Hey Cure,

The 2022 FAST Science Summit and Gala is approaching rapidly! Last week, we gave you a first look at the Science Summit schedule of events.

Today, we want to remind you that this is the final week to book your hotel room at our group rate (the deadline is 10/31).

With Diwali this week and Halloween on Monday, if you’re celebrating one or both, we hope you have a great time with family and friends! 🪔🎃

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

This FAST-funded study aimed to evaluate a highly sensitive and objective method to measure receptive language in individuals living with AS, a vital need for clinical trials. When individuals have limited expressive verbal language due to a combination of challenges (gross motor, fine motor, dyspraxia, etc.), their standardized scores on receptive language tests are negatively impacted.

This study evaluated a way to try and circumvent that to better assess receptive language without needing expressive language or advanced motor skills.

Click here to read more about this research study and the conclusions:

WHEN: Saturday, December 3rd from 1:30-2:30pm EST (New York)

WHERE: The Diplomat Beach Resort Hotel, Conference Room 303

Cap of 50 guests

Lunch provided

After the Science Summit, join us for an in-person discussion with seasoned CAN fundraisers who will share tips on how the community can get involved in the 2023 campaign and beyond at our Fundraising 101: Lunch and Learn.

We understand that fundraising can be stressful and overwhelming so this panel of experts is here to help. They will discuss their fundraising best practices, offer ideas and creative ways to raise money, and help the community kick off or polish their fundraising efforts.

Sign up by Friday, November 18th! Click here to register:

FAST UK was set up by Tom and Tam Keogh in 2016 after their daughter, Amelia, now 8, was diagnosed with Angelman syndrome the year before. Their main project and where the majority of their funds are directed currently is the Natural History Study. As well as this, FAST UK continues to support families newly diagnosed with AS and encourages families, friends, relatives of those with AS to raise funds and support FAST UK.

Click here to read more about FAST UK:

WHEN: Saturday, October 29th at 3pm BST (London)

WHERE: The Stratford Hotel, London

This weekend, Joanna Marcella, the grandmother of Manasseh, who lives with AS, is hosting a Fashion and Arts Soiree and Presentation. This exciting event will bring awareness to AS while showcasing some of the finest and brightest national and international artists and fashion designers.

“My mission is to travel the world raising awareness about Angelman syndrome; utilizing the influence of fashion and art to raise funds, whilst creating an international platform for emerging fashion designers and artists.” – Joanna Marcella, Director of the FDC Young Designer Awards and the FDC Collections Showcase

Click here to RSVP for the fashion show:

Thanks for reading, Cure! Watch for a spotlight on FAST Canada next week in our FAST Global Highlight.

As always, please share this link with anyone who would be interested in receiving our updates.