Lupus Society of Illinois 

eChronicle January 2017
 We've Moved! 
Our new offices are: 
411 S. Wells St., Suite 710 | Chicago, IL 60607 
Our phone, email and website address will remain the same!  

In This Issue
Quick Links
Upcoming Events

Volunteers Needed for Lupus Clinical Trial

Do you have active lupus symptoms that are not fully controlled by your medications? 
If you so, you may be eligible for the XSEL clinical trial being conducted at Northwestern Memorial Hospital. Qualified participants will receive the investigation medication or placebo at no cost.

Please call our staff at 312-503-1919 between 8a.m. and 4 p.m. for more information.
Bank of America Shamrock Shuffle
Registration is open!

Join the Lupus Charity Runners for the Bank of America  Shamrock Shuffle 8K!

RACE DAY: Sunday, April 2, 2017
LOCATION: Chicago-Grant Park
TIME: 8:20am Find out more here.

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
To join contact Karen Mancera-Curevas at (312) 503-0251. 

Past Educational Events

LSI archives our past educational events.

Educational Teleconferences are recorded and posted to our website.

Check our our previous events here.
CFC #: 21759
A Message from the President & CEO

Happy New Year!

We hope everyone's year is off to a happy and healthy start!  LSI is working hard to achieve our mission and we hope to see you at many of our upcoming events.

First, this Saturday, join us for the annual Empowering Lupus Patients educational seminar.  This is the largest educational event LSI hosts and this year we have great topics - Lupus and the Workplace, presented by Dr. Erica Collins, LSI Board Member and Lupus and Legal Issues presented by attorney Hettie Collins.  

Like all of LSI's mission related activities, we select our topics on questions that come into the office and suggestions from you - our friends in the lupus community.

Registration is free and, since refreshments are provided, RSVPs are requested.  We hope to see you there!

The LSI Junior Board is hosting a unique activity coming up on February 25th - Bounce with Us offers participants a one-of-a-kind workout on trampolines!  Like all of the Junior Board's activities, this will be fun and heartfelt.  Space is limited and registration is $25 per person.  All participants get a fundraising page and prizes will be awarded!

The Illinois Lupus Walks are scheduled and open for registration!  Spring will be here before you know it and that means the start of Walk season!  

Funds raised through the Illinois Lupus Walks enable the LSI to continue to provide our programs and services at no cost to those in need.  And if you've ever been to an Illinois Lupus Walk, you know how warm and welcoming the lupus community is!  We hope to see you at one (or more!) of our walks!
Together we make a difference,
Charles Brummell

News You Can Use
Diagnosis Disputes: What to do when one doctor says you have lupus and another says you don't

Diagnosis disputes can happen while you're in the process of getting diagnosed or have been diagnosed for many years. 
Lupus is a difficult disease to diagnose.  The tests available provide indications for lupus; there is no single test for lupus.  The average lupus diagnosis can take many years.

Sometimes a primary physician or an OBGYN will be able to diagnose lupus, however, Rheumatologists are the specialists that treat lupus. If you suspect you have lupus or if you were not diagnosed by a Rheumatologist, you will certainly want to find a rheumatologist to provide ongoing care or to definitely diagnose lupus.

The American College of Rheumatology (ACR) is a professional membership organization committed to improving the care of patients with rheumatic diseases.  The ACR developed 11 criteria for lupus. In order to obtain a lupus diagnosis, patients must exhibit 4 of the 11 criteria:

Personal Story 
Why I'm Running the Bank of Americ a Chicago Ma rathon 
I'm Lauren Shold. Thank you so much for taking time out of your day to visit my fundraising page! This yr I have decided to run my first marathon. I will go from running only 3.1 miles in local 5ks to 26.2 miles at the Chicago Marathon on October 8th, 2017.

However, I am not running for myself. I am running for my mother, Holly Hoover. my mother is a beautiful selfless women who has lived with a dibilitating disease for most of her life. She raised my brother and I while my father was away flying in the miltary or flying as an airline pilot. She also maintained a full time job as a nurse, helping others who were sick or worse. I am running to help raise money and awareness for a currently incurable and horrofic disease that my mother has had since she was 12 yrs. Old, Lupus.

2017 Bank of America
Chicago Marathon
Guarantee Your Spot TODAY!
The Bank of America Chicago Marathon launched early this year! 

GUARANTEE YOUR SPOT in the 2017 event and join Lupus Charity Runners for the Bank of America Chicago Marathon!

Fundraising minimum for post-lottery guaranteed spots is
  • Live Training or Virtual Training through Chicago Endurance Sports!
  • 2 tickets to the pre-marathon pasta party! 
  • LSI Water Bottle + goodies! 
  • Lupus Charity Runner singlet! 
  • Additional fundraising incentives for exceeding your goal! 
  • Receive personalized fundraising webpage via FirstGiving to help you reach your fundraising goal!
  • LCR fundraising guide, creative tips and one-on-one assistance to help you reach your goal! 
  • Exhilaration of doing good for others while doing well for yourself



Register and find out more here 

Bounce with Us
LSI Junior Board Hosts Fun & Unique Activity!
Join the LSI Junior Board at Belicon Chicago for a one-of-a-kind workout on a trampoline!

Where: Bellicon Chicago; 650 W. Lake St., #240
When: Saturday, February 25, 2017
Time: 1:00pm
Price: $25 per person

Space is EXTREMELY limited!
Register NOW!

Questions?  call 312-542-0002 or email
Upcoming Educational Events

Empowering Lupus Patients Educational Seminar
Saturday, January 28, 2017
St. Xavier Univeristy
3700 W 103rd St.
Chicago, IL

9:30am - Check in/Reception begins

10:00am-11:00am Lupus and the Workplace
Presented by Erica Collins, PhD
About this presentation
Should I tell my employer about my lupus diagnosis?  What can I expect from my employer?  What can I expect from my co-workers? Working when you have a chronic disease like lupus can be challenging.  Find answers to these and other Human Resource issues during this informative presentation.

11:15am-12:45pm Lupus and Legal Issues
Presented by Hettie Collins
About this presentation
What is the Americans with Disabilities Act?  What is the difference between a Will and a Living Will?  Lupus and any chronic illness can create legal questions that can cause stress.  Find out more about lupus and legal issues at this informative presentation

1:00pm-1:30pm Living Well With Lupus Moderated Discussion
About this presentation
How have others learned to live well with lupus?  Join us as we learn from each other.   

There will be two fifteen minute breaks.
Light refreshments provided.

Registration Requested!  Online here or call 312-542-0002. 
Educational Teleconference
Lupus & The Blood presented by Dr. Zineb Aouhab

When: Thursday, March 9, 2017; 6:30pm-7:30pm
Registration: FREE & REQUIRED!

What are the blood tests for lupus?  What is anemia and how do I know if I have it? 

These are just two of the questions that will be answered at this informative teleconference.

Registration is required to receive the toll-free call in number.

Our Mission 
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
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