ALL PROCEEDS WILL GO TO DEMI COMARDELLE
Demi has two genetic mutations coded for Hemophagocytic Lymphohistiocytosis (HLH), a very rare genetic mutation. In HLH, the immune system begins to damage the patient's own tissues and organs, including the liver, spleen, brain and bone marrow where blood is made. The only cure for this disease is a bone marrow transplant. Demi received a transplant in February 2018 at Children's Hospital of Cincinnati, Ohio.
Demi's twin sister, Daelyn, was diagnosed with HLH at 6 months old when she became very ill with uncontrollable fevers, enlarged spleen and liver. Daelyn faced 8 weeks of chemotherapy and high dosage steroids, which is treatment protocol when HLH is active. Daelyn received a bone marrow transplant October 12, 2017 and sadly passed away due to respiratory failure and the ventilator tube coming out of place on October 25, 2017.