FOP Registry Now Available in Russian
The FOP Registry is a global, voluntary database that collects demographic and disease information directly from individuals with FOP through a secure website. Participating benefits all people living with FOP, clinicians, physician researchers and the biopharmaceutical industry working on drug treatments for FOP.
More languages are being added so we’re able to make the Registry as inclusive as possible. Russian is the newest language in which the Registry is available.
Don't forget that when you complete your enrollment survey or a 6-month follow-up survey through July 31, 2018, you are entered to win an iPad or iPhone!