IFOPA Connection August e Newsletter
August 2017 eNewsletter
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
The 26th Annual Report of the FOP Collaborative Research Project is Here!

The Annual Report of the FOP Collaborative Research Project is written each year by the Drs. Frederick Kaplan, Robert Pignolo and Eileen Shore from the Center for Research in FOP and Related Disorders at the University of Pennsylvania. It offers a comprehensive look at how the FOP research effort has evolved over the course of a year. 

A downloadable report is now available for you to read and share. Download the report for the best interactive reading experience. The arrows at the top allow you to flip through the document and the link in the middle at the top of each page returns you to the Table of Contents.
The 2017 FOP Lab Tour - Part 1

FOP Research Development and Partnerships Director, Adam Sherman, shares highlights of his recent travels to labs conducting FOP research across New England. See why Adam is so encouraged by the work being conducted by the dedicated researchers he met on his tour.

Read more >
2017 FOP Family Gathering - Registration Opens Soon!

The IFOPA's next FOP Family Gathering will be held December 1-3 in San Francisco, CA.

This is an exciting opportunity to learn from FOP experts and one another, reconnect with old friends and develop new relationships. If you would like to receive emails about the Family Gathering in San Francisco, please send a message to familygathering@ifopa.org. Registration will open in early September.
Caregiver Corner

We've compiled some helpful tips from caregivers and their loved ones with FOP to help FOP'ers feel more independent. 

See the tips >
Next FOP Drug Development Forum to Take Place This October in Italy

Find out more about the third annual Drug Development Forum - who will be there and what those in attendance plan to achieve.

Meet IFOPA Board Member, Joe Martucci

Joe believes there are no incurable diseases; only diseases for which cures have not yet been found. Learn more about IFOPA board member, Joe Martucci here.
South Africa Family Meeting

Pediatric rheumatologist, Chris Scott, brings patients, medical professionals and FOP families together in South Africa to work toward awareness and treatment. 
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