Take this FAST ACTION today: If you haven’t already, we are urging parents, caregivers, family, and friends to take action! 

Threats to essential services like Medicaid grow more urgent by the day. Now, it's time for every voice in our community to rise up. Policies are changing fast, and the future of Medicaid is at risk. If we don’t act now, the services our loved ones rely on could be drastically reduced or lost. Please use this action alert to contact your Member of Congress today. It only takes a few minutes—but your voice could help protect a lifetime of care.

👉Take action today:

MavriX Bio, a clinical-stage biotechnology company focused on the development of transformative genetic therapies for AS, announced a major milestone this week: FDA clearance to begin testing its new investigational gene therapy (MVX-220) in human clinical trials.

MavriX Bio will host a webinar in the coming months to share more details about the clinical trial design, eligibility criteria, and anticipated timelines.

Read the press release & FAQs:

The Angelman syndrome drug development pipeline is filled with promising “shots on goal,” including numerous gene therapy approaches that aim to address some of the most challenging aspects of living with AS. 

That’s why we’re honored and humbled that FAST has been invited to speak at the American Society of Gene & Cell Therapy (ASGCT) Annual Meeting taking place this week in New Orleans—the largest and most respected gathering of researchers and industry leaders working in gene and cell therapy. 

💬 Dr. Allyson Berent, FAST’s Chief Science Officer (and fellow AS parent), will speak at multiple sessions throughout the week, sharing how patient/parent-driven innovation is accelerating breakthroughs in Angelman syndrome research. 

🧪 Three of FAST-funded research programs will also be presenting their work. 

👥 And the FAST team will be on the ground to learn, connect, and make sure the Angelman community has a strong presence throughout the conference. 

Opportunities like these are the result of the hard work and dedication of this entire community to help bring awareness to AS. Your support continues to move science forward at an incredibly rapid pace— bringing us closer to meaningful treatments for our loved ones. 💙 

See the exciting agenda:

Near Saginaw Bay, two hours north of Detroit, Michigan, the Go Gus Go Foundation will be hosting their annual golf outing on Saturday, June 21st to raise funds for the Angelman syndrome community and local Michigan special needs families.  

If you’re in the area, join the fun and register to play golf. Not a golfer or not able to make the event, no problem – there are sponsorship levels starting at just $100!  

Learn more and support this event:

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