On behalf of the "Faces of Preeclampsia" everywhere, we thank you for taking the time to help spread awareness about preeclampsia and HELLP syndrome.
In recognition of National Preeclampsia Awareness Month, we're hosting 40
Promise Walk for Preeclampsia events across the country to raise awareness and funds for this condition that impacts the whole family. We're still walking and talking about preeclampsia and want to share some of last month's highlights:
We hosted our second annual Twitter Town Hall with members of Congress who discussed efforts to reduce maternal mortality and morbidity. With 283 contributors, we reached 754,586 with 4,690,367 impressions!
Our Twitter Chat with March of Dimes and its Spanish counterpart Nacersano reached nearly 839,000 and generated 6,741,175 impressions.
We shared four sets of infographics and patient stories to highlight the month's weekly themes.
Thanks to all the engagement of our Facebook followers, our Likes increased by nearly 20% in May to 14,350!
Our partners like you posted and shared content with your constituents; you'll find links to the variety of media coverage here.
Preeclampsia Awareness Month may be over this year, but the need to educate and inform pregnant and new moms continues every single day. Our
website is a wealth of information -- check it out if you haven't recently!
A big thanks to our friends at rEVO Biologics, who matched the funds raised by their employee Wendy Kendrick in her Boston Marathon run last month! (From left) Senior Vice President of Commercial Operations Robert Greif personally delivered the giant check to Preeclampsia Foundation Executive Director Eleni Tsigas along with rEVO's Merry Harvey. Thank you, Wendy and rEVO, for your support of families affected by preeclampsia!
4 facts childbirth educators can share about preeclampsia
By Laney Poye, Director of Community Relations
Myths about preeclampsia are everywhere, both before and after a pregnant woman experiences the condition. As the Preeclampsia Foundation staff person who engages with patients, I am often at the frontline of sharing credible, research-driven facts with the patients we serve.
Sometimes myths are passed along by their peers. They can even be passed along by well-meaning, but misinformed care providers! It's our goal to make sure that patients are empowered with the information they need to understand their pregnancies.
Childbirth educators play a key role in informing families about the symptoms of this disease and providing emotional support during pregnancy and after delivery. They may also serve as the first line of defense in noticing that a pregnant person is not looking or feeling well and needs to check in with their healthcare provider.
Click below to read the rest of Laney's article recently published in the Lamaze International Science & Sensibility blog!
Save the date: Preeclampsia and HELLP Syndrome Patient Advocates Summit
Calling all families affected by preeclampsia, eclampsia, and HELLP syndrome -- you're invited to join us at the Preeclampsia and HELLP Syndrome Patient Advocates Summit at the Buena Vista Palace in Orlando, FL on October 14-16, 2016!
Do you want to make a difference in your community? Meet other survivors from around the country? Find out how to get started volunteering to further preeclampsia education, public awareness, and research?
Then join us at the Buena Vista Palace in Orlando, FL to bring our voices together for the collective good.
Registration is free and includes meals during the conference. Participants are responsible for their own travel and lodging in Orlando. Bring the family and turn it into a Disney World vacation!
Attendees will learn how to take action and build preeclampsia awareness and education in our local communities as well as meet other amazing advocates from across the country.
Reporting to the Preeclampsia Foundation's Executive Director, the Managing Director of the organization will implement the infrastructure and systems needed to support strategic objectives of a national nonprofit organization. S/he will be responsible for the oversight of management and administrative systems including finances, technology, human resources, legal/corporate, and facilities. Additionally, s/he will provide support for programmatic operations including planning, staffing, scaling, and other support activities for the organization's mission and fundraising areas. As a member of the senior management team, the Managing Director will be a seasoned and mature leader with at least 12-15 years of broad nonprofit operational and financial experience, involved in a range of strategic planning and internal initiatives. S/he will be a hands--on and participative manager and individual contributor.