You Made it Happen! Annual Speak Up for Research Gala
We collectively sighed and dried our eyes after watching a short film, "
Love Letter Series| Brick in the Wall
," created to honor lab animal heroes and Joshua Frase who passed away in 2010 from myotubular myopathy (MTM). Dr. Casey Childers accepted the Alvin J. Thompson Award in recognition of the work he led to investigate gene therapy for MTM. His friendship with the Frase Family was evident as he spoke of their courage and persistence to help Joshua, other children with MTM and all of the other people who struggle with rare disease.
Honorees Paul Frase and Alison Rockett-Frase accepted the Buster and Nancy D. Alvord Award on behalf of Joshua and other children like him, and in recognition of their family's efforts to expedite a cure for MTM. In receiving the Award Paul and Alison spoke about the need to ramp up research to deal with the estimated 7,000+ rare genetic diseases that impact children around the world.