In this Issue
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BoardofDirectors
Board of Directors

Sylvia DiBona

Chairman

 

Christine DiBona Lobley

Executive Director

 

G. Fred DiBona, III 

John J. Dougherty 

Joseph Frick 

Patrick Gillespie 

Daniel J. Hilferty 

Brian Lobley 

William Sasso, ESQ 

William Sautter 

Gerald S. Segal

 

Advisory Committee

M. Walter D'Alessio 

Nicholas DeBenedictis 

Rosemarie Greco  

 

Grant Advisory Committee

Eileen DeBenedictis 

Sheila Hess 

Steven Udvarhelyi 

Patricia D. Wellenbach 

Gregory D. Garber

  

Staff

Christine DiBona Lobley

Executive Director

 

Mary Rooney

Operations Manager

 

Linda Pusatere

Program Manager

IntheCommunity
In the Community 

Fred's Footsteps is honored to be the beneficiary of the
2014 Physician's Assistant's (PA) Olympics!   

 
About the PA Olympics
 
On May 3rd, 300 students, faculty and guests from  six local Philadelphia Physician Assistant programs will will compete in the 12th Annual PA Olympics. 
 
While the fun of the "Olympic themed events" is a major focal point of the day, the true reason they all come together is to celebrate their fundraising efforts and present a check for local charity that is chosen each year. Last year over $3,000 was raised for the Philadelphia Chapter of ALS
Association. This year the chosen charity is Fred's Footsteps
 
 
 
How you can get Involved
 
Join us for the PA Olympics on 
May 3rd at 11am!

Bamboo Gardens
134 Landing St
Southampton Township NJ  
OUR MISSION
 
Fred's Footsteps helps working families stay on their feet through a child's illness or injury. We provide direct financial assistance to local, Philadelphia region families so that a child's care can be a parent's only worry. We are the only program in the region that provides this type of bridge - not just momentary help - to families during their time of need.

Thinking back to when I was young, some of my happiest memories are from birthdays. It didn't matter if it was mine--a family birthday was a time to celebrate.

 

Today, on what would have been my dad's 63rd birthday, I can't help but think of all the families caring for seriously ill or disabled  children in our community who are celebrating a birthday with the weight of the world on their shoulders.
  

On what should be a happy day, parents will worry about how the mortgage will get paid this month while their child is hospitalized for a surgery and they are out of work. Or, how they wish they could give their child a party, but the cost of traveling to and from chemotherapy appointments has used all of their spare funds. Some parents may look at their disabled child and think that the best birthday gift would be a ramp or modification to give them increased independence, but they just can't afford it. 

 

Thanks to our generous donors, Fred's Footsteps is able to help these families make birthdays just a little bit happier! The help they receive through our program can allow them to breathe easier and focus on their child's illness and, hopefully, their recovery.

 

So, today I smile on my dad's birthday because we truly celebrate his life every day at Fred's Footsteps by helping so many incredible families in need.

 

Happy Birthday, Daddy!

PiYPreviewWe are shaking things up at this year's spring fundraiser, but the party remains the same FUN, casual night out! Don't miss the Party in the YARD (formerly "Party in the Park") on Friday, March 7 at the spectacular world headquarters of Urban Outfitters, Inc..

 

The venue is located in the heart of Philly's 134 year old Naval Yard in one of the city's most impressive landmark properties, a soaring, hangar-sized factory, originally built to produce World War II era battle ships.  Urban Outfitters Inc. has aptly transformed the property into the creative center of their global enterprise, integrating massive industrial artifacts with eastern influenced coy ponds, bamboo plantings, and an antique hand-carved coffee bar imported from India. 

 

Proceeds from Party in the Yard   directly benefit families who have found themselves in financial crisis due to the costs associated with caring for a critically or chronically ill child. We hope you'll join us for an evening filled with incredible food, dancing, fantastic live and silent auction items, a unique raffle, photo booth fun and more! 

 

For a preview of the event, check out our Party in the Yard boards on Pinterest!      

Click here to register online today!               Find us on Pinterest 


FamilyProfileIsaiah was born at the Children's Hospital of Philadelphia via C-section at 23 weeks, exactly five years ago today.  His parents were aware that he was going to have significant problems and was going to need multiple surgeries.  In fact, the doctors didn't expect Isaiah to make it through the pregnancy or live long after birth.  Boy, were they wrong! 

 

Isaiah has had multiple surgeries, many hospitalizations for illnesses, and several setbacks. Due to every organ system in his body forming the "wrong" way, there have been some years when he has spent more time at CHOP or doctor's offices than at home, but he is a fighter with an incredible spirit.

 

Isaiah's family received assistance from Fred's Footsteps in 2012.  We were able to help the family replace their hardwood flooring as well as pay some of their utilities. The family holds a special place in our hearts. 

 

Isaiah turns five-years-old today. If he were to search the Internet, he would discover that Ansel Adams, Sidney Poitier and Gloria Vanderbilt all share his birthday.  If he dug a little further, he would also discover that February 20, 1951 was the date that Fred DiBona was born. 

 

In the words of Isaiah's mother, he is "happy; funny, likes to make people laugh, and is defying the odds.  He has always maintained his charisma and charming smile. He is loved by all that meet him-his family, his friends, and all the staff at CHOP.  Strangers are often drawn to him. Isaiah has a very tender heart and loves to help other people, especially children that are struggling.  He wants to be a doctor when he grows up, so he can help people."

 

For those of us who knew Fred, many of these words describe him as well, and his legacy continues through our work with families like Isaiah's.

 

Happy birthday Fred & Isaiah! Continue to bring smiles to everyone that you touch during your life.

SpotlightOnEvery year we work with families that are dealing with financial struggles due to a kidney disease diagnosis. As many of you know, we lost Fred nine years ago after a 15-month courageous battle with Kidney Cancer. 

 

Kidney failure is when the kidneys slow down or stop properly filtering wastes from the body, which can cause buildups of waste products and toxic substances in the blood. Kidney failure can be acute (which means sudden) or chronic (occurring over time and usually long lasting or permanent).

 

Kidney Disease in Childhood

The kidneys play a critical role in the body: Acting as the body's filtering system, they help control water levels and eliminate wastes through urine. They also help regulate blood pressure, red blood cell production, and the levels of calcium and minerals.  The two kidneys lie to the sides of the upper part of the tummy (abdomen), behind the intestines, and either side of the spine. Each kidney is about the size of a large orange, but bean-shaped.

But sometimes the kidneys don't develop properly and, as a result, don't function as they should. Often these problems are genetic. Many times, these problems can be diagnosed before a baby is born through routine prenatal testing and treated with medication or surgery while the child is still young. Other problems may emerge later, such as symptoms of urinary infections, growth retardation, high blood pressure, etc. In some cases, the problems are more severe and require more extensive surgical treatment. In cases when a child's kidneys fail, a transplant is often the only course of treatment. 

Prognosis

Once chronic kidney disease (CKD) occurs, progression to end-stage renal disease (ESRD) appears certain. However, the rate of progression depends on the underlying diagnosis, on the successful implementation of secondary preventive measures, and on the individual patient.

 

To learn more, go to http://www.kidney.org/kidneydisease