Gordon and Kristen Gray, have recently been told that both of their children Charlotte (age 4) and Gwenyth (age 2) have a rare
neurodegenerative disorder called Batten disease.
It is expected that both Charlotte and Gwenyth will become blind,
immobile and cognitively impaired, and then die between the ages of 6 to 12. For a parent, this is unimaginable.
I am asking you today to help give Charlotte, Gwenyth and the thousands of other children affected by Batten's disease a fighting chance.
A fundraiser is being held on June 25th at the Atom Factory in Culver City from 7-10pm, to accelerate the research needed to identify treatment options and potentially a cure for this horrible disease so no other family will have to face this devastating illness.
What can you do to help:
- volunteer your time at the fundraiser for 6 hours on June 25
- donate to the foundation
- buy tickets to the event (LIMITED TO 2 PER PERSON)
- register for the auction (no need to be present)
- email us with your ideas, questions or auction items