MONDAY MORNING MEMO
April 17, 2017


 
 
CalABLE Stakeholders
 
The CalABLE team would like to invite you, as a critical stakeholder of the CalABLE Program, to join a webinar workshop on   April 17.
 
Targeted specifically for service providers, this will be an opportunity for representatives to ask questions about the CalABLE Program and discuss strategies for collaboration in providing program information and education to your consumers.
 
WHEN :   Monday, April 17, 2017, 1:00 PM - 2:00 PM PDT

LANTERMAN COALITION OPPOSES AMERICAN HEALTH CARE ACT
Letter Sent To California Congressional Delegation

The Lanterman Coalition, consisting of 24 statewide organizations representing Californians with intellectual and developmental disabilities, opposes the American Health Care Act.  To view the letter The Arc and other coalition members signed on to, click here.


NEW PROGRAM DEVELOPMENT GRANT FROM STATE COUNCIL ON DEVELOPMENTAL DISABILITIES



 

Advocacy and Community Organizing
 
Each of our stories makes a difference!
"We Need to Come Out like the Gays in the 1960's!" -J.E. Robison 

It was not until John Elder Robison was forty that he was diagnosed on the autism spectrum. But now he goes around the country challenging others with autism and Aspergers syndrome and their families to speak out, to come out! 

What a message at the Autism Summit last week at Stanford University and SAP, sponsored by SAP, HPE (Hewlett Packard Enterprise), EY (Ernst & Young) and Microsoft. Two out of three of the first Keynote Speakers were on the spectrum, with the third being the author of NeuroTribes, The Legacy of Autism and the Future of Neurodiversity, Steve Silverman. 

But John Elder Robison goes on to describe how it was growing up in a family with his grandfather, father (a professor of philosophy) and his son with autism. He was warned "not to go near your cousins who are deaf & dumb and will bite & head butt you!" He ended up learning a great deal from his cousins!

He grew up in the South with one of his best friends a young black woman. She would share that when she came home from school and told the names that she was called, her parents told her to be 'Strong and Proud' like so many black leaders! However, when John came home telling that he had been called 'retarded' and stupid, his parents said that he came from "a long line of poop smearers"! There were no autistic leaders for him to look up to! 

He ended up leaving home after high school and being a sound engineer for the band Pink Floyd. He loved fixing old cars and started his own company rebuilding Bentley Automobiles! The company now works with a local high school and has students with autism learning life skills and automotive skills. Now he also a professor at William & Mary College and the author of three books about Aspergers, autism and mental health! 


Tim Hornbecker tim@thearcca.org 
Director of Advocacy and Community Organizing
The Arc California

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CALL FOR PROPOSALS, 
Arc NATIONAL CONVENTION

The Arc's 2017 National Convention
San Diego, California | November 1 - 4, 2017

Innovate | Motivate | Collaborate

Thank you for your interest in presenting at The Arc's 2017 National Convention.
 
This year's convention will be held at theSheraton San Diego Hotel & Marinaa 
in San Diego, CA on November 1-4, 2017. 

People with disabilities, their families, chapters of The Arc staff and volunteers, and others in our field and the business community need innovative solutions that will fuel our motivation and spark our spirit for collaboration. We are looking for knowledgeable, experienced presenters with: 
  • Expertise in critical issues important to people with intellectual/developmental disabilities (I/DD) and their families.
  • Experiences in fields and environments outside the disability community that highlight light novel perspectives and strategies that may translate.
  • A proven track record of presenting at national/international meetings in an engaging and interactive manner.
  • The ability to deliver information to a diverse audience including people with I/DD, families, professionals, business leaders and members of boards of directors.
If you have the passion to educate and energize the over 700 individuals who enthusiastically carry out our mission and values every day we invite you to submit a proposal to speak at The Arc's National Convention. 

Don't delay - all proposals must be submitted no later than 
11:59 p.m. EST on Friday, April 21, 2017.

To begin, either create a new account or login below if you already have an account. You may return to your submission page to make changes until the deadline for the call closes on Friday, April 21st at 11:59 pm EST. 

If you have any questions, please contact Kerry Mauger at mauger@thearc.org.  The Arc will contact you by May 22nd to inform you about the status of your submission. 

Click here  for proposal submission guidelines.


JUSTICE IN AGING WEBINAR:
Clients and Their Immigration Status

When: Friday, April 21, 2017 at 11:00 a.m PT/2:00 p.m. ET.

Are your senior clients coming to you with immigration-related questions? Recent events have left many people understandably confused and anxious. Need clarification on an immigrant older adult eligibility for safety net programs like Medicaid or SSI? Join Justice in Aging as we host a special immigration law webinar, Older Adults and Immigration: What Advocates Need to Know, with our partners from the National Immigration Law Center. Intended for an audience who work with low income seniors but who are not familiar with immigration law, this webinar will cover basic topics, like:
  • Different types of immigrants in our communities;
  • Rights and protections for immigrant seniors;
  • Immigrant senior eligibility for SSI, Social Security, Medicare, and Medicaid; and
  • Resources for individual assistance
This free webinar will also highlight some of the recent events affecting immigrant seniors and how they may be affected by changes in government policies.   

Presenter:
Gabrielle Lessard, Senior Policy Attorney, National Immigration Law Center

Moderator:  
Denny Chan, Staff Attorney, Justice in Aging

This webinar will take place on Friday, April 21, 2017 at 11:00 a.m PT/2:00 p.m. ET. 

SIGN UP FOR OUR CALIFORNIA ACTION ALERTS
SIGN UP FOR OUR NATIONAL ACTION ALERTS
   

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Teresa Anderson, Prevention Coordinator
HEALTH & WELLNESS ACTIVITIES

The Importance of Developmental Screening 
Teresa Anderson, MPH

I recently read a quote from Dr. Jose Cordero, Director of the National Center on Birth Defects and Developmental Disabilities (NCBDD), Centers of Disease Control and Prevention that really illustrates the importance of developmental screening.  He said: " For health care providers, we have a message that's pretty direct about autism. And the message is a 4-year-old with autism was once a three-year-old with autism, which was once a 2-year-old with autism."  With April being Autism Awareness Month it is a good opportunity to highlight the importance of development screening and more specifically screening for autism. 

There are several different screening tools that are used to gain information about a child's social and communicative development. Some of the screening tools rely exclusively of parent responses while others include a mix of parent responses and observation of the child.  First Signs is an organization dedicated to educating families and professionals about the early sign of autism and related disorders. They have conducted an extensive review of the screening tools available and have selected several that meet certain criteria and are considered to be highly validated, brief and easy to use and score. There is an important distinction between developmental and behavioral screening tools, autism screening tools and Asperger and high functioning autism screening tools because some of the developmental and behavioral screening tools are designed for broad use and don't have the sensitivity or specificity to screen for autism. For more information about the screening tools and uses visit:

First Signs
The Centers for Disease Control and Prevention
Autism Speaks

Screening tools are not intended to diagnose children but rather serve as a way to identify and refer children that could benefit from additional testing. The American Academy of Pediatrics recommends that all children get developmental screenings during well-child visits at 9 months, 18 months and 24 or 30 months and specifically autism screening at 18 and 24 months. Yet, Children Now reports that in California fewer than 1 in 3 young children receive timely developmental screenings. For more information on California's scorecard for children visit Children Now at: https://www.childrennow.org/reports-research/developmental-screening-infographic/

Recent controversy about universal autism screening has surfaced as a result of the U.S. Preventive Services Taskforce statement declining to recommend universal autism screening - citing insufficient evidence to warrant universal screening. However, The Arc of California maintains the position and policy consistent with the American Academy of Pediatrics (AAP) and advocates for increased awareness about the importance of screening all children for autism. For more information about the AAP recommendation for universal screening and their response to the U.S. Preventive Services Taskforce statement visit:


Teresa Anderson, MPH
The Arc California
Prevention Coordinator
teresa@thearcca.org
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UPCOMING EVENTS

October 5-6, 2017
31st Annual Supported Life Conference
"Designing Dreams: Blueprint for a Meaningful Life"
Crowne Plaza Sacramento Northeast
 
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RECENTLY RELEASED REPORTS, STUDIES, ETC.

http://calbudgetcenter.org/blog/president-trumps-child-care-proposal-benefits-struggling-families/
A Chart Prepared by the Center On Budget and Policy Priorities
 
Legislative Analyst's Office Report available:
The2017-18Budget:Proposition 98 Education Analysis
Contact  916-445-4656

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NEWS ARTICLES


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FUNDING OPPORTUNITIES



By the Center for Business Innovative Research (CBIR)


The following grant opportunity postings were made on the Grants.gov Find Opportunities service:

California Achieving a Better Life Experience (ABLE) Act Board for People with Disabilities is now seeking Investment Consultant Services. All interested in responding to this Request for Proposals ("RFP") may find it on the Cal E-Procure website. Please search for the RFP using Event IE: 4330.


HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Partnerships to Achieve Health Equity Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=289362
 
USDOJ - Department of Justice Office on Violence Against Women OVW FY 2017 Transitional Housing Assistance Grants for Victims of Sexual Assault, Domestic Violence, Dating Violence and Stalking Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=290960
 
HHS - Department of Health and Human Services Substance Abuse and Mental Health Services Adminis Grants to Expand Substance Abuse Treatment Capacity in Family treatment Drug Courts [Short Title:  Family Treatment Drug Courts (FTDCs)] Synopsis 1
 
HHS - Department of Health and Human Services Health Resources and Services Administration Area Health Education Centers Program Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=289066
 
HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Announcement of Anticipated Availability of Funds for Embryo Donation and/or Adoption Grant Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=289300
 
EPA - Environmental Protection Agency FY17 ENVIRONMENTAL WORKFORCE DEVELOPMENT AND JOB TRAINING (EWDJT) GRANTS Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=290955
 
HHS - Department of Health and Human Services Office of the Assistant Secretary for Health FY17 Announcement of Anticipated Availability of Funds for Safety Research of Currently Recommended Immunizations in the United States and Other Vaccine Prototypes Synopsis 1 http://www.grants.gov/web/grants/view-opportunity.html?oppId=288893
 
HHS - Department of Health and Human Services Health Resources and Services Administration Maternal and Child Environmental Health Collaborative Improvement and Innovation Network (CoIIN) Synopsis 3 http://www.grants.gov/web/grants/view-opportunity.html?oppId=289694

 
 


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CAREER LADDER
The Arc of California posts job announcements in the Career Ladder section every week because we would like to contribute to steering quality candidates to professional positions that support people with disabilities and we are trying to communicate to Direct Support Professionals that there is a real "career ladder" in their chosen profession.
 
Jobs Page Links: Click Here

A job portal custom-designed for people on the autism spectrum. This portal is free for the autism community and developed in partnership between Autism Speaks and Rangam Consultants Inc.

The Legislative Director position is based in Sacramento and is part of the team responsible for DRC's legislative activities in California. The position reports to the Advocacy Director. The Legislative Director provides overall direction to DRC's public policy activities with the goal of increasing DRC's legislative presence.  The position supervises legislative advocates.


The Arc California
1225 8th Street, Suite 350
Sacramento, CA 95814

916.552.6619

Advocates for people with intellectual and all other developmental disabilities and their families since 1950.