TRIO E-News
May 1st, 2021
5K AnyWay in One Month!

International Space Station Astronauts Participating

The 5K AnyWay is about one month away! The latest edition of the 5K AnyWay newsletter is available by clicking on the image above or here.

The 5K AnyWay is a wonderful opportunity to start getting back to an active lifestyle! It is an opportunity for everyone to complete a 5K any way you like! You can walk, run, bike, swim, golf, hike, rollerblade--any way you want! Recipients from over 40 countries have registered to participate in the event.

Everyone who registers will be able to attend the virtual World Celebration on June 5 which will, courtesy of event partners Disney and NASA, include a virtual visit to Disney World and to the International Space Station!

TRIO is proud to be a sponsor of the 5K AnyWay as part of its support of Team USA. For information on the event and to register, click on the newsletter above or visit below.

FACEBOOK: 5K AnyWay

Note: Launch your own birthday, transplant anniversary, or other life event celebration event - or in memory of your donor or other loved one - with a Facebook funding campaign for TRIO using this link:
Starzl Documentary Now Available to Stream
Although released in 2017, I only finally got to see this inspiring movie at the virtual 'New York Premiere' event April 29th. What an amazing life story shared by friends and doctors he trained in the follow-on Q&A part of that live event.

Back in 2012, (shown here --> ) TRIO honored Dr. Starzl with a 'Lifetime Achievement Award' at our TRIO (founded under his leadership in 1987) 25th-anniversary celebration in Pittsburgh. I was honored to meet this amazing man who changed the world in so many ways.

While you may have missed the live NY premiere, this documentary about Thomas Starzl, M.D., the father of organ transplantation, is now available for streaming online but only for a very short time - by following this link.

According to the producer, "Dr. Starzl's illustrious past to inventing organ transplantation unveils the story of an innovator as complex as the biological secrets he unlocked."
Sincerely,
Jim Gleason
TRIO President
(609) 877-4493
big_dreams_education.jpg

TRIO Scholarship Program
The TRIO Scholarship Program is now accepting applications for the coming 2021-22 academic year.

Last year, eight scholarships of $1,000 were awarded to deserving high school and college students to assist them in continuing their education. Scholarships were awarded to high school students, collegiate undergraduates, and graduate students in a variety of different fields of study.

These scholarships would not be possible without the generous contributions of five TRIO Chapters: Akron/Canton, Manhattan, Philadelphia, Ventura County and San Francisco Bay. Several individuals and members of the TRIO Board of Directors also contributed to the scholarship program.

You and your chapter can support this 2021 program with a donation - contact Gary Green <garygreen@trioweb.org> to make arrangements (or donate online at trioweb.org ).

To apply for a scholarship, applicants must:

Be a TRIO member(or an immediate family member);
Be a solid organ or bone marrow candidate, recipient, donor, or an immediate family member;
Have a cumulative GPA of 2.5 or better.

Information on this program is available on TRIO's website by clicking here. The deadline for application submission is June 30.
TRIO Public Policy and Advocacy Report


The TRIO Public Policy and Advocacy Committee continues its work of advocating on behalf of recipients and donors everywhere. Their monthly activity report has been updated and is always available on our website here.
TRIO Maryland Virtual Transplant Conference

TRIO Maryland is organizing a virtual online conference on May 8 for transplant recipients, waitlisted patients, caregivers and those considering living donation.

The highlight of the event, from 9:00 AM to 12:30 PM, will be workshops featuring topics such as Preparing for Your Transplant, Medication Costs, Mental Health and Well Being, Nutrition and Diet, and a Covid 19 Update.

With over 600 already registered, your final deadline to register is this Tuesday, May 4th - Click the button below to register . . .
This AlloCare phone app, available for iPhone users since last year, will be released bt CareDx for the Android user later this month. If you would be willing to participate as part of a small beta tester team for this new Android version, submit your contact information (E-mail address, name and phone #) to GleasonJim@trioweb.org for consideration.
Amys House
TRIO National Supports Amy's House
TRIO's Board of Directors recently approved a grant to provide an exercise treadmill for Amy's House, a major project of the TRIO Central Texas Chapter.

Amy's House provides housing for families as a loved one receives an organ transplant. Opening this past January, the house has eight bedrooms and is currently operating at 50% capacity. As the Covid pandemic allows, the house will gradually expand operations to include all eight bedrooms.

TRIO National is please to provide support to this major project of the Central Texas chapter.

"Cytomegalovirus (CMV) After Transplant" Study

Adelphi Values, a health research organization that works with pharmaceutical companies to assess the impact of health conditions and their treatments on peoples’ lives, is conducting a study exploring the burden of cytomegalovirus (CMV) and its treatment on transplant recipients. CMV infection is common in post-transplant patients and can lead to various medical problems such as increased graft failure and mortality. Sometimes CMV lasts for a long time even if being treated with medicine, or it comes back after you and your doctors think it has gone away.

Adelphi Values is looking to speak with adults 18 years of age or older who are recipients of a solid organ transplant (SOT) or an allogenic hemopoietic stem cell transplant (HSCT) within the past five years, and have experienced CMV infection that lasted for over two weeks despite treatment, or CMV infection that came back after being treated successfully in the past. Adelphi Values invites those who have experienced this type of CMV to participate in a telephone interview. Participation in the study will consist of a brief interviewer-administered questionnaire and a one-on-one 60-minute telephone interview to discuss your experience with CMV infection, its treatment, and its impact on your life. You will receive $120 for completing the 60-minute interview.

During this study, no medication will be given or tested. Your inclusion in the interviews will not replace or affect any care or assistance you are currently receiving or may receive in the future. Your name and contact information will not be shared with anyone and will remain confidential.

If you wish to participate or have any questions, please contact Adelphi Values and reference study number TK8701A or write/call . . .
Samantha Power (Samantha.power@adelphivalues.com), 617-720-0001)

TRIO Oklahoma In The News

TRIO Oklahoma, TRIO's newest chapter, was recently the subject of a feature story on KWTV News 9, the CBS affiliate in Oklahoma City reporting on the chapter's statewide support network for transplant patients. Watch the story by clicking on the logo or here!
TRIO Partners with TransplantLyfe

TransplantLyfe is a recently launched digital platform for transplant patients, care partners and donors, developed and run by Lyfebulb, a patient empowerment platform founded by a 2-time transplant patient. 

Lyfebulb is conducting user interviews to understand how people affected by organ transplants view their site, their needs and priorities around each feature. The format is a 45-60 minute, recorded Zoom interview.

Interviewees are limited, but if selected, In appreciation of your time and valued insights, they will send you a $75 Amazon gift card at the end of your interview. If interested, please email sarah@lyfebulb.com.
Click on the banner above to check out the NEW TRIO Post-transplant Cancer awareness website at https://TRIOwebPTC.org raising life-saving awareness of the higher risk for cancers in transplant recipients, offering ways to safely live with that risk.

Several recent webinars featuring TRIO members and this PTC website are now available for online viewing in our TRIO presentation library such as this CareDx one (Click here to view) or the recent TRIO Maryland event (Click here to view)
New Book Reviews

A May 15th book release by Martha Gershun and Dr. John Lantos, titled 'Kidney to Share" tells the story of her challenging experience in offering her kidney to a stranger . . .
Kidney to Share
Full review available: 5-Stars/highly recommended read

Summary: A first-person sharing of being an altruistic living kidney donor, offering insight into the challenges facing anyone in that process. Interspersed chapters offer medical expert commentary that parallels the donor's story about the history, ethics, and current need for change in the living donation process.