24-month campaign to raise $6 million to fund the treatment for juvenile Batten disease The Be Project is Beyond Batten Disease Foundation's campaign to raise $6 million to fund the treatment discovered by BBDF-funded research. Thank you for contributing over $3.5 million towards our goal. Join the movement and get involved with the Be Project! WATCH THE VIDEO . With the new year upon us, we want to recognize the many ways you support our efforts and let you know about other ways to get involved in 2018.

BE A HERO $150,000 Matching Challenge!

Thank you to everyone who donated in honor of Garland's Birthday! To date, his Be a Hero campaign has raised over $250,000! The Starlight Fund has announced a $150,000 matching challenge to help Garland reach his goal. Every donation to Be a Hero will be matched dollar for dollar. Please share his video and spread the word so we can help him add another $300,000 to his total.

You can text HERO to 501501 to give $10 or donate on his   fundraising page . You can also make a donation via Venmo @beyondbatten or PayPal.me/bbdf .

RECENT PRESS Austin American Statesman - Article KVUE Austin - Video KXAN Austin - Video

NEW FAMILY FUND Tyler's Mission We welcome Tyler's Mission to BBDF's family of funds. By pooling resources and connecting communities we are able to expand our impact and accelerate research to accomplish our collective goals.

Go Tyler! Beat Batten! Last year, the Kim family received the devastating news that their youngest child, Tyler, suffers from juvenile Batten disease. The Kims quickly reached out to Beyond Batten Disease Foundation for help and guidance. To find out more about Tyler's Mission visit the website . "While our hearts are broken, we are incredibly blessed that today, Tyler is in great physical and mental shape... Our family and Team Tyler's mission is to find a cure and defeat Batten disease." - The Kim Family

UPCOMING FUNDRAISERS Run to the Sun Fun Run February 3, 2018 - Austin, TX The 3rd annual Run to the Sun Fun Run will take place on Saturday, February 3, 2018 at Camp Mabry in Austin, TX. This year's event includes a 5K and Kids' K, so bring the whole family for a day of fitness, fun and philanthropy! For more information and to register for the event please visit beyondbatten.org/funrun.

Taking a Swing at Batten February 18, 2018 - Austin, TX Join BBDF's Youth Leadership Committee as they take a swing at Batten disease on Sunday, February 18, 2018 in Austin, TX. Admission includes 3 hours of TopGolf Play, appetizers and unlimited non-alcoholic drinks. To sponsor or register please visit beyondbatten.org/events/topgolf. Thank you to our sponsors: Covert Auto Group, Smiles of Austin, HillCo Partners, DeDe Church & Associates Shannon Windham, Realtor and Jaguar Land Rover Austin.

Hope on the Green April 9, 2018 - The Woodlands, TX Save the Date for the 9th annual Hope on the Green golf tournament benefitting the Will Herndon Research Fund at Beyond Batten Disease Foundation. Tickets and sponsorships available soon, stay tuned!

FUNDRAISING SUCCESS Beyond Batten Disease Foundation's strategy brings together our donors and other affected families to connect communities and resources to achieve our goal. We are so grateful for our family and community partners. If you are interested in hosting your own fundraiser email [email protected] or call us at 512.275.2600 . Every dollar gets us one step closer to finding a cure!

Holiday Party We'd like to express our heartfelt thanks to Allison and Clint Small, Janie and Casey Brydson, Jennifer and Trey Webb, and Shawna and Scott DeShazo for hosting a holiday open house and collecting donations for BBDF! Their collections raised $1,000. If you are interested in hosting your own fundraiser email [email protected] or call us at 512.275.2600 . Every dollar gets us one step closer to finding a cure!

Giving Tuesday This year our family and community partners raised over $15,000 via facebook fundraisers. Special thanks to: Jen Airdo, Gina Bertrand, Catherine Anne Eiserle, Missy Herndon, Robin Garland, Jessica Kemp, Kasandra Keyes, The Kim Family, Jo Klein, Jessica Peterson, Amy Phillips and Pryor Robertson. Facebook fundraising is easy! You just visit our facebook page , click on fundraisers in the left panel and set a goal.

BE THE CHANGE Kids Bake Sale Olivia and Finley Brown, Claire and Tripp Craddick, Wyatt and Flynn Eby and Owen Strauss hosted an impromptu bake sale in their neighborhood that raised $152! Flynn and Olivia made all of the cupcakes from scratch and Wyatt and Finley helped them sell. Some kids started as customers and then stayed to help out! Thanks to all who host bake sales and lemonade stands to raise money for research!

IN MEMORY Tyler Allman April 9, 2001 - January 21, 2018

Our community lost a super hero to Batten disease when Tyler Allman passed away last week. The Allman family and the Team Tyler community have been committed BBDF partners and our hearts and condolences go out to them.  "Surrounded by his parents and brother, Tyler peacefully entered the Kingdom of Heaven on January 21, 2018... Our son Tyler brought more inspiration in his 16 years than most do in a lifetime." Read the full obituary/send your condolences