresswoman, a rheumatologist, or potential donor.

Finally, please indulge me in a brief moment of selfishness while I thank my family for supporting the Foundation for well over twenty years. My parents, sister, aunts, uncles and cousins are all dedicated volunteers and donors. My grandmother, Bev Haas, my personal hero, has fought tooth and nail against lupus since Cindy's diagnosis in 1991. And to my wife, Danielle, my son Caden and his soon-to-be little sister, thank you for supporting my pursuit of this worthy cause and listening to me complain about the difficulties of conducting Board business via conference calls.

At this point, I'm sure the Chapter Staff would like me to get on to Chapter business. Past electronic and print newsletters have addressed our territorial expansion to Southern New Jersey and Delaware, the FDA's historic approval of Benlysta, the importance of sharing your lupus story during Lupus Awareness Month, and so on. This one is all about the Lupus Loop.

Believe it or not, we were doing the Lupus Loop 20 years ago. We would like to commemorate this, our 20th anniversary, with our most successful and most inspirational Lupus Loop yet. Thanks to the overwhelming success of the Washington D.C. ($300k+) and Atlanta ($400k+) Walk for Lupus Now events this past spring, we set a very aggressive but attainable goal of $295,000. To accomplish this, we ask that you to take ownership of the Loop. By way of example, consider hosting a pre-Loop fundraiser, think about potential corporate sponsorship opportunities for your team, your company's matching gift program or call the office to discuss volunteer opportunities for student groups.

I leave you with a final thought. The early Lupus Loop events in the mid 1990's bring back memories of extremely cold, dark mornings at Memorial Hall with a couple hundred people huddled under blankets. This stands in stark contrast to the magical Lupus Loops of recent years. Upon reflection, the weather has always been about the same, it's my perception that has changed. Walking amongst thousands of people with a common goal to cure lupus fills that hole in my heart and provides all the sunshine we need.

Joseph Arnold

2010/2011 Chair, Board of Directors

 

Lupus Loop & Team Week Update
 
Lupus Loop LogoThe Lupus Loop
The 20th Annual Lupus Loop 5K Run & 2.5 Mile Walk for Lupus Now is less than two weeks away!  To date, we are 44% of the way to our goal with $128,407 raised by some 1,896 participants!  Let's keep up the momentum and break our attendance and fundraising goals!

For more information, and to register for the 2011 Lupus Loop, please visit www.lupusloop.org, and stay tuned for more surprises leading up to October 30, 2011.

 

Thanks to all who participated in our first annual Team Week! We had events to help us "Countdown to the Loop" at Texas Roadhouse in Royersford, PA, Chili's Bar and Grill Restaurant in Bala Cynwyd, PA and PJ Whelihan's in Blue Bell, PA and Cherry Hill, NJ. With your help, we have 269 teams registered...a new record!  Thank you to everyone who helped make these events such a success! Congratulations to our Team Week winners:
  • Monday-The Lupinators
  • Tuesday-Jamie's Gems
  • Wednesday-Kalanaa's Angels
  • Thursday-Cyndi's Angels
  • Friday-Curry Crew and Ria's Dream Team

Congratulations go to The Lupinators for registering 19 team members during Team Week, taking the grand prize, lunch for 10 at Tavern on Broad

 

Upcoming Deadlines to Note:
  • Early-bird discount registration ends midnight on Wednesday, October 19th! 
  • Pre-registration closes midnight on Sunday, October 23rd. 
  • We have exciting news too...the LFA, Philadelphia Tri-State Chapter will receive an additional $1 for every participant that pre-registers via a grant!  So be sure to get registered by midnight on 10/23!
     
  • Fundraising Incentives include:
    • Registration Fee or raise $100 - participant earns a Lupus Loop event T-Shirt
    • $300+ Team or Fundraiser earns a course marker sign
    • $500+ Participant earns 20th Anniversary Lupus Loop Sweatshirt*
    • $1,000+ Bronze Level, Circle of Friends*
    • $2,500+ Silver Level, Circle of Friends*
    • $5,000+ Gold Level, Circle of Friends*
    • 10,000+ Platinum Level, Circle of Friends*

*Specific fundraising prizes will be awarded 30 days after Loop Day, so keep fundraising and help us reach our goal! 

 

 

Special Guests

 

Current Research Update
Congratulations to 2011 Nobel Prize Winners  
The Lupus Foundation of America, Philadelphia Tri-State Chapter congratulates the 2011 Nobel Prize in Medicine Recipients for Immune System Discoveries. Bruce A. Beutle, Jules A. Hoffmann, and Ralph M. Steinman received the 2011 Nobel Prize in Medicine for their revolutionary discoveries of the immune system, which have contributed to key advances in the understanding of and treatments for autoimmune diseases, such as lupus.
Read More>>

New Experimental Molecule Neutralizes Lupus Autoantibodies
Lupus can produce autoantibodies (in particular, autoantibodies to double-stranded DNA) that cause inflammation and damage cells and organs in the body. Researchers have long investigated the possibility of blocking the actions of these autoantibodies to reduce the extent of such damage. Researchers at the Feinstein Institute for Medical Research have created a new experimental molecule to test its ability to inhibit autoantibody attachment to double-stranded DNA from mice, in addition to organs damaged from lupus. The results of these studies provide hope for the development of more specific, less toxic therapies for lupus. More animal research is needed, however, before this molecule can be tested in living humans with lupus.
Read More>>
 
Lupus and the Flu
As cold weather approaches, individuals with lupus should take steps to protect themselves against the flu and pneumonia. Check out LFA's Flu and Pneumonia Vaccines page for information on the seasonal influenza (flu) and pneumonia vaccines.
Bridge Tournament
The 9th Annual Bridge Tournament for Lupus was held on Monday, September 26, 2011 at Green Valley Country Club in Lafayette Hill, Pennsylvania. This year's event brought in over $11,000 thanks to the support of all of our raffle donors, event sponsors, bridge players and volunteers.  Special thanks are extended to our Event Chair, Dr. Arlyne Shockman and committee member Beverly Haas!
 
Click here to see the results from the 2011 Bridge Tournament for Lupus.