Today is Rare Disease Day  
Homozygous Familial Hypercholesterolemia

Today, the FH Foundation recognizes those living with homozygous familial hypercholesterolemia (HoFH) and those we have lost too soon to this devastating disorder.  While FH is common, HoFH is rare, affecting 1 in 160,000 people worldwide with significantly accelerated heart disease.

The outlook for someone diagnosed with HoFH today is much better than it used to be. But we have a long way to go.
Why does Avery care about Rare Disease Day?  
She is 7 years old and living with  Homozygous FH, a rare form of familial hypercholesterolemia.   Watch her video here:


We owe a debt of gratitude to those with HoFH who have participated in research that contributes to the development of effective treatments for millions who are at risk for heart disease. Their participation has made a difference for many!

Our global FH community has lost good friends to HoFH.  We remember them often and in their memory, we fix our sights on a hopeful future with effective and early treatment of FH. 
For Rare Disease Day and Heart Month, Max's mom asked him some questions about his experience having HoFH. Thanks Max!
Please join us in recognizing our rare HoFH Community and donate to the FH Foundation to support our work addressing the gaps in care for those at the front lines of the fight against early and aggressive heart disease.

Join the HoFH Community!
Click here to contact us


On the road to DC!
FH Foundation Advocates for Awareness are headed to Washington, DC to join the rare disease community for Rare Disease Week. FH Advocates will attend Rare Disease Day at NIH, the Rare Disease Legislative Advocates Conference, and to share their HoFH stories with legislators on Lobby Day.
Thank you for helping us support the HoFH Community:



The FH Foundation | (626) 583-4674 | [email protected] |  http://www.thefhfoundation.org
959 East Walnut Street, Suite 220,  Pasadena, CA 91106

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