This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
IFOPA and Canadian FOP Network Partnering to Fund FOP Research
New research is being conducted by rare disease experts at the University of Alberta.
The 2017 Call for FOP Research Proposals is now open. This is the third annual call by the IFOPA under the
Competitive Research Grant Program, which to date, has funded six innovative FOP research studies, totaling over $225,000 in committed funding.
Calling All Pinners! Contribute to the IFOPA Pinterest Board
The recently launched IFOPA Pinterest page is an exciting new resource that allows the entire community to benefit from the knowledge and experience of fellow FOP families.