Lupus Society of Illinois 

eChronicle May 2017
 We've Moved! 
Our new offices are: 
411 S. Wells St., Suite 710 | Chicago, IL 60607 
Our phone, email and website address will remain the same!  

  When you #StartWithaSmile, Amazon donates 0.5% of the purchase price to Lupus Society of Illinois. Bookmark this link!  
In This Issue
Quick Links
Upcoming Events

2017 Bank of America 
Chicago Marathon

Guarantee Your Spot TODAY!
 
LSI has a few more spots!  Find out MORE 
Volunteers Needed for Lupus Clinical Trial

Do you have active lupus symptoms that are not fully controlled by your medications? 
 
If you so, you may be eligible for the XSEL clinical trial being conducted at Northwestern Memorial Hospital. Qualified participants will receive the investigation medication or placebo at no cost.

Please call our staff at 312-503-1919 between 8a.m. and 4 p.m. for more information.
  
Invitation  

You're Invited!

To become a member of the National Lupus Initiative!

A collaborative project of Northwestern University Feinberg School of Medicine and the Illinois Public Health Association Division of Health Equity.
 
To join contact Karen Mancera-Curevas at (312) 503-0251. 

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CFC #: 21759
Our Mission 
LSI promotes lupus awareness and complements the work of health care professionals by providing personalized resources for the lupus community while supporting research.
A Message from the President & CEO

Lupus Awareness Month is in full swing and we can't thank all of our volunteers enough for working so hard to increase lupus awareness in their own communities.
 
A special "thank you" goes to our Lupus Walk Ambassadors - Tara Joseph in the Northern Suburbs and Kanefus Walker in the Southern Suburbs. Both ladies have been long time supporters of lupus and the LSI and both have bravely shared their story to shed light on this often devastating disease. You can read Tara's story here and Kanefus's story begins below.
 
The Northern Suburbs Lupus Walk was May 7th and the skies were blue and the participants were smiling! Over 250 people participated and we anticipate raising $50,000! Thanks to everyone who participated.
 
Saturday is the Southern Suburbs Lupus Walk and we hope we'll see you there. Rain or shine, the warmth of the people at this event carries the day. We have a fantastic raffle, some great new additions to the Jr. Board tent and we are expecting a wonderful turnout!
 
We have the Western Suburbs Lupus Walk on August 12th and the Chicago Lupus Walk on September 24th so if you haven't been able to come out in May, we hope to see you at one of the upcoming events.
 
It's not too late to get involved in Lupus Awareness Month! We have plenty of opportunities and ideas left to raise awareness.
 
The LSI Junior Board is hosting a fun-raiser on Friday in Wrigleyville. The " Let's Not Wait 108 Years to Find a Cure for Lupus" event is free, a portion of food and beverages comes back to the LSI and 100% of the raffle is donated to the LSI. If you RSVP online by 2pm tomorrow, you'll get a FREE raffle ticket. There are some really terrific prizes - including tickets to the Goodman Theatre and a Flywheel Sports package - so you definitely want to take advantage of the free raffle ticket.
 
Bike the Drive is on Sunday, May 28th and you can join Lupus Charity Riders for the event. There's plenty of time to share the " Lupus Fact of the Day" - which is posted daily to Facebook and Twitter or you can pull up the list here. And posting an " I fight for lupus because" unselfie to social media with #LSILupusAwareness is always available.
 
We hope to see you at an LSI event in the near future.
 
Together we make a difference.
 
Charles Brummell
Illinois Lupus Walk  KK
Kanefus Walker - Southern Suburbs Lupus Walk Ambassador

This year, Kanefus Walker, lupus support group leader, will serve as Ambassador to the 9th annual Lupus Walk on May 20th, 2017.  

"Kanefus's history of leadership in the lupus community and her commitment to the fight against lupus make her an excellent ambassador for the Southern Suburbs Illinois Lupus Walk," says Charles Brummell, President & CEO of the Lupus Society of Illinois - the organization hosting the event and benefitting from funds raised.  "The Illinois Lupus Walks are about the lupus community coming together in strength - because when we're together we make a difference."

Kanefus has been instrumental in the success of the Southern Suburbs Lupus walk - getting involved since her diagnosis in 2009.  "I learned about the Illinois Lupus Walk through the lupus support group I was attending and decided to join the committee," Kanefus says.

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Lupus Awareness Month

Lupus Awareness Month is the time of year when the lupus community takes time to educate their families, workplaces and neighborhoods about lupus.  Education can be as modest as sending an email to your friends and family about lupus to organizing a Lupus Awareness Day at your office.  We encourage you to get creative as you raise awareness about this often misunderstood disease.

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World Lupus Day
May 10, 2017  
Bike the Drive
Join Lupus Charity Riders to celebrate Lupus Awareness Month!

Bike the Drive is a Chicago tradition.  Since it falls in May, it's a great time to increase lupus awareness!

Register for the event here and then sign up to ride for lupus here.

Raising funds is great - raising awareness is greater!

Questions?  Contact mary@lupusil.org or call 312-542-0002. 
 
New Incentive Prizes Announced!

Vivir bien con lupus
Spanish Language Ed Event

La Sociedad de lupus de Illinois te invita a nuestro presentación anual  "Vivir bien con lupus."

Fecha: junio 2,  2017
Hora: 6:00pm-8:00pm
Para inscribirse y obtener más información, póngase en contacto con info@lupusil.org o llame al 312-542-0004.

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Lupus Educational Event
Western Suburbs

The annual Western Suburbs Educational Event will be on Saturday, July 29, 2017.  registration begins 9:30am and the first program begins at 10:00am at the Naperville Library - 95th St.
3015 Cedar Glade, Naperville IL 60564.

This year will include 2 speakers from Rush University Medical Center's Lupus Clinic - Dr. Ailda Nika and Dr. Juan Schmukler.

Check back soon for information on topics.

Refreshments will be served.  RSVP is recommended.
New Support Group

Two new support groups are looking to get started.
1. in the Logan Square/Bucktown/Humbult Park area
2. in the Evanston/Rogers Park area

If you're interested in more information, please email taurean@lupusil.org.

Junior Board JRBD
Night on the Town Fundraiser-Friendraiser

Join the LSI Junior Board at The Graystone Tavern in Wrigleyville to meet, mingle and support the lupus community!  A percentage of sales will be donated to LSI and 100% of proceeds from an AWESOME RAFFLE will be donated to LSI as well. 

Don't miss this opportunity to network with the younger lupus community!

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