IFOPA Connection May  Newsletter
May 2017 eNewsletter
 
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
IFOPA and Canadian FOP Network Partnering to Fund FOP Research
New research is being conducted by rare disease experts at the University of Alberta.

Brian Harwell Talks Traveling with FOP
Learn how to travel comfortably and be prepared for anything from our very own globetrotter. 

Happy Mother's Day
The IFOPA celebrates FOP moms this Mother's Day. 

Meet IFOPA Board Member, Karen Munro
Get to know Karen and why she views her involvement with the IFOPA as "absolutely vital" to her and her family.



FOP Registry Adds Four New Languages
German, Italian, Portuguese and Spanish were recently added to empower even more FOP patients. 


The 2017 Call for FOP Research Proposals is now open. This is the third annual call by the IFOPA under the Competitive Research Grant Program, which to date, has funded six innovative FOP research studies, totaling over $225,000 in committed funding. 

Calling All Pinners! Contribute to the IFOPA Pinterest Board
IFOPA Community on Pinterest
The recently launched IFOPA Pinterest page is an exciting new resource that allows the entire community to benefit from the knowledge and experience of fellow FOP families. 

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