News & Views   
            Summer 2014

 
    www.hearinglossnyc.org      voicemail:  212-769-HEAR       [email protected]g

                    The Hearing Loss Association of America exists to open the world of communication
                   to people with hearing loss through information, support, education and advocacy. 
  

Where will pigs in the blanket, an NBA superstar, and people with hearing loss come together?

 

 

AT THE NYC WALK4HEARING KICKOFF!

               By Anna Bella D'Amico, age 12

 

Join me at Walt "Clyde" Frasier's Wine and Dine for the New York City Walk4Hearing Kickoff. You will enjoy amazing appetizers and receive a ticket for one complimentary drink. Plus, you can challenge your friends to a free-throw contest! There will be prizes for the top three winners and giveaways all night long.

 

I would also like to take this opportunity to introduce to you our new Business Team Chair, Rodney Schutt, President of Widex, USA. Rodney and his team are very excited to be joining us this year and look forward to meeting all of you at the kickoff!

 

Kick Off Information:

Date: Tuesday, August 12, 2014

Location: Clyde Frasier's Wine and Dine

    485 10th Ave. (between 37th and 38th Sts.)

    New York, NY 10018

Time: 6:00-8:00 pm

 

RSVP for the Kickoff, by contacting Suzanne D'Amico at [email protected] or

347-731-1883 no later than August 3.


SAVE THE DATE

NYC Chapter Meeting

Tuesday, September 16th
5:30-7:30 PM
Muhlenberg Library
209 W. 23rd Street
3rd Floor Community Room

"The Latest and Greatest in Hearing Aids"
featuring
Joseph Montano, E.D.
Director, Hearing & Speech
Weill Cornell Medical College
 
AWARDS NIGHT

 

On June 3, our chapter continued its seven-year tradition of awarding scholarships to high-achieving high school seniors with hearing loss, and began a new tradition honoring people who have advanced hearing accessibility in the community. 

 

This year's scholarship recipients, who each received $1,500 to be applied toward a college education, were Samuel Lum and Mamadou Ly. The first Distinguished Leadership in Hearing Accommodations Awards recipients were Francesca Rosenberg and Ted Finkelstein.

From left: Ted Finkelstein, Mamadou Ly, Samuel Lum, and Francesca Rosenberg

Introducing Francesca, the Museum of Modern Art's Director of Community, Access, and School Programs, Ruth Bernstein noted that, thanks to Francesca, much of MoMA - including the information, ticket, and audio guide desks, the theaters, and some classrooms - now has induction loops. Assistive listening devices are also available, and CART and sign-language interpretation can be scheduled. 

 

In her acceptance speech, Francesca indicated that in her view "Compliance with the Americans with Disabilities Act is not enough. At MoMA we strive to go above and beyond, embedding a philosophy of accessibility and inclusivity in all aspects of the museum's operations. We aim to achieve equality of participation for every visitor."

 

Ted Finkelstein's introduction, written by Ellen Semel and read by Ruth Bernstein, pointed out that as Director of the New York City Commission on Human Rights' Equal Access Program, Ted helped pave the the way for hearing loop installation in a number of public places, including Penn Station and Grand Central Station ticket counters and information booths, and at Riverside Memorial Chapel.

 

Ted, upon accepting the award, said that organizations such as HLAA, by "fighting for the rights and dignity of people with disabilities," are instrumental in advancing the cause of equal access. He also acknowledged that access is a step-by-step process that involves many individual battles. "As long as you bring the things you need to my attention," he said, "I will fight for you. And I will advocate for you."

 

Scholarship winner Samual Lum, who will attend the Rochester Institute of Technology in the fall, was director of his high school's radio and space observatory, as well as a table tennis coach and member of his school's track and field team despite being diagnosed with a severe to profound hearing loss when he was two. Samuel talked about his evolution from shy elementary school student to active and involved middle- and upper-school student. His most recent project is a radio astronomy initiative that is designed to study the sun, Jupiter, black holes, and other outer-space phenomena. It is his belief that "with collaboration, anything is possible."

 

Scholarship winner Mamadou Ly, who has worn hearing aids in both ears since he was 12, will attend Fordham University in the fall. A Key Club member, tutor, lacrosse player, and charity fundraiser, he said that he was self-conscious about his hearing aids at first, but pleased that the aids enabled him to function better in school and social situations. An aspiring surgeon, Mamadou hopes to ultimately build his own hospital.

 

THE AUDIOLOGISTS: 

ASKED AND ANSWERED

 

The May 20 meeting featured a lively Q and A session with Ellen Lafargue, Director of Audiology at the Center for Hearing and Communication, Michael Bergen, Director of Brooklyn College's Speech and Hearing Center, and Jaclyn Spitzer, Director of Audiology and Pathology at Columbia University Medical Center. Read on for a sampling of the exchanges.

 

Q. Seniors sometimes have difficulty loading batteries into their hearing aids. Is there some way to make this task easier?

A. There is no battery-changing device, but some manufacturers sell hearing aids that are rechargeable so that the battery only has to be replaced every few months.

 

Q. If I want a particular type of hearing aid, how do I determine where to purchase that aid?

 A. Go to the manufacturer's website and click on "Find a Hearing Center," "Find a Clinic," or "Find an Audiologist."

 

Q. How do I determine which hearing aid manufacturer an audiologist works with?

A. You can ask directly whether the audiologist or hearing center dispenses products from one manufacturer or several manufacturers. Bear in mind that you're not looking for the audiologist with the longest list of manufacturers; you want audiologists who are very knowledgeable about the products they dispense.

 

Q. A key reason many people avoid purchasing hearing aids is the steep cost. What are the benefits of a $800 or $1,000 hearing aid vs. a $3,000 or $4,000 aid?

A. People who are very active professionally and socially will be better off with the technology that is available in more expensive hearing aids. Someone who spends most of his or her time in a quiet environment probably will do fine with a less technologically advanced - and therefore cheaper - aid. Because in New York hearing aid consumers are entitled to a 45-day trial period, a good strategy is to try different aids to assess which device best meets your communication needs. Bear in mind, too, that technology changes over time. If you have become accustomed to an aid that is no longer on the market, one option is to purchase a refurbished hearing aid that has the features you prefer. Less pricey devices that help people with hearing loss include loop receivers and, for home use, infrared wireless headphones.

 

Q. What is being done to educate audiologists about how to educate people with hearing loss regarding the extent of their hearing loss and what is the best way to compensate for and cope with that loss?

A. People have to be their own best advocates; if you're not asking questions and challenging recommendations that don't seem suitable for you, you're being passive. You want to be an independent person with a hearing loss and an independent consumer. 

 

The audiologists acknowledged that a 45-day or even a 60-day trial period is not sufficient time to adjust to a new hearing aid; the process takes from six to nine months. The trial period does, however, give users an opportunity to gauge whether they are doing better than they were with their previous aid - or without an aid. If necessary, many audiologists will call the manufacturer to secure an extension of the trial period.

CONVENTION 2014

By Ruth Bernstein

 

Welcome y'all to my report about the 2014 HLAA Convention in Austin, Texas, attended by NYC chapter members Jerry Bergman, Sharon Bermon, Katherine Bouton, Barbara Bryan, Holly Cohen, Mary Fredericks, John Friedman, Joe Gordon, Toni Iacolucci, Carol Karasick, Anne Pope, and Gail Weiss.


Reports on rapid changes - inexpensive PSAPs (personal sound amplifiers), big box stores selling hearing aids, and new assistive technologies - took center stage at this convention.


At the Wireless Hearing Technology Workshop, AT&T, Sprint, and Verizon reps reported on their hearing loss services. During Q&A time I received a big round of applause after saying, "Whenever I go to my Verizon store, the staff has no idea how to answer my questions or communicate with me. It's time that sales reps were trained to assist customers with hearing loss. We represent a huge potential market." I repeated that request at the Emerging Technology Symposium the next day, and was told by Stephen Ewell, Executive Director of the Consumer Electronics Association Foundation, that the association is aware of the problems and is working on them.


At the opening session, HLAA Executive Director Anna Gilmore Hall said that HLAA is making a concerted effort to recruit members and get more national name recognition


 Composer Richard Einhorn spoke about his coping journey after sudden hearing loss. He uses a collection of assistive devices and apps that help him, he said, "thrive with hearing loss."


"Facilitating Communication with Smart Phones," presided over by audiologist Perry C. Hanavan, was an ear-opening event. In addition to learning about different ways to use smart phones, we heard about apps that control hearing aids, flash lights to notify you when the doorbell is ringing, and translate sign language into English.


At the Saturday evening Fiesta banquet, writer and hearing loss consultant Gael Hannan gave a laugh-till-your-sides-split performance about the vagaries of hearing loss. (For more on Gael's routine, see her blog entry in this issue of N&V.)


See you in St. Louis, June 25-28, 2015! 

 

  
   


 

Sunday, September 28,

 in Riverside Park, beginning at 97th Street and Riverside Avenue. Registration/check-in starts at 9 am; the walk starts at 10 am. Distance: 5 kilometers (3.1 miles).


 


 

The New York City walk is one of many that take place across the country. Indeed, thousands of walkers--children, young adults, the young at heart, and everyone in between-- form teams and walk in their communities to increase public awareness about hearing loss, help eradicate the stigma associated with it, and raise funds for programs and services.
 
To register, start your own team, or join a team, go to
 
ARE YOU A MEMBER
 OF HLAA?


Some who attend our Chapter meetings and receive our emails are not yet HLAA members. While our meetings are free and open to anyone, why not join HLAA and get all the benefits of membership? 

 

These include:

 

* Advice and encouragement from members who have faced hearing loss challenges similar to your own.

 

* A subscription to Hearing Loss Magazine, featuring information on products, services, and technology - and learning to live successfully with hearing loss.

 

* Discounts of 10-20% on purchases of hearing aids, assistive listening devices, and cell phones.

 

* Invitations to monthly chapter meetings - with CART (real-time captioning) and t-coil access - on topics such as hearing loss coping strategies, assistive technology, cochlear implants, TV and cinema captioning, and hearing access in theaters and other public places. Meetings include time for socializing.

 

* Opportunities to participate in advocacy efforts aimed at laws and policies that impact people with hearing loss.

 

 * Invitations to captioned webinars, seminars, and training events.

 

 * Discounted registration to the annual HLAA convention.

 

JOIN TODAY!


 Yearly membership rates are only $35 per year for individuals, $45 for a couple or family, and $20 for students. 

 

Join online 

 

OR

 

Download and mail in the 

membership form


 

Questions? Call 212-769-HEAR or email [email protected].

 

TWO OF OUR OWN HONORED AT NATIONAL CONVENTION

 

HLAA-NYC Chapter members Mary Fredericks and Ellen Semel were honored at the HLAA Convention in Austin, Texas.

 

Mary, who has been the indispensable secretary of our chapter since its inception, received the Spirit of HLAA Award.

 

Ellen, a driving force in the looping movement, received the Marcia Dugan Advocacy Award, which Anne Pope accepted on her behalf. We congratulate them both.

  
THE NEW AND IMPROVED  

Many thanks to Gian Stone, son of National board member Toni Iacolucci, for his stellar work in designing, updating, and maintaining our chapter's website.
  
 
VOLUNTEER FOR HLAA
  
Whatever your interest - speaking, writing, marketing, public relations, or event planning - we welcome you to get involved.
  
We are always looking for volunteers for our annual Walk4Hearing and street/health fairs. Interested? Please complete and return the NYC Chapter Volunteer Form.
Questions?  Email [email protected]

 

 

HONOR SOMEONE SPECIAL
IN YOUR LIFE
  

If you would like to honor a special person in your life with a gift to the NYC Chapter, please be sure to designate

 

     Birthday of ...

     Anniversary of ...

     Congratulations to ...

     In memory of ...

     In honor of ...

 

and mail names and addresses (along with your check payable to HLAA-NYC Chapter) to:

 

   HLAA-NYC Chapter

   P.O. Box 602

   Radio City Station

   New York, NY 10101

 

An acknowledgement will be sent to the honoree and an announcement will appear in News & Views. Donations are tax deductible.

 
 BLOG CORNER
 
Katherine Bouton
Author,
Shouting Won't Help:
Why I - and 50 Million Other Americans - Can't Hear You 

Why are airports and airlines so unaccomodating to passengers with hearing loss?
  
********************
   
Gael Hannan
Editor, 
The Better Hearing Consumer
  
  At this year's HLAA convention in Austin, Gael's HoH HoH comedy routine elicited many ho ho ho's from spectators.
 

THE GOOD NEWS IS... 


 

... that record numbers are attending our monthly Chapter meetings.  The not-so-good news is that we're running out of room. 

 

Ideally, we'd love to move to a midtown location, with easy-enough access to East and West-siders as well as to those coming into Penn Station or Grand Central.

If you have any suggestions, please contact  [email protected]

 

 

 

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Hearing Loss Association of America - New York City Chapter | i[email protected]

Copyright � 2014. All Rights Reserved.

 

HLAA is a volunteer association for people with hearing loss, their relatives, and friends. It is a nonprofit, nonsectarian educational organization devoted to the welfare and interests of those who cannot hear well. Your contribution is tax deductible to the extent allowed by law. We are a 501(c)(3) organization. Mention of suppliers and devices in this newsletter does not mean HLAA endorsement, nor does exclusion suggest disapproval.