October 2013   



Serving IOWA

If I consider participating in the Health Insurance Marketplace, what information will I need to gather before enrolling?

Dear Friend of LFA-Iowa,

Our Walk was a great success on September 28, 2013, raising over $60,000 with nearly 500

participants! It was an inspiring event for those with lupus, as well as their families, friends and supporters to come together in a festive (and at times, wet) environment while learning, networking, and raising funds and awareness for an important cause.


Every step and every donation helps our efforts to solve the cruel mystery of lupus. Since people with lupus may not look sick, they may suffer from lack of sympathy and support as well as from physiological harm. When it comes to the emotional turmoil and suffering of lupus, we are here to listen and to make sure that everyone with lupus gets answers and support. Ninety percent of every dollar donated stays in Iowa ensuring the Chapter continues to provide and expand the only free statewide education, programs and awareness. The Chapter also supports the national LFA research efforts funding and advocating for investment in lupus.

You can still donate at:  

   Call with questions: 



Please thank our major Walk sponsors listed to the right.
 We couldn't have done it without them! 


We are very pleased to announce the launch of the new Lupus Foundation of America, Iowa Chapter website. The new site is part of a national roll out with the Lupus Foundation of America and features an information portal, enhanced visitor experience and expanded content.

Our "answer rich" new website beautifully underscores our brand identity while ensuring people with lupus or those interested in learning more about the disease can quickly get the answers and support they need.  Because lupus is a misunderstood and unpredictable disease, this site is a valuable resource in providing those with lupus the best medially sound information to help them manage the ways lupus can impact their lives.

Among the many new features, visitors will find:
  • Q & A formats that group information by audience
  • Articles that can be share via social media or email
  • Navigation that provides related articles, news, and videos based on personal interest
  • Information that can be filtered by topic

We hope you will explore our new website, lupusia.org


Set 'Iowa' as Your Local Chapter  

When you visit the site, you can set the Iowa Chapter as your local chapter so anytime you visit a Lupus Foundation of America webpage, our local chapter will always show at the top.

We are very proud of our new website and hope you take the time to explore the information available at your fingertips. It is user-friendly and a great resource for lupus patients, as well as their family, caregivers and friends. 




Susan Brenny Kroska

Executive Director



More photos on our Facebook page:

Getting the Most from your Doctor's Appointment

Tips for Appointments with Doctor


In order to continue living well with lupus, it is essential that you have access to high quality information about the diagnosis, treatment and management of the disease. This month, Dawn E. Isherwood, Lupus Foundation of America Health Educator, shares tips on the best ways to ensure that your doctor's appointment is as successful as possible. Read more to find out what steps you can take to make your doctor's appointment beneficial to you.




New Light Shed on Photosensitivity among People with Lupus

A new, small study conducted at the University of Pennsylvania sheds new light on photosensitivity among people with lupus. The study published in the Journal of the American Academy of Dermatology, characterizes frequency and types of abnormal responses to sunlight in patients with different types of lupus, as well as the association of these reactions with systemic lupus.



Thyroid Therapy

Lupus Living



Thyroid Therapy


According to statistics from the Johns Hopkins Lupus Center, about 6 percent of people with lupus have hypothyroidism and 2 percent have overactive thyroid, or hyperthyroidism. A 2009 study published in the Journal of Clinical Rheumatology found that just over six percent of those with lupus tested had thyroid problems caused by autoimmune thyroid disease, compared with two percent in the general population.   




New Health Insurance Marketplace  


The Lupus Foundation of America has gathered relevant links to resource on healthcare.gov and other appropriate resources about the Marketplace for people who have lupus to equip you with the information you need when making your own personal decisions about health insurance.   



Help Us Solve the Cruel Mystery!

The Lupus Foundation of America, Iowa Chapter is part of  the only national force devoted to solving the mystery of lupus, one of the world's cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. Through a comprehensive program of research, education, and advocacy, we lead the fight to improve the quality of life for all people affected by lupus.

Before you choose a health plan within the Marketplace, you will want to know how much coverage you will need, and then balance that with the cost of a health plan. It is helpful to make a list of your current doctors and medications to find out which health plans include them. The Lupus Foundation of America offers a list of questions people with lupus can use to ask about coverage when considering enrolling in a health plan within the Marketplace. In addition, the Centers for Medicine and Medicaid Services (CMS) provides a checklist that you can use when gathering information before you consider enrolling in a health plan within the Marketplace.