August 2013  

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Serving IOWA

 
Question

What percentage of people with lupus will develop lupus nephritis within 10 years of their lupus diagnosis?   

 

    

Upcoming Events

Dear Friend of LFA-Iowa,
 September 28, 2013

  

 

    

Walk to End Lupus Now™
(formerly known as Walk for Lupus Now)
is coming to Iowa on September 28, 2013!

Where: Jordan Creek Town Center (lake area) West Des Moines, IA 
When:  9:00 am - 1:00 pm
Registration: Begins at 9:00 am
Walk begins: 10:00 am

Visit our website at www.iowalupuswalk.org

 

Register!  

Start a Team!  

Join a Team!  

Donate!

  

Call with questions: 515-279-3048

 


Please Support our Sponsors:













The Iowa Chapter is in full swing for our biggest fundraiser of the year, Walk to End Lupus Now, on September 28, 2013. The planning is going well and we are seeing good activity on the Walk website. If you haven't signed up yet, please do so at  www.iowalupuswalk.org.We still have a long way to go to reach our goal so we need everyone's help to get there!

 Please consider donating to yourself as a way of showing those you ask to support you just how committed you are to this cause.  

 

A special note to our Gmail users: Gmail has recently update your inbox. There are new tabs labeled Primary, Social and Promotions. These tabs are to help you better organize your inbox. This new system could change where your emails from  LFA, Iowa are delivered. If you want to make sure your emails from LFA, Iowa appear in the primary tab, please complete these simple steps.  

  1. Return to your Promotions inbox.
  2. Click and hold this email with your mouse, then drag it to the Primary inbox.
  3. When prompted, click the "yes" link to move future messages from LFA, Iowa to your inbox.

If you are not a Gmail user, and also want to ensure you are receiving emails from LFA, Iowa, follow your email's inbox instructions for adding LFA, Iowa to your email's "Safe Senders" list.

 

Sincerely,

 

Susan Brenny Kroska

Executive Director

info@lupusia.org 

515-279-3048    


TLAB's
Flock-A-Friend Fundraiser 
 
Our Teen Lupus Advocacy Board is doing a great fundraiser in the Des Moines metro area up until the Walk! It is called Flock-A-Friend.
You can donate:
  •  $15 dollars to roost 24 flamingos on your friend's lawn or  
  • $30 to roost 48 flamingos on your friend's lawn.

These little pink birds will decorate your friend's lawn for about 24 hours.   

The flocks will be picked up without charge. However,
to keep the flock moving, we hope that this flocking recipient will choose to send the flock on to another unsuspecting friend.

 The response has been wonderful so far!   

If you are interested in participating in this fun, you can email the Chapter at info@lupusia.org for the forms to complete. Payment can be made by check or online through the
Team Flockers page on our Walk website. 

 


Nick Cannon's Fight Against Lupus


Lupus can affect men, women, children, and even celebrities like Nick Cannon. In this new interview, Cannon talks openly about his diagnosis in 2012 and how he balances his thriving careers as an entertainer and entrepreneur while living with lupus. Learn more in the summer issue of Lupus Now® magazine.

READ MORE


New Awareness Campaign


New National Lupus Awareness Campaign

The pharmaceutical company GlaxoSmithKline has launched a new national lupus awareness campaign called "Brave Face." The campaign, which includes a new website and patient tools, is designed to encourage an open and honest discussion between physicians and lupus patients. An open dialogue will help ensure lupus patients are armed with proper treatment and disease management strategies.

LEARN MORE

 

Wellness Update

Advocacy

 

Get the Most Out of Your Medications

A lupus diagnosis often requires people to take several medications every day, and it is critical to take each medication properly to avoid any other complications. Keeping track of medications can feel overwhelming but there are resources to help. Read stories from people with lupus about how taking their medication correctly positively benefited their lives.


LEARN MORE 

 

Senate Committee Supports Increased Research Funding

Our activists were heard! The Senate Appropriations Committee approves a boost for research funding at the NIH and for other federal lupus programs. Though the bill has a long and difficult journey ahead, the Lupus Foundation of America applauds their efforts to elevate lupus on the nation's healthcare agenda.

LEARN MORE   

 

Watch the Advocacy Summit highlights video! 


Help Us Solve the Cruel Mystery!

The Lupus Foundation of America, Iowa Chapter is part of  the only national force devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus.


 


Answer

Between 50 and 60 percent of people with lupus will develop lupus nephritis within 10 years of their lupus diagnosis.

Learn more about lupus nephritis.